Some People Don’t Want To Hear This But Sometimes Accessibility Is Not Sustainable Or Eco-friendly.

Disabled people are not obligated to do everything that a non-disabled person can do. Stop treating us as though our bodies are the same. What you do normally can be detrimental and dangerous to us.

you know as disabled people it's actually pretty scary that you can't trust your doctors. like people who have medical trauma or distrust or dislike doctors and nurses aren't doing it for fun. we need these guys to help with our lives. we need healthcare to stay alive or to stop from getting worse, or to function at all. but often when you're dismissed and not communicated with you're left floundering and often have to make decisions yourself without that specialist knowledge. sometimes doctors know less than you about your disability anyway. sometimes they're wrong and give you advice that's detrimental to what you need or want, and you kinda have to just trust that the next guy is also not wrong. i think we're pretty lucky if we can find other people with our condition who are well researched in it. but i still think that uncertainty is something that disabled people shouldn't have to navigate

Asking for help while being disabled shouldn't feel so much like handing someone your autonomy and saying "take this away."

chronic illness really makes the weirdest ‘would you rather’ scenarios come to life.

like, would you rather: show up to christmas with no presents for anyone or show up having not showered for a week?

would you rather: feed yourself or do the dishes?

you can choose both but your penalty is to spend an unknown amount of time bedbound afterwards.

Does anyone else feel like they kind of have to train their able-bodied friends?

I know that sounds fucked up, but y'all know what I mean. Teaching them things like "slow down" and how to let me set the pace when we're walking, or how and when to offer help, or a HUGE pet peeve of mine: taking the ramp with me instead of splitting off to take the stairs.

I know they're not dogs, but y'all gotta admit that they do take some training.

went to my general practitioner and suddenly got diagnosed with post covid and cfs. after he had not taken my symptoms seriously in the past. after years of medical gaslighting. i mean i still think its mecfs but thats probably as close as it gets. which is so much better than nothing. nevertheless i don't really seem to feel much about it even after i've recovered for over a week from this draining excursion. just endless exhaustion

I was outside today! For the first time in weeks except medical appointments. Went for a very short walk. It was great, but i'll probably have to pay for it and also i'm more sad now than i was before. The distance between where im at and where i would like to be is just too big.

who up experiencing emotions they can talk to no one about

How do people keep replying when friends ask how are you? I hate being so negative but often it's my reality like I couldn't do a lot of things today but I'm trying and nothing has changed!! I don't want to push them away by being the one who's always sick