For The Love Of God I Am CHUGGING Electrolytes Why Do I Feel Horrible Still

Would you dress like this?

Signs you're getting better that are NOT symptomatic | Chronic Illness Addition

You're adapting: Instead of pushing yourself past your limits, you learn ways to make your life with chronic illness just a little easier. It could be sitting while you beush your teeth, or opting for a bath instead of s shower.

You stop telling yourseld you "aren't disabled enough:" Maybe you're an ambulatory wheel chair user or you don't always need a cane to walk around. Stop telling yourself that just because your chronic Illness differs from day to day, means you aren't disabled enough. Go buy that cane or walker and use it when you need to. You don't need anyone's permission. You don't need to prove anything to anyone

You've learned to ask for help: I know we all want to be independent and not rely on other people for help. But even able body people need help from time to time. Our body function differently, and it's okay to need extra help than the average person. You're not a burden.

You priorities your mental health: Mental health is extremely important especially when dealing with chronic illness. You may be grieving your old body or experiencing jealousy. This is all normal. Ways that have healped my mental health tremendously are making a gratitude list to remind me what I'm grateful for, creating a schedule, and minimizing the time on my phone.

Please feel free to add to the list

good luck with a second cardiologist appointment. I have only done the nasa lean test but got a diagnosis of pots through it. the instructions tell you to avoid excess salt and water 12-24 hours beforehand.

don't do this but i will also avoid taking painkillers before going to a doctor so that i will be crabby and exhausted and sore because i look fine when i'm coping

Its weird I made the same post about purposely making my symptoms worse on Reddit and it got taken down. You're not really supposed to talk about that. Its understandable but idk how else to get my doctors to take me seriously. And thank you! I hope it goes well too apparently they're a really good doctor

Things my disability has made me more grateful for:

My support system. I have been around some, let's just say, very mean people in my life. I've curriated a chosen family I couldn't be happier with. With special thanks to my girlfriend and her family for giving me a temporary place to live and taking care of me

Self care. Before while I did take care of my body, I didn't take it as seriously as I should. When I had to use the restroom, shower, brush my teeth, drink water, eat I didn't always attend to my needs. Now a days, even though they are way harder to do, I put in extra effort. Because I deserve it

My art. I have a lot of self esteem issues with my art, and even have shut downs on occasions from a piece not being “perfect.” But at the end of the day, when it’s just me in bed, with my art book, and my markers, I can forget about being disabled. I can fully put effort into something I love and have worked so hard on. And my efforts pay off. I can tell my art is improving

No, I am not I am not glamorizing being chronically ill and disabled. This is the best way I’ve learned to accept and cope with it though

Say it with me! Wheelchairs aren’t sad! Mobility aids aren’t sad! Mobility aids are instruments of freedom!

Love this response! I haven't been able to shower cause of my back and leg pain, but I'm so so glad you were able to :) I'm so grateful for my partner too! We love understanding and patient relationships. We've been together 1 year now and I can't wait for year 9!

I'm trying to create amore positive and content place for disabled and chronically ill people. I see so many negative posts about being chronically and they can really put me down. I wanna change that

I'd love to ask the question, what are you grateful for?

Now, I know this can be SO hard to answer especially when you're chronically ill. But I really want you to try and think of at least one thing. It could be something really small. Or even a list!

I'll go first: I'm grateful for my ability to create art, my mobility aids, and my chosen family.

YOUR TURN!

I love the colors!! I've seen scribble art where its a portrait not sure how they do that but it's pretty cool :))

I'm trying to create amore positive and content place for disabled and chronically ill people. I see so many negative posts about being chronically and they can really put me down. I wanna change that

I'd love to ask the question, what are you grateful for?

Now, I know this can be SO hard to answer especially when you're chronically ill. But I really want you to try and think of at least one thing. It could be something really small. Or even a list!

I'll go first: I'm grateful for my ability to create art, my mobility aids, and my chosen family.

YOUR TURN!

Last birthday post!

Just sending a message to say ‘hi’! And to say I totally get your frustration over “normal” lab results. All my labs have been normal and yet here I am, symptomatic! 🫠

Hello! Just because your lab results came back normal does NOT mean you are invalid and that there is nothing causing them.

I learned after going to the hospital yesterday (forgot I did that yesterday what fuck…) that I most definitely have POTS. I have slightly low sodium and heart palpitations. I have all the symptoms of it. When I treat my body like I have POTS it feels better

What I do to help:

The biggest fucking container of water CHUG IT

Salt, and I mean a lot

Compression socks are a gift from above

AND GET A TILT TEST DONE (I hope to do mine soon)

I was so exhausted and has zero spoons left. Tookna three hour trip to snooze land. Probably shouldn't have taken that long of a nap, but you know what? I DESERVED THE DAMN NAP!!!! I might still be tire, but I'm feeling refreshed of spoons today.

If you need to rest go do it. No need to feel guilty about it