Your friends and family with chronic pain aren't doing well.
Yes, even the ones that say they are.
Yes, especially the ones that are complaining and lashing out already.
Chances are high that however bad they will admit things are it's actually worse. By a lot.
We're conditioned to be "okay". If we're breaking down at non scheduled times we aren't coping well. I promise.
Your sibling/partner/bestie/parent who is breaking down without preamble on a Tuesday is suffering. Be kind. We're sorry.
I think that it's really important for people to realize that being disabled is traumatic. genuinely. your body and brain feel like they are breaking down and wrong. you are in constant heavy stress from stuff like chronic pain. most disabled people i know have a somewhat regular emotional break down from the trauma of it all. and we are expected to just smile through it by society, to not be in the way, to not be an issue.
Sometimes it feels like i am already dead. Not part of anyones life anymore. Locked up in my flat. Just a liability for my parents who dont even like me. Like a ghost who is damned to haunt this room, but still has pain and wifi.
doctors hate her! This woman is experiencing symptoms that might point to a health problem and wants doctors to do something about it
hi, i want to share stuff about my life with chronic migraine and other health struggles. i'm still in the process of getting diagnosed for the latter, but strongly suspect that it's mecfs. a few weeks ago my condition got worse and i feel very isolated so here i am.
One of the most dangerous things in the world is not being able to say no to people because you don’t want to upset them or dissapoint them. This will completely ruin your life in every way possible, at work, in your private life, your sex life and your friendships. It’s a way of removing your own consent in your own decisions and go against your wishes, it is always a crime against yourself. Let yourself have a say. Upsetting people is better than traumatizing yourself.
like yeah. you're not a bad person just because you're disabled. but also you're not a good person for being abled. you're not a good person for being abled. it doesn't make you better than disabled people. you're not a good person for being abled. internalise it. it's not a reward. you did nothing to deserve this - because health is not something that people "deserve" or don't. it's something they have or not, for any number of reasons
went to my general practitioner and suddenly got diagnosed with post covid and cfs. after he had not taken my symptoms seriously in the past. after years of medical gaslighting. i mean i still think its mecfs but thats probably as close as it gets. which is so much better than nothing. nevertheless i don't really seem to feel much about it even after i've recovered for over a week from this draining excursion. just endless exhaustion