Disability - Blog Posts

So far just for my LUQ pain I've had

2 urgent visits

1 online visit

2 ER visits

1 primary visit

2 urine tests

2 Blood Draws

1 IV

2 X-Rays

1 CT scan

2 wrong diagnoses

1 antibiotic that didn't help

And they still don't know what it is. This has been going on for almost a month and it's exhausting. I'm in pain

SPREAD THE WORD! YOU CAN'T PUT A PRICE ON LIFE! REBLOG!

Hello,

My name is CJ and I’m a trans man. I grew up in a small town in North Carolina and I still live there today. My dad is a Chilean immigrant and he came to this country when he was only 8, spending most of his life in the beautiful land of Puerto Rico. My mom grew up in Florida (where I was born) and has mainly Irish ancestry. I have two older brothers, both in college. One attends Juilliard, the other UNCC. Most of my friends are a part of the LGBTQ+ community. I also have friends who are children of immigrants, just like me.

When I was born, it was induced by medication and I was born 8 weeks early due to a disease my mom had contracted while pregnant with me. We both survived thanks to the doctors and nurses who helped my mom deliver me safely. Due to my premature birth, I have struggled my whole life with chronic illness and disability.

I am telling you all of this because I am scared. Tomorrow is November 5th, Election Day, and depending on who wins I may be in serious danger.

Please, for the sake of me, my friends, my family, the trans community, the chronically ill, the disabled community, immigrants, immigrant families, women who need access to healthcare, and EVERY. SINGLE. American citizen…

💙VOTE BLUE💙

I don’t want my rights to be taken from me.

It drives me fucking bananas as someone with a learning disability when someone says “just study harder.” Like I’m not already doing everything I possibly can to stay afloat. I’m already on the verge of mental collapse, if I do any more I’ll fall apart. I’m not capable of studying any harder, Karen!

coming here to vent bc i feel really dumb and anxious. ive been working towards going to online university for next month but i just realized i did the student finance wrong. ive been in pain and lowkey sleep walking thru life and im autistic too and like i had no help so im not 100% surprised i messed up and i wont be super shocked if it falls thru but idk i dont want it to. idk ill try to take whatever happens as a sign. if i get in i can try to get my life on track. if i dont then maybe i need to wait til i get this pain figured out first. im just really scared ive blown up my life and im too late and ill just be stuck sitting here doing nothing waiting for a solution for the pain to come from my doctors to get on waiting lists. i legit feel like a ghost yk something bound to a house where they cant escape. but im also scared of dropping out again and that im not ready so im just in this state of being between a rock and a hard place and everything sucks. idfk what im going to do. happy 2025 ig idk

Normal art

hi!  I am desperately in need for help. I need my insulin to bring my blood sugar back down. It’s $300 That’s all I need. I’m not asking for a windfall, just a little help, please.

Be blessed 💓🙏🙏💓

            DONATE AND SHARE.

Sorry, I can't donate but I can totally share this around! I hope you can get the donations you need soon :)

(tw : brief mention of faking mental health issues)

I think it's valid.

There are many people who can't access an official diagnosis of their mental disabilities for various reasons such as, poverty, being part of another marginalised group (women/poc etc), being a minor with unsupportive or unwilling parents and the list goes on. Some people simply don't want to and I get why. An official diagnosis can limit you in many ways such as travel, healthcare, education etc. An official diagnosis can also make you more prone to ableism from the government, schools and workplaces.

Either way, self diagnosis is extremely important whether you choose to pursue an official diagnosis or not.

(Side note : I don't think it matters in the grand scheme of things if someone fakes a mental disorder for attention. Of course, it is disrespectful and you shouldn't do it but people with mental disorders barely get support anyway so what would they exactly be taking away from us? Stim toys? The only thing I can think of is therapists but there aren't many that specialise in disability so 🤷 I think the only time it could be considered a bad thing is if they're spread harmful misinformation like if you're gonna fake something, at least make it believable. To be honest, I feel bad for those who fake a disorder / disability because they might be so attention starved that they would do that.)

Spoon theory is great, I'm glad it was created <3333

Please reblog if you can so I can get a larger sample size

Feel free to put any clarifications in the tags (I’d be very grateful) <3

Rant time

cw : ableism, school system

The school system here in the UK is so fucking ableist istg. So basically me and my younger sister have health issues which cause us to be off school for appointments and bad sick days. Our attendances are lower than average because of this. My high school has a policy of having 95% attendance or over, ours is about 88%. The school is hounding our mother with constant letters and meetings despite our absences being authorised. I hate being an inconvenience to my mother and feel bad about it but I know it's the fault of the system.

I'm just really annoyed that I'm treated as such a burden just because I'm disabled.

I'm still working up the courage to ask my mum if I can get tested because this is a genuine part of my day to day life, and my school psychologist said it might be a good idea. I live the way you wrote this btw!! It's awesome!!!

growing up autistic / growing up gaslit

I.

this is the first lesson you learn: you are always wrong.

there is no electric hum buzzing through the air. there is no stinging bite to the sweetness of the mango. there is no bitter metallic tang to the water.

there is no cruelty in their laughter, no ambiguity in the instructions, no reason to be upset. there is no bitter aftertaste to your sweet tea, nothing scratchy about your blanket.

the lamps glow steadily. they do not falter.

II.

this is the second lesson you learn: you are never right.

you are childish, gullible, overly prone to tears. you are pedantic, combative, deliberately obtuse. you are lazy, unreliable, never on time.

you’re always making up excuses, rudely interrupting, stepping on people’s shoes. you’re always trying to get attention, never thinking about anyone else, selfish through and through.

it’s you that’s the problem. the lamps are fine.

III.

this is the third lesson you learn: you must always give in.

mother knows best. father knows best. doctor knows best. teacher knows best. this is the proper path. do not go astray.

listen to your elders, respect your betters, accept what’s given to you as your due. bow to the wisdom of experience, the education of the professional, the clarity of an external point of view.

what do you know about lamps, anyway?

A loving reminder that if you are so disabled that you cannot work, and especially if you are getting some kind of government assistance because you cannot work, and especially if you feel guilty because other disabled people have to work: You are not lazy. You DO deserve to indulge in things that bring you joy.

You are a government employee and your Full Time Job is to keep yourself at a minimum baseline of Alive and Not Miserable.

Your job is to watch videos that entertain and engage you.

Your job is to play video games so you can keep some kind of joy in your life.

Your job is to rest as much as you physically can to conserve energy.

Your job is to cook for yourself and take joy in it if you find it joyful, even if that's the only thing you can manage in a day.

Your job is to make yourself as comfortable and stress-free as you can, even if that means bed-rotting.

It is what you get paid to do. Because being disabled IS a full time job. And it's hard work.

Be kind to yourself.

Oh my goodness! I had no idea that this was actually happening! Some people are truly terrible! I am a person of color and have felt racially discriminated multiple times

sorry but it’s actually so horrific how little of a sense of community people have, how little regard they extend towards the other humans around them. killing people for being loud on the subway or turning around in your driveway. loading your gun and waiting at the door because a child ran your doorbell unexpectedly. ring cameras, neighborhoodapp, community watch group Facebook pages. you’ve assigned yourself the role of the one true peacekeeper and casted everyone else around you as a threat to be controlled. there’s no connection or love or compassion. just a deep distrust and hatred.

and the people who face the most significant consequences from this are the ones who are already deemed as outsiders. people of color, especially Black people, disabled people, people with mental illnesses, homeless people.

Your teachers wants you to succeed? Bro my teacher just wants me to survive the semester without being admitted to hospital again 😭

Abled Person: Hey man, can you hold this wad of $2,000 and this one penny for me while I open my wallet?

Disabled Person: YOU COMPLETE AND UTTER FOOL!

The United States Government:

(Watch how many people don’t get this.)

anyone else ever wish they could lie down harder? Like, I'm already horizontal, but I need more horizontal. I need to be absorbed by the floor. I think that would fix me

just wanted to share the National Down Syndrome Society’s message for this year’s World Down Syndrome Day (21st March) 💛💙

I also would like to add Bill Shannon as a great source of reference poses for cool crutch positions. He is a wonderful dancer and disability activist and I love his work so much. Hope you enjoy this visual breakdown of some of the poses of Shannon Technique!

Crutches poses

On 12 March 1990, dozens of disabled people descended on the US Capitol and carried out a protest which became known as the Capitol Crawl. Participants were protesting against the stalling of a proposed law, the Americans with Disabilities Act (ADA), which would prohibit discrimination against disabled people. Around 1000 other protesters watched and cheered while dozens of members of ADAPT, a group campaigning for public transit access for disabled people, abandoned their wheelchairs and mobility aids and began crawling up the steps of the building housing Congress. It was a powerful illustration of the difficulties faced by many disabled people faced with a hostile environment which had been constructed without their needs in mind. Michael Winter, one of the participants later reflected: “Some people may have thought it was undignified for people in wheelchairs to crawl in that manner, but I felt that it was necessary to show the country what kinds of things people with disabilities have to face on a day-to-day basis. We had to be willing to fight for what we believed in.” In the wake of the protest, Congress passed the bill and it was signed into law in July 1990. https://www.facebook.com/workingclasshistory/photos/a.1819457841572691/2229212140597257/?type=3

We need shittable cities (actively maintained public restrooms).

Blog Update ﮩ٨ـﮩﮩ٨ـ♡

Salutations all! Just letting everyone know that I've gone through all my posts and updated everything with alt text to make it more accessible. ˚ʚ♡ɞ˚

Also I now have everything up on my AO3 and will be posting on there alongside this blog. So if you prefer to read on there, thats also an option! о( ˶^▾^˶ )о

Please let me know if there is any tweaks, things I can do, or keep in mind to make this blog easier for you to use. I have a family member and close friend with dyslexia, so I've been trying to use emphasis and colors in my posts to assist with that.

In case anyone is interested, here are some references for blog, website, and graphic designing in a disability friendly way~

It's the last weekend of data collection for my thesis survey on disability, so if you're 18 or older and identify as disabled or partially-disabled (even if you live outside the U.S.) I'd love to hear from you! The survey is about how social friction is perceived in interactions between disabled and able-bodied people, and takes about 15 minutes to complete. It's also completely anonymous.

As an incentive for participation, there's an optional raffle that you can participate in for the chance to win an Amazon gift card (yep, even if you live outside the U.S.).

"Let Me Get That For You": Analyzing Frictional Situations in a Disability Context (via Google Forms)

Big thanks to everyone who has already completed the survey, and if you fall into that group, you don't need to take it again.

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This research survey has received approval (IRB number 2025-037) from Delta State's Institutional Review Board.

Tumblr

@fishdavidson in Disabled Hardcore Life community

I'm running a survey for my graduate thesis at Delta State University about how social friction is perceived in interactions between disable

This is an archive link of a previous post I made on January 23, 2025, so I can grab the link for citation and inclusion in thesis appendices. If the link doesn't display the text or you aren't a member of the community in which it was posted, this is what it said:

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I'm running a survey for my graduate thesis at Delta State University about how social friction is perceived in interactions between disabled and able-bodied people. The survey probably takes about 15-20 minutes to complete, and I'm looking for respondents from individuals 18 or older who identify as disabled or partially-disabled. If you've already completed the survey, you don't need to do it again. As an incentive for participation, there's an optional raffle that you can participate in for the chance to win an Amazon gift card. Both the survey and the raffle are open to individuals outside the US!

"Let Me Get That For You": Analyzing Frictional Situations in a Disability Context (via Google Forms)

Thank you everyone who has participated in the survey so far, and special thanks to the people who helped identify places where the survey could be improved!

This research survey has received approval (IRB number 2025-037) from Delta State's Institutional Review Board.

every time anyone talks about liberation for the intellectually disabled in any real material way (i.e. creating plain-language educational resources accessible to adults reading on a first-grade level, detangling literacy from basic requirements to participate in society, destigmatizing inability to benefit from pedagogy, criticizing the construct of financial literacy as a necessary skill, etc etc etc), some chud comes along calling it "anti-intellectualism" and blabbing about how you're a morally inferior person if you only read middle-grade novels for fun, i'm so tired and we are never making it out

Fuck this one hits home.

I'm working on my graduate thesis at Delta State University (fear the Fighting Okra!) and I'm looking adults with disabilities to take part in an online survey. The survey will probably take 15-20 minutes to complete and it's about how social friction is perceived in interactions between disabled and able-bodied people. So if you're 18 or older and self-identify as disabled or partially-disabled, I would love to hear from you on the survey:

"Let Me Get That For You": Analyzing Frictional Situations in a Disability Context (via Google Forms)

This research survey has received approval (IRB number 2025-037) from Delta State's Institutional Review Board. It will be live and accepting responses for the next 4-6 weeks depending on the number of responses received. But there's also something for you!

The survey itself is anonymous, though you can optionally enter a drawing for an Amazon gift card at the end of the survey. I can't buy a gift card for every response (as much as I would like to be able to do that) but I can give away a token of appreciation to a randomly selected portion of you. Email addresses are collected only for those who wish to participate in the raffle; any collected emails are deleted after each weekly drawing and only used to contact whoever won that week.

If you have any questions about the project, feel free to send me a message on tumblr!

Cosplayers, please don’t forget about those of us with disabilities at cons. Don’t push that walker or wheelchair out the way in artist’s alley because the owner of it isn’t touching it. Don’t give people funny looks for standing without their aids while they’re looking at things. Don’t get angry at the wheelchair user who has no choice but to go past your photographer because you’re taking up the entire space. Don’t kick out other cosplayers mobility aids. Keep space around you for disabled people, because we exist in your community and we just want to have fun like you do.

btw while people continue to fight the system don't forget about Undue Medical Debt (formerly RIP Medical Debt), a charity that buys and forgives medical debt. on average a donation of $10 will forgive $1,000 of medical debt.