Okay. Come On, Then. I Love You, Get Up, We Are Going To Keep Going. Repeat This To Yourself In A Mirror

I can’t get over this lmaooo

If there was a way to run SUPER MEGA AD BLOCKER on this website I fucking would

COVID Long-Haulers Are Organizing And Demanding Better Care — And They Just Got A Meeting With The WHO

Across the globe, scores of COVID “long-haulers” have been fighting for doctors to believe and help them. On Friday, they finally got a meeting with the World Health Organization.

Listen, I know it’s a B*zzfeed article, but if you listen closely you’ll hear the neglected screams of the Myalgic Encephalomyelitis community and all the researchers who fought for decades to get funding for this sort of thing, but because the illness got re-branded as “chronic fatigue syndrome” and WRONGLY classified as a purely psychological disorder, and not a complete autonomic nervous system collapse following a major event (trauma, prior viral illness etc), we’re both woefully behind and wholly unprepared for the mass disability event that is about to follow Covid-19 if steps aren’t taken Immediately to correct the guidelines being handed out by doctors to “long haul” Covid-19 patients when it comes to self care and long term recovery.

Jennifer Brea over on Twitter has been talking extensively about her experiences with having ME/CFS and then contracting Coronavirus on top of that (source). She also regularly boosts the experiences of others, and is one of the most forefront advocates for ME/CFS to be taken seriously by medical professionals worldwide, and her documentary www.unrest.film/ has been paramount to raising awareness to the neglect and medical abuse many people with chronic conditions face. 

If you’re a “long haul” Covid-19 sufferer and you’re finding my blog because of the various chronic fatigue things I’ve posted over the years, I’m so sorry. We think I got it back in March/April, and while we also think my MCAS meds might have helped me recover better, it’s been a rough few months, even by my standards. But please know you are not alone. Reach out to the ME/CFS communities online. You’ll find support and resources that may help you affirm that you’re not alone or crazy and that yes, some of the things your doctors are recommending you to do, like “kick starting your recovery with exercise” is in fact making you worse. Many, many, many people with ME/CFS suffer from severe and debilitating exercise intolerance, especially if their ME/CFS comes with a side helping of POTS (Postural orthostatic tachycardia syndrome). My exercise intolerance is made doubly worse by suffering from a mast cell dysfunction (MCAS), which means if I exercise too hard or too much, I can trigger an episode of anaphylaxis and go into shock. Sounds bonkers I know, but as anyone with a chronic condition can tell you, the body is capable of wild and often terrifying things that as many, many people are now finding out, most doctors are either ill equipped to deal with or even believe in.

But for whatever it’s worth, I believe you. I believe you got sick, and you’re still sick, and if I can give you one piece of advice from one chronically sick person to another, rest. Please, rest, please don’t push yourselves. Be kind and gentle to yourself. Yes you might end up with some deconditioning, but you cannot show this thing who is boss by running a marathon or climbing a mountain. Health doesn’t work that way, no matter what the moral purists and healthful bloggers say. Be gentle, be kind. Your body is going through a trauma not yet fully understood by medical science, and you cannot expect to bounce back the way you once did. I’m sorry. You didn’t do anything wrong. You didn’t do anything to deserve this. It’s just how things are. But you’re not alone, and I hope there is some comfort in that for you.

Attn to disabled people + allies: A new bill called the SSI Restoration Act of 2021 has been introduced to the House and Senate that will be life-changing for many of us.

Among other things, the SSI Restoration Act of 2021 will:

• Raise the monthly disability income to the poverty level — a ~30% increase

• Change the amount recipients can have saved from $2,000 to $10,000 — the first update in over 30 years

• Update outside income restrictions to $399/month from work *without benefit reductions*

• REMOVE THE MARRIAGE BAN and promote marriage equality

• Remove penalties and reductions for receiving help from friends and family

Please consider calling your representatives to ask them to support it. You can also text "SIGN PSLOAE" to 50409, which will automatically send letters to your representatives for you.

Find your senator: https://www.senate.gov/general/contact_information/senators_cfm.cfm

Find your representative: https://www.house.gov/representatives/

More info: https://www.brown.senate.gov/newsroom/press/release/social-security-program-update | #Disability #DisabilityRights

Hello welcome my ADHD themed gameshow, "So you were holding it literally moments ago but now it's gone" the where YOU look for whatever you were just holding while going increasingly mad

here is seal cancan, my thesis film, completed at last!

(please do click on the source to watch it on youtube if you want to see it in full quality)

“The Rabbat” by Annie Stegg Gerard

The panic over COVID-19 causing people to hoard shit unnecessarily means I can't find medical supplies (like disinfecting alcohol wipes) without paying an obnoxiously exorbitant amount.

Generally healthy, able-bodied people don't need masks, exam gloves, or alcohol swabs to protect themselves against COVID-19. But chronically ill people and their caretakers do need those supplies to live their everyday lives.

Calm the fuck down and wash your fucking hands, ableds.