Feeling A Flare Up Coming, But Trying To Push It Down Cause There Is Stuff To Do... Knowing Very Well

i really respect people that say "oh i wouldn't wish this on anyone else" about their chronic illness because I WOULD

(unfortunately i might have become a little bitter, but i'm working on it)

i love crocheting, but it messes with my wrists and makes them hurt even more, yet i refuse to give it up, because i don't want my illness taking another thing from me that i enjoy (especially since i can do it without leaving my bed)

so my school decided cause there were too many absences last year to note it on report cards which is whatever BUT they are gonna make a special note about it if you miss over 12 hours (even if it's excused, which is btw less time than i spent at hospitals the last month) so no matter what happens basically you have to go which is dumb

first of all i think doctors notes should completely excuse it because then it wasn't just staying at home for fun... also my school is the only one doing it in this region so only we will have disadventages when applying to university and yk how little 12 hours are? shit happens, like so many things can happen that you have no control over

a teacher offered to try to find a solution for me which i am thankfull for, but also this isn't only about me:

"oh but it probably won't affect you" i don't care it's still unfair

everything that could hurt... hurts...

Dysautonomia is so wild.

You'll just be vibing and chilling, and your nervous system will go, "Hey, can't help but notice you ate a little more food than usual; we're gonna have to shut everything else down and direct all the blood in your body to your stomach," and suddenly you're lying on the floor with your legs elevated and a heart rate of 140 because your body doesn't body so good.

having insomnia when having a chronic illness sucks!

my chronic illness flares up cause i don't get enough sleep, but i don't get enough sleep cause of my chronic illness

naptime does become mandatory again when you're chronically ill

me: oh! i think i feel ok today!

me: [sits up]

me: oh. never mind

shout out to everyone who doesn't have a chronic illness!

How does it it feel to not be terrified of having to stand for longer than a couple minutes?

collapsing on the floor in front of people that question my chronic illness just for them to freak out like i haven't told them this could happen at least 5 times