I finally got the tattoo I've wanted for yearsđ so I always have an extra spoon for bad daysđĽ
Living with Chronic pain is so weird.
In every quiet moment thereâs pain.
If some asks me how I am I usually say âfineâ or âgoodâ or âa bit tiredâ
because those are easier to say than âIâm in a lot of painâ âIâm this close to passing outâ âif I move to quickly I will throw upâÂ
and sometimes when people say âHow are things going?âÂ
I shrug and say âthe usualâ
and they assume that means everythingâs fine because for them that is the usual
but for me the usual is pain.
yes, doctors suck, but also "the medical ethics and patient interaction training doctors receive reinforces ableism" and "the hyper competitive medical school application process roots out the poor, the disabled, and those who would diversify the field" and "anti-establishment sentiment gets applications rejected and promotions requests denied, weeding out the doctors on our side" and "the gruesome nature of the job and the complete lack of mental health support for medical practitioners breeds apathy towards patients" and "insurance companies often define treatment solely on a cost-analysis basis" and "doctors take on such overwhelming student loan debt they have no choice but to pursue high paying jobs at the expense of their morals" are all also true
none of this absolves doctors of the truly horrendous things they say and do to patients, but it's important to acknowledge that rather than every doctor being coincidentally a bad person, there is something specific about this field and career path that gives rise to such high prevalence of ableist attitudes
and I WILL elaborate happily
â¤ď¸â¤ď¸â¤ď¸
Someone once said to me, âI hope the pain eases soon.â It struck me as the purest blessing that had ever been offered over my head - I hope the pain eases soon. Itâs so gentle, so kind, so hopeful. So to everyone whoâs hurting: I see how hard youâre trying, and I hope your pain will ease soon.
'BUTCH MANIFESTO'
inspired by 'FEMME SHARK MANIFESTO' by Leah Lakshmi Piepzna-Samarasinha
(ID under cut)
Ko-Fi (Commissions Open!)
[ID: an original poem titled 'BUTCH MANIFESTO'. the stanzas are all on the left side of the page and lineated, except for the first line, and last stanza. Poem begins:
Listen up! Butches hold it down! We donât spend hundreds of pounds on designer clothes and black and white tuxes â we shop off the charity shop rack, hand-me-downs from our bois, our men, our women. Butch is not a glamour word - Butch is not for the white collars in their 9-5 and their office parties, Butch is not for the woman in a police uniform with short cropped hair, Butch is not for the masc who looks down on our femmes, Butch is not for the dumbass white people who call themselves stud, like our people havenât taken enough from black lesbians, Butch is not for the politician or the soldier, itâs for those of us who get shit done and donât throw anyone under the bus; who stand between our loved ones and the white-knuckled fist; itâs for the people who take a breath of relief when they get home and get to lay their head on the shoulder of their baby and say, itâs hard, and I need you right now; itâs for those of us with hard-soled feet, worn by hours of standing, just so people can buy some useless shit on a Sunday. Butch is for the primary school teachers, the neighbour keeping your package safe, the hairstylist, the barber, the youth worker, the locked up, the sectioned, the evicted, the boy on the dole. Butches hold each other up, Butches stand up for communities, no matter how different we might be.
Butches stand up for Butches, because only we know the shit we face, we donât argue over what butch looks like for someone - their struggle doesnât counteract ours. Weâre brothers, sisters, siblings, lovers, mentors, we donât fight over femmes or fight each other. We help up our siblings who canât hold themselves up and shouldnât have to.
Butch is recognising our hurt, our pain, and making sure nobody has to go through that, in the very least not alone. Butch is not reproducing that hurt, butch isnât the transfem exclusion, the toxicity, itâs driving our girls and boys to the abortion clinic, itâs holding your femmeâs hair back over the toilet bowl, itâs telling your darlinâ to take a deep breath, before you poke the needle into her thigh, itâs holding back on punching the catcaller because you know itâll put your lover in more danger, itâs fishing in your closet for an old, dusty dress for your questioning girl, itâs never calling the cops, itâs carrying the Narcan, itâs gathering the funds for bail, itâs tipping the waiter, itâs kissing the bruised chin of a fellow butch whoâs built like a brick shithouse.
Butch is not all muscle, able-bodied, white Butch is not all skinny and androgynous Butch is care Butch is NURTURE. Butch is a cane and an unsteady step Butch is putting down the ramp Butch is wheeling up it Butch is addict Butch is straight-edge Butch is diaspora Butch is desi Butch is antiracist Butch is socialist Butch is punk Butch is black Butch is brown Butch is fat Butch is fat-loving Butch is mental illness Butch is antipsych Butch is autism Butch is trans Butch is anger Butch is tears Butch is grief Butch is the old bull Butch is the closeted kid in a dress Butch is the baby dyke wearing a rainbow flag cape Butch is smile lines Butch is crinkled eyes Butch is crying in your friendâs beat-up car Butch is foetal position Butch is pink Butch is motherhood Butch is fatherhood Butch is cat-dad Butch is fucking Butch is getting fucked Butch is stone Butch is bashful Butch is humble Butch is cocky Butch is proud Butch is single Butch is uneducated Butch is poet Butch is poetry Butch is council estate Butch is gentleness Butch is bones and spit and the soft curve of our lower backs the clenched jaw under a double chin the hard-eyes that any femme can see right through the estradiol the testosterone the carabiner clink the thick hands the cellulite the bloody pads the tampon string the mood swings the sagging tits the top surgery scars the swinging cock the hairy pussy the protruding t-dick the leather harness.
Butch is eternity Butch is sewn into the fabric of atoms Butch is love and solidarity Butch is never leaving anyone behind and never selling anyone out.
End poem. In the bottom right corner, the poet is signed as 'Ren H.' End ID].
The pain is more incredibly annoying than unbearable
In case anyone needs to hear this, the average person does not wake up every day in pain. The average person does not feel like they have the flu every day of their life, and if you, like me, feel sick 24/7 you in fact have a chronic illness. If your doctor is dismissive of your suffering, keep finding doctors and pushing for tests until you get something. It's exhausting and expensive but you deserve whatever comfort is possible for you and your illness
It's jarring to realize your baseline is most people's "sick" but that just makes it all the more important for you to rest and be gentle with your body. You aren't being lazy, you aren't faking your pain. Your disability is real, and you deserve to take care of yourself and make things easier for yourself regardless if you feel like you've "earned" it or if you think it "isn't that bad."
If you are struggling, I see you and I care you so much
ICELAND ICELAND ICELAND ICELAND
Honesty, some of these genuinely changed my life once I started to really listen and incorporated them into it
collection of useful things tumblr has taught me:
even if you can't fall asleep, laying down with your eyes closed will still rest your body
you don't have to brush your teeth standing up
you don't have to do any chore standing up, from dishes to showering
you don't have to shower with the lights on
if you can't brush your teeth, flossing and a tongue scraper gets rid of plaque and bad breath
if you can't do that, mouthwash kills a lot of bacteria
eating "unhealthy" food is better than eating no food
you can make the same meal everyday for however long you still want it
some pills come in syrups or chewables if you can't swallow them
kids nutritional shakes can be a quick way to get fuel if you can't eat/don't have time
if walking hurts/exhausts you on a regular basis, canes and rollers are for you, no matter how young you are
we have free willâif doing something "out of the ordinary" makes life easier for you, do it
24, they/them, nonbinary lesbian, disabled. Studying medicine, working on my internalised ableism, prioritising finding out what I like to do. I write, ish, or try to at least and that's something
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