girlish-in-pain

Latest Posts by girlish-in-pain

disabled people should be allowed privacy. visible disability isn't an invitation to demand personal information from someone. and disclosing disability isn't an invitation to lay out each facet of that disability in excruciating detail. someone having a medical episode deserves privacy even if that episode happens in public. someone who is disabled and struggling or taking a break deserves to refuse people offering help without having to explain why. a disabled person who mentions some things about their disability but not every little thing is under no obligation to explain anything more than they already have. disabled people don't just deserve basic rights. they deserve dignity and grace and respect. and they deserve privacy

reblog if you think sign language should be taught as a language in schools.

"Are you good in bed?" No, I can't sleep.

TW sleep deprivation, derealisation, depersonalisation, hallucinations, suicidal thoughts

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Can we talk about the effects of spending all of your formative years dealing with chronic pain? About what comes with it besides "just" the pain?

I used to routinely go days without sleeping. And I don't mean the way some people say they "didn't sleep at all last night" when actually they did sleep 2 hours. I mean no sleep at all for 3-4 ish days, I'm not sure bc my memories from that time are fuzzy (wonder why). The pain kept me up night after night. And it wasn't until the overwhelming urge to sleep finally won over the pain that I would be able to sleep.

Do you know what happens when you go without sleep for too long?

At first, you're just more tired than usual, it gets harder to concentrate, you get snappy easier. Then it'll feel like everything is too loud or slightly shushed like you're in a bubble, it's hard to focus your eyes properly, the ground and the walls get squiggly. Obviously, the pain you already have gets exponentially worse but also different, heavier.

If you are awake still, you'll start to have micro sleeps. That's when your brain shuts down briefly for a micro second while you're awake bc it fucking needs to sleep. Time feels weird, stretching and shrinking in on itself. It won't feel real. You won't feel real. You'll forget basic shit like your own name.

It varies from person to person how long you have to go without sleep before the visual and auditory hallucinations start. But if you're awake for long enough, they will start. Whispers of your name when you're alone, songs playing when there's no music on, shadow people in your peripheral vision.

Maybe you'll think about killing yourself just to make it stop. Maybe you don't even think killing yourself would mean death, but instead you belive you'll wake up and everything will be back to normal. Your ability to reason, to think logically will twist.

Eventually, the urge to sleep will be greater than the pain and finally you will get to rest.

I understand all too well why sleep deprivation is used as torture.

In what universe does experiencing this countless of times when you're a literal teenager not affect you when you're an adult. Even when it doesn't happen anymore bc of semi proper pain management and meds to sleep. It haunts me. Still.

For my American mutuals🫶🏼

Dudes healthcare is so fake. My ADHD meds are $940 without insurance. But they gave me a website of "coupons" which straight up looks like a scam website, and I got it today for $60! Just a coupon from a random website and it was $900 cheaper. America, I am confusion!! America explain!!

non binary, gnc and trans butch lesbians are a blessing. non binary, gnc, and trans femme lesbians are a blessing. the lesbian community is way too full of people who are ready and welcome to exclude every trans person they can. it's been a mad dash for lesbians to gladly regurgitate rad feminism in order to create a "safe" lesbian community. this creates a hostile unsafe environment that benefits no one

where are the trans, genderqueer, intersex and non conforming lesbians supposed to go? why out of any queer identity should the lesbian community be so hostile and unaccepting of genderqueer and trans people? there are trans gay people, trans bisexual people, trans pansexual people, trans asexual people, trans polyamorous people, and so on. why should lesbians specifically be "protected from" trans people? nonbinary people? intersex people?

we cannot allow this to continue. diversity in lesbian, dyke and sapphic spaces is what makes them beautiful and powerful. we must celebrate all lesbians and dykes no matter how much their identities differ from our own. there's no good reason to throw transfem & transmasc butches out for somehow being a "threat". there's no reason to throw out non binary lesbians for not being women. there's no reason to deny trans men a place in the community when we've been here all along

there's no reason to allow people to gladly repeat rad feminist rhetoric for the sake of keeping the lesbian community "safe" (read: pure). this behavior has very dangerous roots. the lesbian community doesn't need to be "protected" (read: cleansed). lesbians are NOT in any danger being around other types of queer people. lesbians do not need to be protected from the world. lesbians are not in danger the second they're around a different type of queer person (or even cishet people).

encourage and embrace lesbian diversity. our community is built off the backs of genderqueer, genderfluid, gnc, transfeminine, transmasculine, non binary, intersex, two-spirit, transsexual, and ftm butch lesbians. all the lesbians that came before us were just as diverse as the ones we find now. we are stronger the more diverse we are. more lesbians is always a good thing. celebrate the fact that there are even more dykes than you initially realized. more dykes is always a good thing

Disabled trans guy escaping abuse

Hi friends! I'll try to keep this short (long version under the cut), but I need help. I may be getting into a housing program soon, made the mistake of telling my parents, and today they've been manipulating me trying to get me to stay. There's a long history of abuse, neglect, transphobia, and ableism - mainly on my dad's part.

I have $24 in my bank account. I can't drive, can't work, and am severely disabled. My mom wants me to make her and my father into healthcare proxies. When I was younger, my dad threatened me with institutionalization and conservatorship. I'm scared for my safety.

I just need some help. I'll apply for assistance when I qualify. I'm gonna need an emotional support animal. I don't know if I'll get the apt yet but see the cut for an explanation.

Venmo: julesfairy

I don't know what goal to set so I'll update this post when I can. Reblogs help a lot, if anything for knowing I'm not alone.

Long version: I'm 23, mentally ill/disabled, have no income, $24 in my bank account, live with my abusive father, and my parents refuse to call me my name/pronouns/etc. I also just left a cult-like group and found out I have a shit ton of nerve damage all over my body. So I'm having a time!

Anyway. I mistakenly told them that I've applied for a housing program and may be getting into a 1 bedroom apartment. They do not want me to leave, and today lovebombed, gaslit, and otherwise manipulated me into staying.

WHY I'M MAKING THIS POST NOW:

They know I'm meeting with the case worker tomorrow.

I don't know how they're going to react once they realize I'm going through with this. I'm worried about my father's reaction specifically - In the past, he's threatened to kick me out, kill himself, throw me in the psych ward, or put me under conservatorship. My mom just told me she wants me to make her and my father my healthcare proxy.

If I get this apartment, I'm going to apply for SNAP and Temporary Assistance as soon as I qualify, and rely on food banks. But if anyone can spare some cash, that'd help a lot too. I just need some help, I'm desperate. I don't know if I can take another failed escape.

“I don’t want to be a burden” you’re more like a relief, a gift, a blessing actually

'BUTCH MANIFESTO'

inspired by 'FEMME SHARK MANIFESTO' by Leah Lakshmi Piepzna-Samarasinha

(ID under cut)

Ko-Fi (Commissions Open!)

[ID: an original poem titled 'BUTCH MANIFESTO'. the stanzas are all on the left side of the page and lineated, except for the first line, and last stanza. Poem begins:

Listen up! Butches hold it down! We don’t spend hundreds of pounds on designer clothes and black and white tuxes – we shop off the charity shop rack, hand-me-downs from our bois, our men, our women. Butch is not a glamour word - Butch is not for the white collars in their 9-5 and their office parties, Butch is not for the woman in a police uniform with short cropped hair, Butch is not for the masc who looks down on our femmes, Butch is not for the dumbass white people who call themselves stud, like our people haven’t taken enough from black lesbians, Butch is not for the politician or the soldier, it’s for those of us who get shit done and don’t throw anyone under the bus; who stand between our loved ones and the white-knuckled fist; it’s for the people who take a breath of relief when they get home and get to lay their head on the shoulder of their baby and say, it’s hard, and I need you right now; it’s for those of us with hard-soled feet, worn by hours of standing, just so people can buy some useless shit on a Sunday. Butch is for the primary school teachers, the neighbour keeping your package safe, the hairstylist, the barber, the youth worker, the locked up, the sectioned, the evicted, the boy on the dole. Butches hold each other up, Butches stand up for communities, no matter how different we might be.

Butches stand up for Butches, because only we know the shit we face, we don’t argue over what butch looks like for someone - their struggle doesn’t counteract ours. We’re brothers, sisters, siblings, lovers, mentors, we don’t fight over femmes or fight each other. We help up our siblings who can’t hold themselves up and shouldn’t have to.

Butch is recognising our hurt, our pain, and making sure nobody has to go through that, in the very least not alone. Butch is not reproducing that hurt, butch isn’t the transfem exclusion, the toxicity, it’s driving our girls and boys to the abortion clinic, it’s holding your femme’s hair back over the toilet bowl, it’s telling your darlin’ to take a deep breath, before you poke the needle into her thigh, it’s holding back on punching the catcaller because you know it’ll put your lover in more danger, it’s fishing in your closet for an old, dusty dress for your questioning girl, it’s never calling the cops, it’s carrying the Narcan, it’s gathering the funds for bail, it’s tipping the waiter, it’s kissing the bruised chin of a fellow butch who’s built like a brick shithouse.

Butch is not all muscle, able-bodied, white Butch is not all skinny and androgynous Butch is care Butch is NURTURE. Butch is a cane and an unsteady step Butch is putting down the ramp Butch is wheeling up it Butch is addict Butch is straight-edge Butch is diaspora Butch is desi Butch is antiracist Butch is socialist Butch is punk Butch is black Butch is brown Butch is fat Butch is fat-loving Butch is mental illness Butch is antipsych Butch is autism Butch is trans Butch is anger Butch is tears Butch is grief Butch is the old bull Butch is the closeted kid in a dress Butch is the baby dyke wearing a rainbow flag cape Butch is smile lines Butch is crinkled eyes Butch is crying in your friend’s beat-up car Butch is foetal position Butch is pink Butch is motherhood Butch is fatherhood Butch is cat-dad Butch is fucking Butch is getting fucked Butch is stone Butch is bashful Butch is humble Butch is cocky Butch is proud Butch is single Butch is uneducated Butch is poet Butch is poetry Butch is council estate Butch is gentleness Butch is bones and spit and the soft curve of our lower backs the clenched jaw under a double chin the hard-eyes that any femme can see right through the estradiol the testosterone the carabiner clink the thick hands the cellulite the bloody pads the tampon string the mood swings the sagging tits the top surgery scars the swinging cock the hairy pussy the protruding t-dick the leather harness.

Butch is eternity Butch is sewn into the fabric of atoms Butch is love and solidarity Butch is never leaving anyone behind and never selling anyone out.

End poem. In the bottom right corner, the poet is signed as 'Ren H.' End ID].

sweet femmes. femmes like sugar that melt under your touch. femmes with flesh to grope and squish and kiss and bite. femmes that wrap themselves in lace and ribbons like pretty presents. femmes that wear pink lipstick and leave kiss marks on your face. femmes that are soft like bunnies and cuddle all the time. femmes that smell like vanilla and marshmallows and sweet dreams. femmes who need hands on them at all times to feel good. femmes who whisper in your ear during functions and drag you home. femmes who wear lacy bras and tiny skirts and like parading in front of you. femmes who like being carried around, hands wrapped around your biceps. cute femmes. sweet femmes. just femmes.

schizophrenia is not just experiencing positive symptoms (hallucinations and delusions). a lot of schizophrenics are neurodivergent in other ways. this focus on the positive symptoms is a villainious way to gatekeep us from neurodivergent spaces because our positive symptoms are typically portrayed as "scary".

our negative symptoms (flat effect, being withdrawn, avolition and anhedonia) are skewed to portray us as "evil" because we're not "emotive" or "caring" enough. schizospec disorders make everyday activities so hard. basic hygiene isn't a habit, we have little to no motivation to do basic things, the lack of happiness and pleasure can turn into severe depression for some of us and that's why depressive and bipolar schizoaffectives exist. people don't grasp the fact that schizophrenia is a disability.

i've personally experienced a lot of cruelty from other neurodivergent people because there is little to no education on schizospec disorders even within neurodivergent spaces. we're seen as inherently morally reprehensible for our disorder and people are so casually ableist to us. i'm not able to speak up for myself in these spaces because i feel like there is no where else i can go. neurotypicals are cruel to schizophrenics but so are other neurodivergent people. people need to have more care and love for schizophrenics.

yes that includes schizophrenics with little to no empathy, schizophrenics of color, trans schizophrenics, gay schizophrenics, schizophrenic systems, autistic schizophrenics, schizophrenics with adhd, fat schizophrenics, poor schizophrenics, homeless schizophrenics, schizophrenic sex workers, schizophrenics who've experienced abuse, schizophrenics with ocd, schizophrenics with ptsd/cptsd, schizophrenic children and teens, elderly schizophrenics, schizophrenics who are also physically disabled, all schizophrenics.

all schizophrenics deserve love.

i NEED you to remember this: you are allowed to be angry at your doctors. you are allowed to be furious. you are allowed to be mad at your nurses and technicians and neurologists and psychiatrists and medical assistants. they are not god. they are human beings and they work in a system that wears them raw, and that is unfair, but it isn't an excuse to treat you badly. i'm not necessarily saying you should throw a brick through the window of their car, but you can, should, must be angry with them for ignoring you, demeaning you, dehumanizing you, dismissing you, acting like you're lying, talking only about your weight, failing to acknowledge you past your symptoms, etc etc etc. you are an equal to your doctor. you are a human being and so are they. do not treat them as beyond reproach. you are allowed to be angry at your doctors.

hey if you're trans in the us i love you. hey if you're queer in the us i love you. hey if you're a person of color in the us i love you. hey if you're a woman in the us i love you. hey if you're disabled in the us i love you. i love you i love you i love you

Reblogging so I can find it again!!

Dealing With Executive Dysfunction - A Masterpost

The “getting it done in an unconventional way” method.

The “it’s not cheating to do it the easy way” method.

The “fuck what you’re supposed to do” method.

The “get stuff done while you wait” method.

The “you don’t have to do everything at once” method.

The “it doesn’t have to be permanent to be helpful” method.

The “break the task into smaller steps” method.

The “treat yourself like a pet” method.

The “it doesn’t have to be all or nothing” method.

The “put on a persona” method.

The “act like you’re filming a tutorial” method.

The “you don’t have to do it perfectly” method.

The “wait for a trigger” method.

The “do it for your future self” method.

The “might as well” method.

The “when self discipline doesn’t cut it” method.

The “taking care of yourself to take care of your pet” method.

The “make it easy” method.

The “junebugging” method.

The “just show up” method.

The “accept when you need help” method.

The “make it into a game” method.

The “everything worth doing is worth doing poorly” method.

The “trick yourself” method.

The “break it into even smaller steps” method.

The “let go of should” method.

The “your body is an animal you have to take care of” method.

The “fork theory” method.

The “effectivity over aesthetics” method.

It's crazy how you have to choose to be different and then once you do it's not even over - you have to choose it again and again forever and yes one day it will feel so natural you don't even notice it anymore but there is no short cut to there, just willpower and repetition

Wait what's a buildings fire evacuation plan if you aren't supposed to use the elevator to get down

time of year i remind every cane user to get an ice pick so you dont fall and die

sometimes i think ive made peace with being permanently disabled & feel like even tho it sucks i can handle it. and sometimes i have to scream and scream and scream and cry myself to sleep because this is forever & i dont know how i’ll manage that

shaking myself (very gently) . being in pain takes a lot of energy!!!!!! being in pain is exhausting!!!!!!! you are not lazy or weak because you need to spend so much time resting, this is your body coping with how much pain you’re in literally 24/7!!!!!!!!!

i know this won't be available everywhere, but especially if you live in a larger city where a lot of folks are affected by opioid use/addiction, it's a really good idea to ask local pharmacies, and even food banks if they are giving out free narcan (naloxone). this can also be found at certain behavioral health offices as well, my case manager is able to get them for me for free. narcan is a life saving medication that can temporarily halt an opioid (oxycodone, hydrocodone, heroin, fentanyl, codeine, morphine, etc.) overdose while you wait for emergency medical services to arrive.

opioid overdose is distress of the respiratory system, meaning that the person overdosing likely is struggling to, or can't breathe at all. it's very important to watch to see if the person is dealing with labored or shallow breathing.

here the official use guide:

[Image ID start: Two screenshots from the FDA's Narcan (Naloxone HCl) Quick Start Guide infographic. It reads:

"Narcan (Naloxone HCl) Nasal spray quick start guide. Opioid Overdose Response Instructions.

Use NARCAN Nasal Spray (naloxone hydrochloride) for known or suspected opioid overdose in adults and children.

Important: For use in the nose only.

Do not remove or test the NARCAN Nasal Spray until ready to use.

1.) Identify Opioid Overdose and Check for Response Ask the person if they are okay and shout name.

Shake shoulders firmly and rub the middle of their chest.

Check for signs of Opioid Overdose:

Will not wake up or respond to your voice or touch

Breathing is very slow, irregular, or has stopped

Center part of their eye is very small, sometimes called "pinpoint pupils".

Lay the person on their back to receive a dose of NARCAN nasal spray.

2.) Give NARCAN nasal spray

Remove NARCAN nasal spray from the box. Peel back the tab with the circle to open the NARCAN nasal spray.

Hold the NARCAN nasal spray with your thumb at the bottom of the plunger and your first and middle fingers on either side of the nozzle.

Gently insert the tip of the nozzle into either nostril.

Tilt the person's head back and provide support under the neck with your hand. Gently insert the tip of the nozzel into one nostril, until your fingers on either side of the nozzle are against the bottom of the person's nose.

Press the plunger firmly to give the dose of NARCAN nasal spray.

Remove the NARCAN Nasal Spray from the nostril after giving the dose.

3.) Call for emergency medical help, Evaluate, and Support

Get emergency medical help right away.

Move the person on their side (recovery position) after giving NARCAN Nasal Spray

Watch the person closely.

If the person does not respond by waking up, to voice or touch, or breathing normally another dose may be given. NARCAN Nasal Spray may be dosed every 2 - 3 minutes, if available.

Repeat Step 2 using a new NARCAN Nasal Spray to give another dose in the other nostril. If additional NARCAN Nasal Sprays are available, repeat step 2 every 2 to 3 minutes until he person responds or emergency medical help is received.

For more information about NARCAN Nasal Spray go to www.narcannasalspray.com, or call 1-844-4NARCAN (1-844-462-7226)."

End image ID.]

❤️❤️

i saw this helpful print out at my local library earlier, i thought this could be of help to someone. even if you don't inject, this advice could save a life. I'm here for all addicts and users, we care about you and love you. everyone deserves to be informed about their health regardless of what substances they use

reblog if you want anonymous opinions of you

hey if you're not a mobility aid user, and you want a simple way to make public spaces more accessible to those of us who are, i have a tip for you:

push in your chairs when you get up from tables.

when people don't push in their chairs, people with bulky aids like wheelchairs and rollators can't get through. also a lot of people who use canes have wider gaits than able bodied people, and having a chair in the middle of their walking path is a real obstruction. while some of us are able to push chairs out of our way, a lot of us are not, and wind up boxed in/out because somebody didn't push in their chair.

so if you want to do something simple that can make a big difference in terms of like. navigating an outdoor food court or a cafe or what have you. push in your chairs.

Went on a date and they were like "I'm sorry you're disabled". My first thought was to get frustrated or feel patronised, but, that doesn't get us anywhere. So i thought about it and tempered my reaction, and what I came to was this: they're sad, but I'm not!

I understand the impulse to feel bad about my life situation. I get it. It sucks. Like objectively. It bums me out too sometimes.

But im not sorry I'm disabled, I'm happy I'm alive! Im happy with disability, not in spite of it. It's a part of my life. I can no more be miserable about my disability than I can be about getting a bad haircut. It's a part of me and I can either live with it, or I can suffer. If those are my options i choose live with it. Its really that simple and drastic.

Disability means pain, yes, but pain does not mean suffering. I am in pain every day of my life, but I do not suffer. How does that work? I live my life. I live! Isn't that wonderful? I am alive and I have a good, privileged life! I have friends. I have community. I have family. I have passions. So long as i can find the good, I am not focused on my pain, and if i am not focused on my pain it cannot consume me, and if it cannot consume me then I cannot suffer.

My disability is just another thing that is part of me. I don't look at what I can't do. I look at what I want to do, and I find a way to get there.

My life looks different from an able bodied person's life. It just does, and it always will. It's going to be different. I can either embrace it, or I can be miserable. I can either live with it or i can suffer.

I choose to embrace it. I choose to live with it.

It wasn't easy to do so, don't get me wrong. I was miserable for such a long time. I wanted to die; I wanted to die so badly. I thought there was no worth in my life and that I'd never be worth anything. But that's not true.

My life is beautiful. It's not exactly what i wanted for myself, and yeah, if i could wave a magic wand and be in a perfect body... I wouldnt even hesitate to take that option. But that's not gonna happen. So i look at what I have, and I'm so grateful to have it in the first place.

I could be so much worse off. Im fortunate. Im lucky. Im an immigrant success story. I live in a better land. Im happy here. Im well integrated. This place is my home. My country looks after me. I dont want for food. I dont want for shelter. Thats amazing. So if I can look at the little things that im grateful for and build from there...

I dont have all the abilities i want. I will never have everything I want, no matter how simple it may seem. So instead, I will be grateful for what I do have.

Im not sorry i'm im a wheelchair! Im happy! How many people in the world dont have a wheelchair who need one? Im fortunate to have one. My wheelchair is freedom. My world opened up when i got my wheelchair the same way it did when i got my licence.

My life may be sad to you, but its not sad to me. And if its not sad to me, then its not sad! You dont have to feel sad for someones disability. I think its natural to want them to be able to do the same things you can, or to achieve the same things you can. I think you should foster that desire into finding ways to help bridge the gap between what someone can do and what they cant. Access is how you bridge that gap.

Feeling sad for someone with disability is a natural empathetic response. I think its wrong to shame people for it, but it is worth it to redirect their thinking. They are sad for me, but its because they can only see limits. But disability isnt about seeing limits, its about finding out how to move past them.

My life might look sad to you, but you dont know what i can do. You dont know how far ive come. You dont know what my life looks like beyond my disability because you've never been shown that. Its not a story thats told. And i dont mind showing you that theres more to my story than what i cant do.

So, i dont mind if someone tells me theyre sorry im in a wheelchair. Im not. Lets get past that impulse of empathy, and have a real conversation. Because you'll see that i'm not sad. I have a rich life and im happy. Once you can see all that joy, the wheelchair becomes secondary. Of course i'm happy, my life is good.

The wheelchair. The disability. Its set dressing. Its the stage my life takes place on. We cant ignore it. Its there. But it is not so big that it robs goodness from my world.

Am I happy about having my disability? No. But I'm not sad about it. Not anymore.

And that is going to be true about any other disabled person you meet. We dont need pity, because our lives dont warrant it. We dont need you to feel bad for us, because there is no need to feel bad. Its just life. Thats how it goes sometimes.

Once a disabled person's hit the acceptance stage, there's really no need to offer them your sympathies anymore. Be happy with them in their life, however that looks.

I feel like this a lot lately, especially bc uni started again and I'm using a wheelchair now. The other day in anatomy class I was constantly apologising and being just my general awkward self. A friend of mine and fellow med student messaged me later to ask if I felt like I was in the way with my wheelchair and to remind me that I belong there just as much as anyone else🥺 so thankful for the few friends I have found in medschool who are genuinely kind and accepting when it comes to my disabilities.

I'm in medschool and I'm the only visibly disabled student in my semester. I'm not very social outside of classes so I can't be certain, but I'm fairly sure I'm the only visibly physically disabled med student in multiple years. I've heard about one other who is atleast 4 years ahead of me. So, in doing the math I can conclude that I'm 1 out of 2 visibly physically disabled med students out of roughly 3500 med students at my university.....

if you feel like you’re ‘getting in the way’ as a mobility aid user, particularly with larger aids like wheelchairs, rollators/walkers, gait trainers and service dogs, That Is A Fault Of The Space (and potentially the people), not of you. You deserve all the space you take up and more.

I don't have a scooter attachment or any motor attachment for my wheelchair, but I sometimes drive fast bc I am able to and I love it. I'm genuinely considering getting a "ringing bell" (idk I forgot the English word for it) and/or a "honking thing". Bc people walk sooo slow and I'm zooming ahead and most people are completely unaware of their surroundings

For the Danes or Danish speaking individuals, the words I'm thinking of are "ringeklokke og båthorn" :D

Just made an account on Medium so I could read this. Made it about 1/3 through and I'm absolutely hooked and excited to finish it!! But first, time for a nap.

For the longest time, I have had trouble understanding FND - specifically whether it's just a shitty diagnosis made up by the medical system to gaslight people or if it's a genuine medical condition. This essay is rly helpful and has already broadened my understanding. It's incredibly well written, particularly bc of the extremely thorough research it's a result of

Medium

Cadenza for Fractured Consciousness

A Personal History of the World’s Most Misunderstood Illness

I am one of the most medically examined people in North America. For over a decade, no one could explain why I lost my ability to walk, speak, and use my hands. Why the lightning-like headaches? Why the ringing in my ears? Test after test came back negative. Doctors thought I might have a genetic abnormality no one's ever seen before, or a condition so rare that it had previously escaped medical classification. Then I got accepted to the top undiagnosed disease research program in the world, and they told me the only diagnosis I was unprepared to hear: it was Functional Neurological Disorder (FND), a much-misunderstood condition which was once known as Conversion Disorder, and before that, as Hysteria. And that was only the beginning of things getting weird. The essay above is the product of three years of research into the history, neuroscience, and politics of FND. It touches on the many medical failures that define the history of the disorder, the pervasive sexism and lazy mind-body dualism that prevented scholars from seeing it clearly, and why - finally - a better understanding may be at hand, with revolutionary implications for how we understand human consciousness and the experience of having a body.

FND fucked my life up. This is my reply. Thanks for reading.

Apparently I'm winning in life

must-have accessories

bandaids

visible nipples thru shirt

leg bruises

armpit hair

undereye dark circles

this... this is actually really helpful

notes for my impostor syndrome:

• no, it's not painful to walk for abled-bodied people

• no, healthy people don't usually use every chance they get to lean against walls or sit down

• no, ableds don't dream about shower stool

• no, ableds don't celebrate days when they're not in pain. because usually they're not in pain

• no, ableds don't want to stop walking mid-way, lay down on the ground, curl up and cry and whine from pain

• no, ableds aren't exhausted by their own bodies 24/7