Zylahbee - Zylahbee

Something that really bothers me about disability activism and representation is how people with gastrointestinal illnesses or disabilities continue to get the short end of the stick and that nobody ever talks about it because it’s “taboo”, which it absolutely shouldn’t be. We can’t be open with people IRL, even in disability spaces, about our conditions because they’ll either view us as disgusting or triggering or they’ll view us as sex objects because of their fetishes. We don’t fare much better in fiction, with GI disability rep being largely allocated to either grossout humor, the author’s barely disguised fetish, or just actual pornography about our conditions.

It sucks because I have a lot of health issues, and I can talk about my chronic pain or my stigmatized mental health conditions with no fear of being shamed, but it feels like w/ my GI issues I’m keeping a dirty secret because that’s how people - including other disabled people - treat these kinds of conditions. People like me shouldn’t be made to feel like we’re outsiders in our own spaces.

(Note 1: This post is not meant to kinkshame. I bring that topic up because unfortunately it IS some of the only rep we get, and we deserve representation that talks about our disability as a disability and not something sexually arousing)

(Note 2: Other disabilities/illnesses are treated this way too. This is just the one I have experience with.)

childhood potions and spells making my beloved

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Kid-friendly interaction only please!

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Disabled and chronically ill people are allowed to enjoy things and do things they like (if they’re able) while still being sick and disabled. Yes, even if they aren’t employed. Hope this helps.

happy new year, i’m still disabled!!!!! crazy i know but here i am being chronically ill in 2025 like a loser

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top 10 worst experiences is seeing people excel at the sport you once excelled at too but you can never do again because you’re disabled

mate idfk but here we are this is now my side blog ig

me when i made this account upset that i couldnt get “zylahbee” as my account name only to discover IM THE ONE WHO HAS TAKEN IT 😭😭 i somehow have another tumblr i didnt know about i love memory problems 👍🏻👍🏻👍🏻👍🏻

I FEEL SO SILLYYYYY

“consistency is key” doesn’t apply to many disabled people.

going to the doctor and having them tell me that, and that i need to stick to a schedule they have deemed appropriate is completely comedic.

what about the fact that my health and ability to do anything is a constant gamble? it can change drastically and almost instantly at any given time.

what about how right now i can stand up and make myself breakfast, but by lunch time? who knows. i may be unable to even sit up.

how do u listen to me explain that i dont have a daily or weekly schedule because of how unpredictable my health is, and reply by giving me a schedule.

do you not think i have tried to stick to a routine and schedule like all the healthy people around me??

all i see is people with consistency. i grew up thinking i was broken because i couldnt. i have pushed myself to breaking points trying to fit your mould of success and health.

im sorry if you experience this too. im going to make another post about what consistency can look like for me and other disabled people. because while we dont fit the classic definition of it, there are ways we can make our own version. i wish doctors would listen to me and would help me find my version instead of insisting on theirs, but they havent, so i wanna try help others find theirs. prt. 2 here (now going to make multiple more posts on this topic lol)

let's recap what we've learned about the United States in the last few days.

things that are terrorism:

allegedly shooting a healthcare CEO whose company generated more pure profit (not revenue, profit) in a year than the GDP of 94 countries, exclusively by denying coverage to people who pay for it

a 42-year-old mother of 2 using the wrong combination of 7 words during a heated conversation with a call center employee at a health insurance company who was in the process of denying her health coverage.

things that are not terrorism:

mass shooting in a Black church to incite a race war

going to a BLM protest specifically to kill protestors

a neo-nazi running over a crowd of people, killing a woman

targeting and killing 23 latinos in an el paso, texas walmart

killing 12 people in a theatre, shooting 58 others, rigging your apartment with explosives

a QAnon groyper killing 7 and shooting ~50 at a 4th of July parade

killing 3 people and shooting several others at a Planned Parenthood in defense of the unborn

stalking someone relentlessly and then killing them and their child despite months of the victim making police reports

any one of the 1,200 murders committed by US police yearly, the vast majority being minorities

tightening your border while ~100 immigrants (including children) drown every year in the Rio Grande

United Healthcare killing an unnknowable number of elderly people by using faulty AI to deny medically necessary coverage

Aetna killing a woman by refusing to cover her cancer care

Blue Cross killing a 6-year-old by denying her appendicitis surgery

Cigna killing a 17-year-old child by denying her liver transplant

the pharmaceutical industry killing half a million people with opioids in the name of producing revenues in 2023 that rivaled the GDPs of countries like Spain, Mexico, and Australia.

the United States killing 45,000 people a year because they can't access health coverage

make sure you keep this guide handy the next time you find yourself interacting with your insurance company or any other millionaire, billionaire, or an individual who is part of a protected class such as a CEO or president of a corporation.

i hate how people don’t understand the difference between having no motivation, and having the motivation but being physically UNABLE to do it.

trust me when i say i wish i was not ill and could just “go get a job.”

blog info 🌷🍯

hi my name is bee, welcome to my main blog! it’s basically my diary.

here i talk about my experience as a LSN disabled/chronically ill person! i am medically complex and have medical PTSD. i also talk about abuse and childhood trauma. if any of those topics trigger you this is your warning ♡

all about bee 💌

art blog + art tag

chronic illness/disability + life updates

mental health + diary

human rights

music

books + reviews + writing

fandoms 🍰

barbie ever after high marvel precure strawberry shortcake tangled winx club

Free Palestine.