Demon Of The Fallen Snow

demon of the fallen snow

My mom is starving to death- please HELP!!!

This ISN’T a call for money!!

Alrighty tumblrites, I need you now more than ever. Your ideas, you resources, your suggestions- I’m listening.

Since March my mom has been extremely sick- every time she tries to eat, she throws up. I’m not exaggerating- EVERY TIME she takes a bite of something, she vomits. Even when she isn’t trying to eat- she vomits. 8-12 times a day, sometimes more.

Since March.

She can barely drink anything, it all tastes s bad that it makes her vomit too- yes, even ice chips.

Her primary won’t see her- of the three telecom appointments we’ve gotten with his office (not HIM), all they have done is sent her antibiotics and, after I demanded them, referrals to specialists. She has seen an Ear, Nose and Throat doctor and a Gastroenterologist- both have encouraged my mom to see a Rheumatologist, which we have gotten several referrals for, except none of the one’s accepting patients take her insurance.

Aside from whatever is causing the vomiting, they suspect she has Sjögren’s syndrome, because she has also been suffering from an inability to produce either saliva or tears. I mean, her mouth is bone dry, 24/7 and it is probably the reason everything she tries to eat tastes like sand, even water.

But we can’t get into a Rheumatologist atm. On top of that, her gastro dr. did an endoscopy and colonoscopy on Aug 11 and found signs of Barrett’s esophagus, several polyps, and a twisted colon- so twisted that they couldn’t complete the colonoscopy and now have her scheduled for a virtual colonoscopy on the 20th. I know they are investigating Chronic Vomiting Syndrome and Gastroparesis… but she wasn’t able to complete a stomach emptying study because to do it she has to swallow a medicine they track and… you guessed it- she can’t swallow anything. She threw it up.

But NONE of this helps her right now- she can’t eat anything despite being constantly hungry. I rubbed her back toady as I held her hair back and could feel her ribs- I am literally watching my mom starve to death, and watching her get weaker and weaker and we don’t know what to do.

We take her to the ER, and they give her a bag of fluids and send her home. We tell her doctors she isn’t eating but all her blood tests and stuff come back normal, so they just shrug.

At this point I know what I want- I want home health coming in to support her, to monitor her condition to see what is happening. I want her hospitalized until they can determine the cause of the problem, so that if nothing else they can hook her up to a feeding tube so that I don’t lose my mom.

I don’t want my mom to die guys… I don’t want to stand by, helpless as she starves, I don’t want to wake up and find she dies in her sleep because she aspirated, or her body simply gave up. I hear people talking about being ready to die because they are miserable, and in the meantime I’m grasping at straws to try and keep the most important person in my life alive.

And she is suffering, and in constant pain, and I can’t even imagine the torture of being constantly hungry and surrounded by food that you can’t eat and I need help.

Please, please, any ideas you might have, any resources we might not have thought of… I need them. Please, if you can’t think of anything, at least reblog this post- I know it’s long as hell, but I’ve got to hope maybe there is someone on this site that might have an answer.

Help me save my mom.