Ur Allowed To Be Sad/angry/scared/frustrated/bitter/etc About Your Physical Disability Btw. About Not

Maybe in another universe I'm not the sick girl.

Honesty, some of these genuinely changed my life once I started to really listen and incorporated them into it

collection of useful things tumblr has taught me:

even if you can't fall asleep, laying down with your eyes closed will still rest your body

you don't have to brush your teeth standing up

you don't have to do any chore standing up, from dishes to showering

you don't have to shower with the lights on

if you can't brush your teeth, flossing and a tongue scraper gets rid of plaque and bad breath

if you can't do that, mouthwash kills a lot of bacteria

eating "unhealthy" food is better than eating no food

you can make the same meal everyday for however long you still want it

some pills come in syrups or chewables if you can't swallow them

kids nutritional shakes can be a quick way to get fuel if you can't eat/don't have time

if walking hurts/exhausts you on a regular basis, canes and rollers are for you, no matter how young you are

we have free will—if doing something "out of the ordinary" makes life easier for you, do it

disabled people are worth whatever cost or resources is needed to keep them alive. disabled people are worth it even if they don't live long. they're worth it even if they will need extra support and resources for every day of their life. they're worth it even if they spend all they life indoors. none of it is wasted. none of it is in vain. time, effort, money, resources spent on a life are not wasted. these things have served their purpose. the joy of someone's existence is not undermined by not lasting forever. there's no meaningful point, some threshold where you can say "okay this is enough. after that it's not worth it." it's always worth it.

yes, doctors suck, but also "the medical ethics and patient interaction training doctors receive reinforces ableism" and "the hyper competitive medical school application process roots out the poor, the disabled, and those who would diversify the field" and "anti-establishment sentiment gets applications rejected and promotions requests denied, weeding out the doctors on our side" and "the gruesome nature of the job and the complete lack of mental health support for medical practitioners breeds apathy towards patients" and "insurance companies often define treatment solely on a cost-analysis basis" and "doctors take on such overwhelming student loan debt they have no choice but to pursue high paying jobs at the expense of their morals" are all also true

none of this absolves doctors of the truly horrendous things they say and do to patients, but it's important to acknowledge that rather than every doctor being coincidentally a bad person, there is something specific about this field and career path that gives rise to such high prevalence of ableist attitudes

and I WILL elaborate happily

about chronic illness and the constant search for blame.

everyone tells you this shit constantly until you start to believe it, and every time it flares up you wonder what you did wrong. on top of the pain, fatigue, and everything else, it starts to feel like a personal failing — like you just aren’t trying hard enough, even if you’re trying as hard as you possibly can just to get through the day.

Just made an account on Medium so I could read this. Made it about 1/3 through and I'm absolutely hooked and excited to finish it!! But first, time for a nap.

For the longest time, I have had trouble understanding FND - specifically whether it's just a shitty diagnosis made up by the medical system to gaslight people or if it's a genuine medical condition. This essay is rly helpful and has already broadened my understanding. It's incredibly well written, particularly bc of the extremely thorough research it's a result of

Medium

Cadenza for Fractured Consciousness

A Personal History of the World’s Most Misunderstood Illness

I am one of the most medically examined people in North America. For over a decade, no one could explain why I lost my ability to walk, speak, and use my hands. Why the lightning-like headaches? Why the ringing in my ears? Test after test came back negative. Doctors thought I might have a genetic abnormality no one's ever seen before, or a condition so rare that it had previously escaped medical classification. Then I got accepted to the top undiagnosed disease research program in the world, and they told me the only diagnosis I was unprepared to hear: it was Functional Neurological Disorder (FND), a much-misunderstood condition which was once known as Conversion Disorder, and before that, as Hysteria. And that was only the beginning of things getting weird. The essay above is the product of three years of research into the history, neuroscience, and politics of FND. It touches on the many medical failures that define the history of the disorder, the pervasive sexism and lazy mind-body dualism that prevented scholars from seeing it clearly, and why - finally - a better understanding may be at hand, with revolutionary implications for how we understand human consciousness and the experience of having a body.

FND fucked my life up. This is my reply. Thanks for reading.

YAAAY!! FINALLY GOT 12 POINTS!!

From friends and family, to doctors, and strangers: disabled people have to face judgement, disbelief and hurtful comments. But guess what? There are so many more disabled people in the world than you realise, in fact many of us try to fake being well, because of the stigma and judgement surrounding disability.

Faking disability and illlness is rare. The 1 in 4 disabled people in the world are not rare. So next time you think about questioning someone's disability - don't. That's all.

Hello please reblog this if you’re okay with people sending you random asks to get to know you better

Happy (almost) Pride Month! Please consider getting some of the press on nails packaging supplies off my list bc I am already doing sets for folks and gearing up to sell at an arts festival!

I work full time but am recently multiply disabled, having a ton of appts and having to take intermittent medical leaves due to my health. Times are extra hard rn so I'm trying to supplement my income!

Support black creators, especially disabled lesbian ones!

Here's some of my work! 🖤🩷

Here are my paylinks and wishlist!

zlle: sailorsylvie@gmail.com

vnmo: Serena-Manning

pypal: sailorsylvie@gmail.com

cshapp: $sailorsylvie

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