Hey There! My Name Is Meg And I’m A 16 Year Old Girl with A Rare Disease Called Ehlers Danlos Syndrome.

Hey There! My Name Is Meg And I’m A 16 Year Old Girl with A Rare Disease Called Ehlers Danlos Syndrome.
Hey There! My Name Is Meg And I’m A 16 Year Old Girl with A Rare Disease Called Ehlers Danlos Syndrome.
Hey There! My Name Is Meg And I’m A 16 Year Old Girl with A Rare Disease Called Ehlers Danlos Syndrome.

Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and is getting worse every day. I became ill at 13 years old, by the age of 14 i was wheelchair bound. When i was 15, i was left completely bed bound due to severe complications in my head and neck. My brain is sinking in my head, causing my spine to collapse, this is causing my brain stem to twist and spinal cord to bend - it is putting pressure on my windpipe when I move and makes breathing very difficult. The days are dark and right now, there is no light.

But i am not giving up

in order to keep fighting i need an incredibly complex surgery to stabilise and correct the problems in my cervical spine and skull.. This surgery has never been performed in my country before so i have to get american surgeons involved. There are a lot of expenses that I simply cannot afford.

I used to have a blog with 25,000 incredible followers that helped me stay strong but my blog was hacked and deleted the other day. i used my blog to raise money for my very expensive medical needs and now I’m earning nothing. I remade, with the same url, hoping that i will be able to raise/earn more money. i will not give up. i have fought so hard, i can’t give up. So if you have a few pounds/dollars/euros/etc that you don’t need or whatever then i would really appreciate if you could donate to my gofundme, which is: http://www.gofundme.com/team-meg

Alternatively, if you do not have money to spare, I have ads on my blogs. This is my humour blog and this is my main blog. All I need from you is 1 click on each ad, keep the tab open for five minutes and you will be helping me out hugely. It takes very little effort and it has a huge impact.

Thank you so much for reading this and sharing/donating/etc. i really appreciate it, have a wonderful day <3

More Posts from Dayfairies and Others

7 years ago

Um. Also. Can we talk about the brilliant irony of you belong with me taylor getting hit in the head with a high heel?


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9 years ago

do yoU EVER GET SO UPSET THAT FICITIONAL CAHRACCTESRS HAVE THE SAME AGE AS YOU AND THEYVE GONE ON SUCH MAGICAL ADNVETURES AND YOU HAVENT????

8 years ago

reblog if you dont scream at 5am

trying to prove a point to birds

8 years ago

ATTENTION DIGITAL ARTISTS

IF YOU HAVE AN ART PROGRAM OPEN RIGHT NOW

HAVE YOU SAVED RECENTLY?

SAVE IT NOW

THANK YOU

9 years ago
Dragon

dragon


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9 years ago
You Just Go For It!  Take It At Your Own Pace And Try Your Best To Not Be Impatient With Yourself!  Your
You Just Go For It!  Take It At Your Own Pace And Try Your Best To Not Be Impatient With Yourself!  Your
You Just Go For It!  Take It At Your Own Pace And Try Your Best To Not Be Impatient With Yourself!  Your
You Just Go For It!  Take It At Your Own Pace And Try Your Best To Not Be Impatient With Yourself!  Your
You Just Go For It!  Take It At Your Own Pace And Try Your Best To Not Be Impatient With Yourself!  Your
You Just Go For It!  Take It At Your Own Pace And Try Your Best To Not Be Impatient With Yourself!  Your
You Just Go For It!  Take It At Your Own Pace And Try Your Best To Not Be Impatient With Yourself!  Your
You Just Go For It!  Take It At Your Own Pace And Try Your Best To Not Be Impatient With Yourself!  Your
You Just Go For It!  Take It At Your Own Pace And Try Your Best To Not Be Impatient With Yourself!  Your
You Just Go For It!  Take It At Your Own Pace And Try Your Best To Not Be Impatient With Yourself!  Your

You just go for it!  Take it at your own pace and try your best to not be impatient with yourself!  Your level and speed of growth might be faster/slower than someone else’s, so focus on your own path and let the journey take you to amazing places and opportunities!  There’s obvs going to be obstacles in the way of what you want to do, but the greater the accomplishment requires even greater challenges, though the real question is if you’re willing to take the plunge and try anyways?

8 years ago
dayfairies - Where the south wind meets the sea

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dayfairies - Where the south wind meets the sea
Where the south wind meets the sea

Carolina ❅ 22 ❅ Argentina ❅ Instagram (art account): dayfairies  ❅ social issues & resource side blog: dayfairies2 ❅ humor side blog: dayfairies3

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