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Physical Disability - Blog Posts
What I find isn’t appreciated enough when it comes to shifting
TW: chronic illness and chronic mental health
So I have chronic anxiety and clinical depression, along with other various physical health difficulties including intestinal issues and extreme periods (most of which almost lead to going to the hospital, it takes two weeks out of every month of my life) I’ve been examined by countless doctors, therapists, psychologists, and no one knew how to fix me, all they said was I would have to live with it and find coping skills to function “normally” in society
so with that in mind, life sometimes gets ridiculously complicated and difficult, and I hate the fact that I have to live with it, but that’s when I realized *I don’t*
I am a manifestor and shifter, how the hell could I forget that? I honestly am so thankful for scripting and for shifting because in so many realities I don’t have to deal with this burden, I can live freely and enjoy life and not have to worry if a meal will send me to the ER
I really feel like people glaze over the fact that we have SO MUCH POWER and so much potential, I think it’s important to show our appreciation to that, I appreciate it so dearly
Whenever I have a pain spike or an anxiety attack, I just repeat I am in control over my reality, I am the master of the 4d, I am safe, over and over and then it goes away. As of recently, it’s been getting better using these robotic affirmations, and I’m so happy I cry thinking about it
4 years worth of constant pain, no matter what I could do, thinking I would live like this forever, and here I am a few weeks/months and I found what works to save myself
I hope whoever reads this finds hope in my experience, especially to those who share my burdens
good night and happy shifting to all 🩷✨🫶
Spoon theory is great, I'm glad it was created <3333
Please reblog if you can so I can get a larger sample size
Feel free to put any clarifications in the tags (I’d be very grateful) <3
Cosplayers, please don’t forget about those of us with disabilities at cons. Don’t push that walker or wheelchair out the way in artist’s alley because the owner of it isn’t touching it. Don’t give people funny looks for standing without their aids while they’re looking at things. Don’t get angry at the wheelchair user who has no choice but to go past your photographer because you’re taking up the entire space. Don’t kick out other cosplayers mobility aids. Keep space around you for disabled people, because we exist in your community and we just want to have fun like you do.
happy disability pride month to those with conditions no one talks about, online or in general:
multiple sclerosis (me lol)
marfans
cerebral palsy
bells palsy
hidradenitis suppurativa
cauda equina syndrome
mixed connective tissue disorder
hyperadrenergic pots
non hypermobile eds types
stickler syndrome
mitochondrial disease
cystic fibrosis
sickle cell disease
myasthenia gravis
post-cholecystectomy syndrome
SWAN (syndromes without a name)
...just to name a few. i see you and you deserve awareness and understanding.
this list is non exhaustive, rb with other conditions you want to see represented!!
[ID: a post banner with dark red background and medium grey bolded text in the center. it reads “This post is about physical disabilities, do not derail.” On each side there is the dynamic disability icon, a gray symbol of person in manual wheelchair leaning forward with arms bent behind them mid-push. /end ID]
it just registered to me that i might be physically disabled, but im scared to say it outloud
rant below the cut
my dad has EDS and i have all the syptoms, just less seveare, ive spent over an hour in the bathroon about to cry in pain, my shoulders almost constantly ache, one time a few years ago it got so bad so suddenly i felt like something was broken, for a couple days, my wrist and ankle amost are always just, uncomftable and ive been so nauseos i couldnt sleep all night cuz i was dry heaving because i got slightly sick, i use my dads topicle pain medicine on my wrist consistently and ocantially shoulders, hell ill get nausos if i drink to much to fast
but im still scared to say im disabled because unless its a flair up i can do most things (or im being stoped for mental reasons not physical),
but ive had times where i couldnt breath becuase my girl scout troop was hiking to fast, i cough like im dying when im fine,
i just started using a wrist brace my parents already had for my right wrist and it helps so much, i might need to fing the one for the other wrist and i also might need to get ankle braces, but i feel as though im faking it even though i know im not
please someone help me feel a but better about this
Does ANYBODY with pots have any tips on how to make some kind of progress with exercise, or at least not be completely out of spoons after? I miss running sm, and it's driving me crazy
Has anyone cracked the code to not being completely exhausted 24/7? I feel like I can only get my obligations done before it's right back to bed
The deafening ear ringing every time I stand up is going to drive me insane
How'd I dislocate my hip by sleeping 😭
Anybody else with ehlers danlos syndrome have sway back?
Idk how to fix it, but I was wondering if anyone else does this
Any other chronically I'll people have the experience as a kid where they just Didn't Feel Good? That kind where you couldn't describe your symptoms, or pinpoint anything specifically wrong with you, other than just feeling bad. That definitely should've been more of a red flag.
sometimes being chronically ill is laying on the floor in pain while the cat tries his very best to help
Yeah... text to speech has kinda saved my life in that area
My hands hurt a lot too. So like. Limited ability to be on my phone and type or to even play games. Thanks ehlers danlos and fucked up joints.
The sarcasm here is fucking hilarious 💀 whenever I inevitably end up using mobility aids, imma just tell them my doctor told me to, bcs she did. Even if your doctor denies you a mobility aid, people get uncomfortable if you just say a doctor made you, so you could always just make stuff up.
You shouldn't get a wheelchair, walker, cane, shower chair, or any kind of assistive technology mobility aid because then you might become dependent on them. Just like how you also shouldn't get glasses if you have bad eyesight because then you might become dependent on those.
For instance, if you end up stuck using corrective eyewear, you could actually lose your ability to tell what things are even when they are extremely blurry! You need to get used to having migraines from seeing unclearly because if you wear glasses all the time, you are basically giving up!! You don't need to see things coming at you from far away! You just need to get good at dodging, and if you can't, then you have no one to blame but yourself!!
For example, I read a really heart-worming article recently about a girl who was stuck using glasses - just absolutely, tragically trapped in her eyewear from dawn to dusk, even though she was good and never ever complained; and I heard she trained herself to discern the blurry faces of her loved ones with 60% accuracy! - she was even able to walk down the aisle at her wedding WITHOUT forcing the discomfort of seeing a woman in glasses on all her guests!!
Sure, she had to give her vows with a splitting headache, and she couldn't see her husband's expression when he said "I do," but overall, SO inspi-ration-al!!! So up-lifting!!
(She didn't even have to use a seeing eye cane, which would have been the worst-case scenario, obviously, because she worked hard to make sure she looked LESS disabled, not MORE disabled!!! Everyone knows blind people exist solely to be a cautionary tale to sighted people!!)
Also, did you know some people get glasses when they only need them a little bit?? How selfish of them! Sure, there's not a shortage, and an increase in demand would result in overall increased accessibility to glasses--but emotionally it's like taking glasses away from someone who needs them more! After all, if everyone who needed glasses got them, then...... um...... more people would have glasses! Which is probably bad!!!!
I also had a friend who was trapped in glasses who saved up all her money for laser eye surgery, and I don't know why everyone doesn't just do that! Sure, some doctors say some people don't "qualify" and it "won't help" those people, but that's why you can't give up!! You don't want to be one of those people!
After all, what's the worse thing that could happen with an unnecessary laser surgery to the face that comes with crippling debt??? It's worth the risk to gain your FREEDOM back, and I'm so proud of my friend!!
Tragically, she did die later that year while driving Uber and squinting at street signs, but at least now I know my friend is finally free from the shackles of her terrible eyesight. #ripAshley #rippedAshley #justripit 😌😌😌❤😇😇😇
And that's why you shouldn't get used to using a mobility aid!! Because, like glasses, they are inherently embarrassing to be seen with; and - like glasses - it is more noble to silently suffer than to depend on unnatural technologies that force you to rely on them!!! (Besides, everyone else will be SO much more comfortable if you look normal!)
I hope you learned something today. 💖
Random vent:
I legitimately do not know what is going to happen to me in the future. All I want is to be a firefighter, but two days into emt school and I'm already having a flare up. We went to visit the fire station today, and I nearly passed out just from standing still. I was always such an athletic child, and everyone expected that I would kick ass in this field, yet here I am, struggling to stand. I already knew that I would have a very short, painful career, but now I don't know if I can do it at all.
I always drink a ton of cold water and pour it over my head
Respectfully how the fuck do you take hot baths with pots and not die
Oh trust me, it’s not without consequences. I add cold water to the bath if it gets to be too much, and when I get out I immediately sit down in my towel while my heart calms down that way I don’t eat shit on the bathroom floor (and that’s also why I have to have the door unlocked, love that for me) I didn’t used to have heat intolerance but now I do, and my body hurts enough that I make the decision to walk through the flames of hell each time instead of dealing with my wack ass degenerative joints
Being a disabled person going into the medical field so so weird. Other disabled people are saying "fuck medical practitioners" and I'm like "...sorry? Idk what I did, but srry ig"
In case anyone finds it helpful because mobility aids are horrifically expensive and inaccessible…
And for those people who have access to mobility devices but might benefit from a second chair they can abuse without risking expensive damage…
Erik Kondo has made a website, Open Source Innovations, that details plans for DIY wheelchairs. These wheelchairs can be made from common materials like wood, plastic, and pvc. They are lightweight and can be custom fit to the user allowing from the same degree of movement you would get from a custom chair. And they are durable and easily repairable. (he has been stress testing his latest design by dropping it down stairs, dropping it out of a car, launching it across a driveway, and throwing it off a deck). Its 12lbs and I think he said its was in the $200 ish range for parts.
He also is working on cheap, open source, accessible designs for beach chairs, off road chairs, motorized attachments (think smart drive), and so on. Plus he skateboards in his wheelchair. Cool dude, helpful info, pass it on.
Overload...
One of the best things about college to me is just showing up early to get a good seat away from people and pick where I sit. I love being able to sit away from the flickering bright white lights that loom over the students, yet being able to sit away from windows and distractions that might interfere with my studies. With all these great things soon comes misery though...the seat I pick always ends up having someone trying to sit near me so I have to set my backpack on the chair next to me and sit in the corner if possible. I fear people might think I'm rude, but the noises of others clicking away on computers, talking to their neighbors, smells, and any small noises or motions they make just tend to bother my sensory issues. I have severe sensory issues due to my autism and sensory processing disorder so I go into a meltdown almost every time I show up to class. I love school and learning as it's my special interest and always has been. The ability for me to expand my knowledge in any way possible makes me happy and want to flap my hands around. I just wish people were more considerate and I didn't have to wear headphones just to exist in normal environments. School is great, yet extremely hard and I always miss classes sometimes. I tried online school, but it's hard for me to focus and stay attentive in class. I'd rather sleep through it instead which is a huge issue. I don't know, I just feel as if I need to let out some of my issues and get them off my chest in order to sit through this next class. Sorry if I come off as rude, I don't mean to. I just am struggling so much lately to just exist. I want to curl up in a ball and hide away from society until people acknowledge that those with disabilities can and will be in professional settings too so we need to make things to accommodate them.
Hey y’all!
I’m about to make a website for an organization I’m creating to help those with hidden/invisible disabilities and illnesses.
I want to be able to make this website accessible for people with all types of conditions and wanted to reach out on here to get any suggestions from people with those types of conditions.
I also created an Instagram for the organization but it’s still in the very early stages so I won’t be sharing yet…
Let me know if you have any suggestions or questions!
‼️please help me get a wheelchair‼️
hello, my name is leo, or more commonly known as ‘lav’ on here.
i’ve been dealing with debilitating chronic pain for over 10 years and i really need a wheelchair. i haven’t gotten much help from my healthcare system, being fat and afab has really fucked me over while trying to seek medical attention..
i am still fighting to completely figure out what’s wrong with me, but for now i know that i have several bulging discs in my lower back, as well as scoliosis. (as well as medically recognised POTS).
my pain is getting worse and worse, and i barely leave my home since walking and being upright in general hurts so much. a wheelchair would improve my life immensely, both physically and mentally.
i am currently on disability benefits, which pretty much is the lowest income group in sweden, and saving up for a wheelchair myself would take a very long time.. i will of course also be saving up as much as i can and putting into an account meant for wheelchair funds.
so i’m asking you to donate if you want to and if you are financially able to, and if not, please reblog this.
i have found a good chair that is also accessible to a fat person, and i need 7111 SEK (around 650$) to cover the cost of the chair & the shipping. i have started a gofundme that i’ll be sharing in this post, and i welcome all help, donating just a little helps, and reblogging and sharing the gofundme in general helps immensely too.
thank you so much for reading💜
why is accessibility so inaccessible… someone explain how this is supposed to make sense
anyone who thinks health issues end with walking out of the hospital doors, massive reality check for ya. there is no clocking out of chronic illness or disability.
surgery does not cure everything, medication does not cure everything. hospital cannot cure everything.
the amount of people in my life who believe that when i go to hospital, i will be discharged cured or symptom free is astonishing to me.
most of these people have known me long enough to have seen me through multiple hospital admissions and every time they come back to this way of thinking even though its never happened.
one of the worst parts for me about chronic illness is not having answers.
im a very logical and analytical person i love things to make sense i love patterns and reasons.
i have answers for pats of my health, and im so grateful for that, but the parts that i dont have answers for haunt me.
i think about it all the time. what if its not real and thats why theres no answer? what if im not explaining my symptoms right and thats why i havent had the right test that would give me the right answer.
i know logically that its a waste of time to think about, but i cant help it, i obsess over it. not understanding the world is one thing, but not understanding my own body? my own life? thats what gets me.
notalgia is so strange because what do u mean i long for things that remind me of the worst times of my life?
ITCHING to do stuff. ANYTHING lemme cook or clean or write or sew or draw anything please im so bored
reminder that productivity doesnt equal worth because i am forgetting this at the moment
im on day 39 of a migraine, hospital have given up on me, makes it hard to not give up on myself.