i need to lay in bed for a week to make up for one day i overdid it
i really respect people that say "oh i wouldn't wish this on anyone else" about their chronic illness because I WOULD
(unfortunately i might have become a little bitter, but i'm working on it)
being chronically ill it's so difficult to not dismiss healthy people struggleing with a short time illness
like "i'm sorry you got a cough, i have to make big adjustments to my everyday life to not regularly faint" is not the answer i wanna give others
saying "oh you're tired cause you stayed up on tiktok for too long? i didn't sleep at all cause of how much pain i was in" isn't empathetic
it's just hard not to compare my suffering to others seemingly minor issues
i always need to remind myself that this isn't minor to them, no matter how i might feel about it... i refuse to loose my empathy in addition to everything else i have to limit
teaching people that were curiously asking about my cane how to walk with it because i refuse to make mobility aids a topic that isn't spoken about
grateful for everything my life is besides the illness
grateful for everyone i get to have close to my heart
grateful for everything i get to experience
i refuse to let being sick stop me from being grateful for the rest
made the typical joke about "being allergic to gravity" today and i got an understanding nod instead of a "wtf"... now i'm the one that's confused
Dysautonomia is so wild.
You'll just be vibing and chilling, and your nervous system will go, "Hey, can't help but notice you ate a little more food than usual; we're gonna have to shut everything else down and direct all the blood in your body to your stomach," and suddenly you're lying on the floor with your legs elevated and a heart rate of 140 because your body doesn't body so good.
i always feel bad thinking i would prefer having a weelchair some days
i would never say it out loud because i know it would be an invonvenience and people already look at me weird for using a cane, but i would actually just be able to do things whenever i want to...
SAY IT WITH ME: MEDICAL GASLIGHTING IS MALPRACTICE
they CANCELLED the cardiologist appointment i was waiting for for OVER HALF A YEAR!
i was waiting for over an hour just to have someone come up to me to tell me they have to cancel and that i should call in 3 weeks to make a new appointment
the medical system is fucking bullshit and neglectful
how are you supposed to tell people who you recently became friends with that you sometimes need to use a mobility aid?
is there even a way to make it not awkward? because it shouldn't be awkward