zylahbee

Latest Posts by zylahbee

why is accessibility so inaccessible… someone explain how this is supposed to make sense

what abled ppl think is a massive problem for disabled folks: 13 year old on the internet faking something

what is actually a massive problem for disabled folks: "well you don't LOOK disabled, are you sure you're not faking? I'm not giving you accommodations until you PROVE you're not faking. Please give me, a stranger, your medical info and explain your condition to me in detail so I know you're not faking and only then will I respect or take you seriously"

I hate how often some (typically abled) people will go “well, if you can’t [get a specific support], then what?” when it comes to disabilities. As if it’s a “gotcha” moment. And then act like you’re exaggerating when you answer that question honestly.

Disabled people often die from a lack of support. A lot of disability aids are not a luxury, but a basic need in order to live.

“Well what happens if—” people die. People hurt themselves. People hurt others. Disabled people don’t magically become abled if our needs aren’t met.

If a bedbound quadriplegic is caught in a housefire, and there’s nobody there to save them, they’ll probably die. They won’t magically become able-bodied out of sheer will.

If a nonspeaking/nonverbal autistic is denied access to alternative methods of communication, they’ll suffer in silence. They won’t spontaneously become capable of speech.

Disabled people are disabled all the time. Our disabilities don’t go away just because they’re inconvenient, or if we’re in danger.

Asking someone you barely know what their disability is equatable to just coming up to someone and saying “hey what’s the most traumatic thing that’s ever happened to you?”

Able-bodied people assume most people with mobility aids ESPECIALLY wheelchairs, have been in some sort of traumatic accident, and yet y’all still come up to us asking.

moving house sucks and i would like to never do it again thank you

Taking care of the disabled and injured is human nature actually. We have evidence of our ancestors caring for folks with disabilities. We're a cooperative species that takes care of their own. If our starving, weary, and hunted ancestors could care for the disabled members of their tribe, in this era of modern medicine and abundant resources we absolutely can afford to do the same.

🩰

top 10 worst experiences is seeing people excel at the sport you once excelled at too but you can never do again because you’re disabled

"If tampons should be free, then so should my diabetes meds."

Yes? Yes they should be? Your life-saving medication that you need in order to live for a condition you were born with should be given to you at no cost?

if invulnerable means i dont feel the affects of my chronic illnesses, then i would probably do something super cool and crazy.

id clean my house.

30 whole minutes a month of pain/fatigue free cleaning??? do you know what i could accomplish??? id be unstoppable. maybe id also do a cartwheel or smth for funsies

If you could become immortal and invulnerable for 30 minutes once every month (it has to be all at once, you can't chop the time into smaller segments and use minutes separately), what fuckery would you commit?

'being disabled is a full-time job' actually with most full-time jobs you get evenings and weekends off, plus holiday time and potentially other benefits like healthcare and dental. we don't get to clock off from being disabled nor do we reap any benefits, material, social, or otherwise. hope this helps

I honestly don't care if any disabled person is able to do anything or not.

Human lives have values for being human lives, and disabled people are humans.

nailed it.

anyone who thinks health issues end with walking out of the hospital doors, massive reality check for ya. there is no clocking out of chronic illness or disability.

surgery does not cure everything, medication does not cure everything. hospital cannot cure everything.

the amount of people in my life who believe that when i go to hospital, i will be discharged cured or symptom free is astonishing to me.

most of these people have known me long enough to have seen me through multiple hospital admissions and every time they come back to this way of thinking even though its never happened.

anyone who thinks health issues end with walking out of the hospital doors, massive reality check for ya. there is no clocking out of chronic illness or disability.

surgery does not cure everything, medication does not cure everything. hospital cannot cure everything.

the amount of people in my life who believe that when i go to hospital, i will be discharged cured or symptom free is astonishing to me.

most of these people have known me long enough to have seen me through multiple hospital admissions and every time they come back to this way of thinking even though its never happened.

Something that really bothers me about disability activism and representation is how people with gastrointestinal illnesses or disabilities continue to get the short end of the stick and that nobody ever talks about it because it’s “taboo”, which it absolutely shouldn’t be. We can’t be open with people IRL, even in disability spaces, about our conditions because they’ll either view us as disgusting or triggering or they’ll view us as sex objects because of their fetishes. We don’t fare much better in fiction, with GI disability rep being largely allocated to either grossout humor, the author’s barely disguised fetish, or just actual pornography about our conditions.

It sucks because I have a lot of health issues, and I can talk about my chronic pain or my stigmatized mental health conditions with no fear of being shamed, but it feels like w/ my GI issues I’m keeping a dirty secret because that’s how people - including other disabled people - treat these kinds of conditions. People like me shouldn’t be made to feel like we’re outsiders in our own spaces.

(Note 1: This post is not meant to kinkshame. I bring that topic up because unfortunately it IS some of the only rep we get, and we deserve representation that talks about our disability as a disability and not something sexually arousing)

(Note 2: Other disabilities/illnesses are treated this way too. This is just the one I have experience with.)

one of the worst parts for me about chronic illness is not having answers.

im a very logical and analytical person i love things to make sense i love patterns and reasons.

i have answers for pats of my health, and im so grateful for that, but the parts that i dont have answers for haunt me.

i think about it all the time. what if its not real and thats why theres no answer? what if im not explaining my symptoms right and thats why i havent had the right test that would give me the right answer.

i know logically that its a waste of time to think about, but i cant help it, i obsess over it. not understanding the world is one thing, but not understanding my own body? my own life? thats what gets me.

its devastating, seeing the life ive longed for happen to others while im stuck in bed in a flare up… again.. its so hard.

i unfollow a lot of people for this honestly, if i havent seen them in the past few years then i dont see the point in seeing a bunch of posts that make me feel bad, its sad.

Being chronically ill in your 20s is stupid you have to see your peers like “started a family🥰” “got married😍” “bought a house😇” “scored a promotion😋” meanwhile you’re fighting for your life to take a shower

chronic pain diagnoses are all like yeah we don't know what this is or why it happens. we also don't know how to treat it. good luck out there soldier

notalgia is so strange because what do u mean i long for things that remind me of the worst times of my life?

discovering the trend of “dopamine” dressing/decorating was so hilarious to me…

whats the point of doing life any other way??? are people really wearing clothes that dont make them happy?? and decorating their house in a way that doesnt brighten their day?? 😭😭

i was so confused like have i completely misunderstood society. no wonder people call me eccentric and weird.

i just assumed the things that make me happy were different to what makes others happy, not that they just.. were completely not having that as their goal in the first place.

pls surround yourself with things that make life sparkle guys i beg of u its the best way to live

you know how people talk about seeing in black and white and when things are more complicated or nuanced then they say its grey? yeah i kinda hate that. life is so much more than greyscale.

i like to think about life in rainbow thank you very much.

i dont believe that the scale of right and wrong, good and bad, is linear. people are SO complicated and the scope of what is possible is enormous.

when we talk about complex topics like politics, trauma, ethics, diversity and disability there are countless factors to consider. youre telling me that makes it grey??? 😭 nonono that makes it a unique blend of all the colours of the rainbow depending on the persons entire lifes worth of experiences.

this dont mean you can excuse your actions by saying its complicated, it can be complicated and still be wrong this is just about readjusting grey to colours

anyways when someone does something you disagree with, instead of trying to think in shades of grey, consider the endless amounts of possibilities there are to create a unique painting of colours representing this persons experiences.

think in colour peeps 🌈

omark thinks if imark just finds out about gemma he'll love her the exact same way omark does and he becomes genuinely frustrated that that's just not the case. he just doesn't understand that his innie is his own person with his own relationships and memories that he takes just as seriously and just looking at and learning about his outies wife won't suddenly ignite something in him. oirving wanted to try to be loved the same way his innie was, idylan fell for gretchen as he got to know her. imark has helly, he doesn't know gemma, he doesn't need to reach across the barrier to find romantic connection, he's got everything he needs on the severed floor. and omark's inability to understand that is why his wife has been left alone in the lumon stairwell

ITCHING to do stuff. ANYTHING lemme cook or clean or write or sew or draw anything please im so bored

like I’m sorry but I really don’t give that much of a shit about the love triangle I’d have really liked it if we got idk. any real Big Picture information about lumon or what cold harbor’s end goal was For lumon. like literally anything else.

people dont understand the boredom of being disabled.

i see a lot of people suggest to people to embrace boredom and creativity will come from it. that to improve your attention span and get your life back from the trap that is quick form media you need to be bored more.

but i dont think that is the case for many disabled people.

its not the case for me.

i am SO bored. EVERY day. i cannot do all the things i want to engage in. i cannot play games i cannot read i cannot do art i cannot bake. these things arent being stopped by a social media addiction, they are being stopped by my health.

and my attention span isnt struggling for the same reasons as many abled people. mine struggles because of my symptoms. my fatigue, my pain, they are distracting and fog my brain.

so disabled people, when youre looking for tips about how to improve your attention span, and engage in your hobbies more, keep in mind that the reason for your struggles may be completely different to the people who are sharing suggestions and tips on the topic.

reminder that productivity doesnt equal worth because i am forgetting this at the moment

I've been a winx fan since like... forever, I can't believe Rai is using AI to make the reboot.

(Thanks to Maiky Odel, they shared the proof they could find with me)

i love video game character design

i got to the stoneville chapter and. oh my god. not even nonoy or, like, dada and giovanni are as hyper-detailed as this guy

✨✨✨✨Magic Winx✨✨✨✨