If you've ever told a person who's had to be bedbound for a period of time that you wish you could "just stay in bed", DO IT.
Stay in bed. For days. But don't get up if someone needs you to, or you get bored, or you get antsy. Don't do anything other than rest. Just lie in your bed, whether you need to get stuff done around the house or socialize or anything else "productive". You'll have to cancel on people, you'll disappoint them, they won't understand.
And if you're thinking, "well, i CAN'T just be in bed. There's stuff that has to be done - I have plans", maybe ask yourself why you assumed a disabled person doesn't have plans or things to do or desires.
chronic illness really makes the weirdest ‘would you rather’ scenarios come to life.
like, would you rather: show up to christmas with no presents for anyone or show up having not showered for a week?
would you rather: feed yourself or do the dishes?
you can choose both but your penalty is to spend an unknown amount of time bedbound afterwards.
You should be able to say “don’t touch me” to anyone ever in any context and not have it be considered in the realm of surprising or insulting imho if we ever needed to normalize something it’s this
New favourite thing to do is to remind people of how much they hated lockdown when they say they wish they could stay home as much as I do.
Like no you dont you were miserable when you were forced to stay home all day everyday for the good of your health. Thats my entire existence as a disabled person so pack it in.
You don't owe anyone an explanation of your condition/disability, how or when it started, what meds you take, what tests you've undergone, or literally anything about your health!
It doesn't matter if it's a stranger, a friend, or a relative.
It's your life and you have a right to privacy.
Don't let them guilt you into answering invasive questions.
I think that it's really important for people to realize that being disabled is traumatic. genuinely. your body and brain feel like they are breaking down and wrong. you are in constant heavy stress from stuff like chronic pain. most disabled people i know have a somewhat regular emotional break down from the trauma of it all. and we are expected to just smile through it by society, to not be in the way, to not be an issue.
people who assign morality to disabilities: you are not above becoming disabled. you will do everything right and you might still find that one day you are not able-bodied anymore. disability and morality have no correlation.
who up experiencing emotions they can talk to no one about
shoutout to the people who desperately want to move out but can't because they have medium/high support needs, and their family is the only people they have to rely on. especially since autistic and disabled adults are much more likely to suffer from loneliness. i hope you get what you need soon.
weird as fuck living in a culture where it's considered more impolite to speak up and defend yourself against someone treating you unfairly than it is for someone to be rude to you in the first place