Please Don’t Offer Advise To Chronically Ill People On How To Help Their Pain, Illness, Disorder, Etc.

please don’t offer advise to chronically ill people on how to help their pain, illness, disorder, etc. we know what works, what doesn’t work, and what we’re going to try next. as someone who has fought with every family member, coworker, friend, teacher, employer, etc about what is the best treatment plan for me, i do not need your help or advise. i don’t care if you see me as lazy, rude, or dramatic. i live more than 50% of my life in bed from my pain. i have been on countless trial medications with ridiculous side effects. i’ve had er visits that end with me in more pain than when i arrived. i have fought with specialist doctors to be seen as valid in my pain. 18+ years, out of the 21 i’ve been alive, have been dedicated to fighting the nerves in my own brain. i’m tired man. just leave me be.

More Posts from Chaoseatsthedark and Others

5 months ago

Fandom is so different now and it’s becoming un-fun with how quickly shit moves.

I just want to enjoy things. I don’t want to have to play a game of Artist-Race that seems to be afoot lately.

Ya’ll eat up fandoms, leave artists and writers bone dry and then move on so fucking quickly then fucking wonder where all the Good Fandom Stuff is.

Idk Maybe cherish some things for longer. Reblog stuff. Interact with people. Comment and share.

Fandom is Capitalism now and I’m not being nuanced.

1 year ago
“Sometimes,” said Julia, “I feel the past and the future pressing so hard on either side that there’s no room for the present at all.”
― Evelyn Waugh, Brideshead Revisited, quote edited by @wedarkacademia

- Evelyn Waugh, from Brideshead Revisited (1945)

4 months ago

you WISH you were eating sweet mulberries from a stranger’s overgrown tree at twilight in a silent neighborhood

1 year ago

Tracy Chapman and Luke Combs performing Fast Car at the Grammys

6 months ago

“how did you get into writing” girl nobody gets into writing. writing shows up one day at your door and gets into you

1 year ago

It feels taboo as a childfree person to admit this but I actually do have concerns about who is going to take care of me when I'm old. The elder care system in our nation relies A LOT on the unpaid care labor of adult children. I just don't think that's a good reason to have kids.

"But you'll have more money!" does not completely put this to rest for me. Neither does "Buy care insurance!" Even if I can afford direct personal care, who is going to advocate for me to get it? Who is going to navigate bureaucracy for me when I'm 80?

"If you do have kids, there's no GUARANTEE that they'll take care of you when your old!" That's true, but doesn't solve my problem.

I think childfree people get very defensive about this question because its used as a kind of "gotcha!" against us, but I actually do not feel we can afford to be in denial about this reality. Based on current trends of more people in their 30s stating they intend to be permanently childfree, we are going to see a huge wave of childfree adults hitting the eldercare system at once in a few decades. Childfree people in their 30s should be advocating around eldercare NOW.

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A Punk Academic that has essays I'm procrastinating on.

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