Very very rare
One of the reasons I believed I couldn’t be autistic for so long was due to a fundamental misunderstanding of my social struggles. This being that I am not by any means incapable of memorizing social rules. Through observation and direction I can construct a broad framework of ‘socially acceptable or not.’ For example, I’m well aware that making physical contact with someone without consent isn’t acceptable. Or that stating blunt facts in a way that implicates someone negatively isn’t allowed. I know to avoid interrupting others if they’re already talking, to not walk away when I’m in the middle of a conversation. Crying, being unusually quiet and frowning indicates sadness. Someone smiling at laughing at what you’re saying means they probably are enjoying their time with you. An increase in speaking volume indicates excitement- either positive or negative. Sarcasm is often indicated by someone saying something absurd that you know they would never say, or you know to be factually wrong.
The fact that I had learned these broad rules made me think autism wasn’t a possibility for me. But being autistic doesn’t stop you from obtaining and applying information. (I mean that’s why so many interventions that ‘treat’ autism do result in the autistic person being able to pass as neurotypical.)
The difference comes from lacking the subconscious nuances and exceptions that come with those broader rules. For example- when is it okay to actually be honest? Some people will not be bothered by physical intimacy- but how would I know this? How can you tell if a group wants you to join in with their conversation? How to tell if this person is smiling and laughing politely or genuinely? How to tell if someone who you know very little about is being sarcastic?
There are not direct, easy to apply ‘rules’ for this, and yet clearly there are ‘right’ options. When the appropriate reaction must be determined by subtle body language or small shifts in tone of voice, ones that are near impossible to teach- I become completely lost.
That’s something I always find lacking with the general social skills advice given. It’s helpful to a point, but the truth is everyone is an individual. People express themselves differently, and react to your same actions differently due to past circumstances or temperaments. There is no one set of rules you can use for everyone, unfortunately. The majority of neurotypicals, while of course having miscommunications and the like, can rely on their subconscious to parse out any subtle changes they might need to make to their demeanor for a particular situation. My brain is much less adept at focusing down broader experience/rules into unique circumstances. (This is actually something that extends past social cues for me and I might make another post talking about it because I think it’s interesting)
Anyway rant over but yeah this was a huge mental barrier to seeking out a diagnosis for a while because at some level I ( ironically enough) took struggling to understand social cues too literally…
So what I learned about myself by researching these topics about abuse, collected from experts and therapists who work with complex trauma patients:
Betrayal Trauma is the name of what I went through in my household
Scapegoats are often betrayed by parents and I fit the scapegoat role
Scapegoats are often “truth tellers” and fight the family narrative
Scapegoats can be betrayed by one family member OR they can be betrayed by the whole family in which the family narrative is “we are all okay and right, and you (the scapegoat) is the crazy/wrong one.”
Scapegoats often have DARVO used against them (when the abusers in the family call the scapegoat the abuser, and the real abusers/parents call themselves the victims)
Scapegoat may feel betrayed, rejected, shamed, become a people pleaser, overly forgiving, may avoid relationships and end up isolating yourself from others
Some become dependent on the abusive family as an adult, slow to get ahead in life
Toxic shame is not just feeling ashamed, but YOU ARE shame (not really true, your brain lies to you). You think You Are Shame walking around on 2 legs. (How I feel and doing my research I understand it’s the trauma brain talking but I genuinely believe the lies). “I feel humiliated when I speak in front of others” “I feel humiliated for existing and taking space”
You could have had a fight response, challenge the abusers distorted, twisted view of reality. It causes exhaustion from challenging the family false narrative growing up. You may identify with being the “fighter.”
Family Systems expert Rebecca C. Mandeville explains adult survivors of Family Scapegoating Abuse (FSA) are impacted by Betrayal Trauma. She also explains the consequences of being rejected, shamed, and blamed by the people who were supposed to love and care for you the most.
Dr. Erin Watson’s article: The Duel Layers of Betrayal Trauma for Survivors of Family Scapegoating Abuse.
General Autism Resources
What is Autism?
Another What is Autism?
What is Autism? (ASAN)
What is Autism? In Plain Language
Dictionary of Autism-related Concepts
Inclusive Autistic Traits
Myths About Autism
Autism FAQ
ASAN’s About Autism
Ask an Autistic (videos about autism by an autistic)
Don’t Mourn For Us
Autism Resources
Autism Masterpost
Autism 101
Self-Diagnosis Resources
DSM-V Criteria
ICD-10 Criteria
A Self-Diagnosis Masterpost
Autism Self-Diagnosis Masterpost
A Diagnosis Checklist Masterpost (contains checklists for many neurodivergencies not just autism)
Autism Does Not Reside in a Medical Report
My Stance On Self-Diagnosis
Positively Autistic: A List of (Positive) Autistic Traits
Adult Diagnosis
DSM Criteria for Autism Explained
Simplified Diagnostic Criteria
Autism Quizzes
Adult Diagnosis Series
ASD Paper Diagnosis vs. Self-Diagnosis
I Think I’m Autistic
Autism versus…
Autism vs. PTSD
Autism vs. BPD
Autism vs. ASPD
Autism vs. StPD
Autism vs. SzPD (follow-up)
Autism vs. Schizophrenia
Autism vs. Psychosis
Autism vs Social Anxiety
Shutdown/Meltdown vs. Sensory Overload vs. Panic Attack
Autism and ADHD
What is the differences between autism and ADD/ADHD?
Autism With a Side of ADHD
Differences between autism and ADHD
ADHD Self Diagnosis
Sensory Processing Topics
What Is Sensory Processing Disorder? (video)
SPD Checklist
SPD Resource Center
Understanding Sensory Processing Issues
Masterpost Sensory Differences
Sensory Sensitivities and Atypical Sensory Processing
How to Reduce Sensory Overload
Processing a Sensory Overload
Autism A-Z: I is for Interoception
Sensory Processing Disorder Resource List
Meltdowns and Shutdowns
What Does a Meltdown Feel Like?
“Shutdown” What It Is and What It Isn’t
Where I Go When I Shutdown
Anatomy of a Meltdown
Shutdown: A Specific Type of Meltdown
Autism A-Z: M is for Meltdowns
Autistic Burnout
Autistic Regression and Fluid Adaptation
“Help! I Seem to Be Getting More Autistic!”
Autistic Burnout
What is Autistic Burnout?
Autism A-Z: B is for Burnout
What is Autistic Burnout? Infograph
Echolalia
The Naked Mechanisms of Echolalia
Echolalia: That’s What She Said
Alexithymia
What is Alexithymia? (video)
Alexithymia Question
Emotional Dysfunction: Alexithymia and ASD
What Alexithymia Feels Like for This Autistic
Hyper-Empathy
Hyper-Empathy In Autistic Individuals
On Emotions, Hyperempathy, and Hypersensitivity
Hyperempathy Feels FAQ
The Intense World Syndrome- An Alternative Hypothesis for Autism
Executive Dysfunction
Executive Dysfunction
Executive Function Series
The “Joys” of Executive Dysfunction
So What Is Executive Dysfunction?
How to Live Better With Executive Dysfunction
Special Interests
What’s So Special About a Special Interest?
Special Interests
How Do I Know for Sure What My Special Interests Are?
Autism A-Z: S is for Special Interests
Stimming
Stimming 101, or: How I Learned to Stop Worrying and Love the Stim
What Is Stimming?
Types of Stimming
What is Stimming?
The Stimming Checklist
The High Cost of Self-Censoring (Or Why Stimming Is a Good Thing)
Where to Buy Stim Toys
Stimtastic
A Sense of Self
Fuzzwumpet
Weird Faeles
SpacerobotStudio
Ruthdoodle
Autistic Rabbit (weighted blankets)
Fidgetopia
The Fidget Shop
Fat Brain Toys
Neurodivergent Creators
The following are people from our community who create products that are helpful for autistic people such as stim toys, communication tools, and more! Check out their shops as a way to support neurodivergent creators!
PangeaMea by Francis Mark (autism, OCD, ADHD, anxiety, depression) sells stim toys, sensory friendly clothing, noise muffling beanies and headbands, padded arm protectors, and skin picking simulators.
StimForTheWin by Exo (autism and ADHD) sells tangles and fidget cubes with silicone spikes on them for maximum stimming, communication necklaces (also with silicone spikes), and marble mazes/ donuts.
StrangerDarkerBetter by Mod Sabrina (autism, ADHD, schizoaffective, PTSD, depression, anxiety) sells visual schedules and communication cards.
PieFanArt by Pie (autistic) sells mostly plush toys, art and jewelry but also weighted plushies and scented plushies!
WagglesStudio by Dailyspeal sells stim toys
Identity First Language
Identity First Language
I Am Disabled: On Identity-First Versus People-First Language
I is For Identity First Language
Why I Dislike “Person First” Language
Autism A-Z: P is for Person First
Autistic In the Workplace
Autistic in the Workplace Inforgraph
Autistic in the Workplace: Autism and Interviews
Autistic in the Workplace: Change
Autistic in the Workplace: Professional Dress
Autistic in the Workplace: Hallway Conversations
Neurodiversity and Autism Acceptance
Why Acceptance
Neurodiversity: Some Basic Terms and Definitions
Autistic Pride and What You Need to Know
Autistic Community
Welcome to the Autistic Community
Autistic Culture
A Love Letter to the Autistic Community
Defending and (Re)defining Self-Advocacy
The Social Model of Disability
Disabled Not Disordered: Autism and the Social Model
Social Model of Disability Animation (video)
Understanding Disability Models
A Social Model of Disability Analogy
What’s Wrong With Functioning Labels?
Functioning Labels Masterpost
Functioning Labels 101
Decoding the High Functioning Label
Functioning Labels Comic
On Functioning and “Functioning”
F*%$ Your Functioning Labels
More Problems With Functioning Labels
Fluctuating Functionality
Asperger’s and Autism
Why Autism $peaks is Bad
What’s Wrong With Autism Speaks
Why I am Against Autism Speaks (and you should be, too)
Updated Autism Speaks Masterpost
Boycott Autism Speaks
I Resign My Roles With Autism Speaks
A Few Selected Autism Speaks Quotes
How the “Autism Speaks” Charity Failed the Community It Set Out to Serve
What’s Wrong With ABA?
ABA Masterpost
Why I Oppose ABA as a Method of Instruction
ABA 101
Trauma and Autism
What ABA Is Like From the Point of View of a Former Therapist
Why I Left ABA
Anti-Anti-Vaccination
On Vaccines, Autism and Systemic Bigotry (masterpost)
Vaccines Don’t Cause Autism, but That’s Not the Point
Vaccines Don’t Cause Autism, but So What if They Did?
Everything Wrong With Vaxxed (video)
“It’s never too late to start over again and to be happy.”
— Anurag Prakash Ray
Stick and poke I just finished on myself. By far the biggest piece I've done. Really happy with the result!
‧ ゚。⋆ * ⋆. ౨ৎ ‧ ゚。⋆ * ⋆. ౨ৎ ‧ ゚。⋆ * ⋆. ౨ৎ ‧ ゚。⋆ *
it has gotten better before
and it will again ☆
‧ ゚。⋆ * ⋆. ౨ৎ ‧ ゚。⋆ * ⋆. ౨ৎ ‧ ゚。⋆ * ⋆. ౨ৎ ‧ ゚。⋆ *
ppl will say “i hate being seen with you in public because you stand funny and wear your headphones all the time and talk too loud” and then get all defensive when you say thats ableist