Link

A screenshot of a tweet by @chronicnotebook (display name: “Nia | The Chronic Notebook”): "Remember staying at home because of illness/disability is not an excuse or choice. It's not watching TV all day, having fun or resting. It's struggling with symptoms and finances, being frustrated, exhausted, and wishing you could do all the things people accuse you of avoiding." Date stamp is Sep 3, 2021.

link

More Posts from Bitchthingie and Others

1 month ago

lowkey fuck all u abled mfs. give your chronically ill friends $1000 immediately

1 month ago

we love waking up in pain we love not sleeping because of pain yayy

1 month ago
So I Wait.
So I Wait.
So I Wait.
So I Wait.
So I Wait.
So I Wait.
So I Wait.
So I Wait.
So I Wait.
So I Wait.

So I wait.

1 month ago

Im gonna be so real can yall actually talk about ways we can support trans women in the UK instead of giving all the attention to fucking JKR. I already know that Harry Poter sucks, I wanna know how to actually HELP people. Something something you have to love the oppressed more than you hate the oppressor

1 month ago

Doctors are like: ughhhhh. You're confusing. Come back if you die

1 month ago

chronic pain diagnoses are all like yeah we don't know what this is or why it happens. we also don't know how to treat it. good luck out there soldier

1 month ago

People tend to think that when you're not able to do work because of chronic illness or disability (taking days off, not doing housework, being unemployed etc.) that you're just able to have fun and chill out like it's a holiday but that's so far from the truth.

The symptoms preventing you from working usually also prevent you from doing things you enjoy, or at least make doing those things significantly harder and less enjoyable.

It may seem like someone not working due to an illness has lots of free time, but that's not correct. The time is not free, the time is being used to rest and recover, which is really a task in its own right.

When I'm in a state where I can't go to school, I usually can't do much else either. I'm too fatigued, or in too much pain to make art or play games, too fatigued to read and actually comprehend what I've read. The only thing I can really do is lie down and scroll social media or watch TV, anything I don't need to actually think about or put physical effort into.

And it's not enjoyable. I'm still suffering from symptoms. I want to do other things, but I can't.

I would much rather feel healthy and work than be ill and stay home

(Disclaimer: this isn't to say that everyone with a chronic illness or disability is always suffering and unable to do anything or that disabled people can't have fun or that anyone who is able to participate in hobbies and fun things must be well enough to work, just that it's frustrating to see people think disabled people are "lucky to not have to work". Wanted to say this in case anyone gets the wrong idea or feels invalidated - you don't need to suffer greatly to be valid in your illness)

1 month ago

chronic pain diagnoses are all like yeah we don't know what this is or why it happens. we also don't know how to treat it. good luck out there soldier

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bitchthingie - barely functional™️
barely functional™️

blogging from the depths of autistic burnout • he/him • adult

300 posts

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