Just Rewatched The Season 1 Of Winx And HOLY FUCK. That Was Intense.

tysm fatigue

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???

It has been long enough that responding without preamble would now be Weird

never speak again.

ughhh if u say soooo 😔

Annual reminder to my fellow disabled and/or chronically ill folks that the new year doesn't mean you have to set arbitrary goals and reinvent yourself just because everybody else does. You will still be disabled next year and no amount of planning and setting goals will change that. You're already lovely as you are. Don't let society suck you into this shit that is just so unrealistic and toxic even for non disabled people. Take care.

i am so sorry. the being labeled “non compliant,” i understand that so much. they dont see us fighting for our health every day. they only see us for a short appointment or hospital stay and think they can judge us based on that.

im so very glad you have that nurse. 💕

“consistency is key” doesn’t apply to many disabled people.

going to the doctor and having them tell me that, and that i need to stick to a schedule they have deemed appropriate is completely comedic.

what about the fact that my health and ability to do anything is a constant gamble? it can change drastically and almost instantly at any given time.

what about how right now i can stand up and make myself breakfast, but by lunch time? who knows. i may be unable to even sit up.

how do u listen to me explain that i dont have a daily or weekly schedule because of how unpredictable my health is, and reply by giving me a schedule.

do you not think i have tried to stick to a routine and schedule like all the healthy people around me??

all i see is people with consistency. i grew up thinking i was broken because i couldnt. i have pushed myself to breaking points trying to fit your mould of success and health.

im sorry if you experience this too. im going to make another post about what consistency can look like for me and other disabled people. because while we dont fit the classic definition of it, there are ways we can make our own version. i wish doctors would listen to me and would help me find my version instead of insisting on theirs, but they havent, so i wanna try help others find theirs. prt. 2 here (now going to make multiple more posts on this topic lol)

omark thinks if imark just finds out about gemma he'll love her the exact same way omark does and he becomes genuinely frustrated that that's just not the case. he just doesn't understand that his innie is his own person with his own relationships and memories that he takes just as seriously and just looking at and learning about his outies wife won't suddenly ignite something in him. oirving wanted to try to be loved the same way his innie was, idylan fell for gretchen as he got to know her. imark has helly, he doesn't know gemma, he doesn't need to reach across the barrier to find romantic connection, he's got everything he needs on the severed floor. and omark's inability to understand that is why his wife has been left alone in the lumon stairwell

Doctors when they hear about my chronic illness but don't want to be responsible for treatment

aint no way i didnt know this blog existed im so dumb hi welcome

I hate how often some (typically abled) people will go “well, if you can’t [get a specific support], then what?” when it comes to disabilities. As if it’s a “gotcha” moment. And then act like you’re exaggerating when you answer that question honestly.

Disabled people often die from a lack of support. A lot of disability aids are not a luxury, but a basic need in order to live.

“Well what happens if—” people die. People hurt themselves. People hurt others. Disabled people don’t magically become abled if our needs aren’t met.

If a bedbound quadriplegic is caught in a housefire, and there’s nobody there to save them, they’ll probably die. They won’t magically become able-bodied out of sheer will.

If a nonspeaking/nonverbal autistic is denied access to alternative methods of communication, they’ll suffer in silence. They won’t spontaneously become capable of speech.

Disabled people are disabled all the time. Our disabilities don’t go away just because they’re inconvenient, or if we’re in danger.

I honestly don't care if any disabled person is able to do anything or not.

Human lives have values for being human lives, and disabled people are humans.

chronic pain diagnoses are all like yeah we don't know what this is or why it happens. we also don't know how to treat it. good luck out there soldier