Fishability - Disability Awareness, Access, And Positivity

post by @ lucyedwardsofficial on instagram showing how the paralympics includes blind/visually impaired viewers of goalball!

on peace after trauma 🌻

I stand in front of a crowd and tap the microphone. "Disabled people deserve full bodily autonomy," I announce, and the crowd devolves into shouting. I am being asked about every single contingency in which bodily autonomy can possibly be taken away. I am not allowed to ask these people why they want so badly to control disabled people's lives. I am a representative, after all.

A man in the third row calls me a whore. A woman up near the front calls me a filthy god-hating anarchist. I am the villain of the story. I'm ruining their childhoods when I point out the flaws and ableist tropes in media that I never said they weren't allowed to enjoy. I'm policing their language when I ask them not to use slurs.

Someone else calls me a fascist. A Creationist with Calvinist leanings is using the same arguments against me as the literal social Darwinist. The topic of "faking disability" is brought up and everyone suddenly has a story to share and presents it to me. I am horrified by most of these stories because they feature ambulatory wheelchair users being harassed and young people with invisible disabilities being chased out of bathrooms.

I tap the microphone again and announce, louder, "Autism speaks is actually a hate organization." At this rate, I'm never going to get to my powerpoint on the social/medical model of disability and why the intersection is important. But I am a representative, and in between the name calling and accusations, they are asking me questions. And so I answer.

why isn't there much info about coathanger pain with POTS?? or at least why is this not more common knowledge? i don't think i've ever seen anyone talking about this. every time i've asked about it (+other POTS symptoms it comes with in my case) in chronic illness spaces people have suggested everything from fibro, MCAS, a CFS leak, a herniated disc, CCI, etc. but nobody ever said "coathanger pain."

but dysautonomia international posted a silly little graphic on their instagram and now i have my answers to why i was having a ton of symptoms that did suggest a herniated disc but there were no signs of disc herniation upon getting an MRI and for some reason it was triggered by working morning shift/having to be upright for a long time in the mornings. i would get excruciating, searing pain that feels pike a knife has been shoved into the base of my neck and the whole of my upper back would have this icy burning sensation. accompanied by me losing the ability to think straight, losing my coordination, and slurring my speech. i left work crying one morning because of how much pain i was in before i eventually came to the conclusion i couldn't do morning shifts.

that's coathanger pain. my spine is okay (i think...for now, anyway.) according to The Stuff they don't know what causes coathanger pain necessarily but they theorize it has to do with reduced blood flow to those areas of the body (which would track since POTS tends to involve blood pooling in the extremities and such.) it's also not exclusive to POTS and is associated with dysautonomia or orthostatic intolerance in general i think.

One example of the power of obtaining the autonomic history is the Coat Hanger Phenomenon. In people who have neurogenic orthostatic hypotension or orthostatic intolerance, they can complain of pain, or like a charley horse kind of sensation, in the back of the neck and shoulder areas in the distribution that’s like a coat hanger. And it goes away when the person is lying down. That’s an important symptom. And the way I explain it is that the muscles that control your head are tonically active, otherwise your head be falling down all the time. Tonically active. That means they’re using up oxygenated blood all the time. Well suppose you’re in a critical situation where there’s a drop in blood flow at the delivery of oxygenated blood to the head. In that situation these muscles are not getting enough oxygenated blood. They’re tonically active, so they’re producing lactic acid and you get a charley horse, just like you’d have a cramp anywhere else. It’s a skeletal muscle thing. So, I think when somebody complains of Coat Hanger Phenomenon, that’s a very important sign or symptom. And that is not invented. That’s a real phenomenon. It points to ischemia to the skeletal muscle holding your head up.

(Dr. Goldstein, The Dysautonomia Project)

worsening cognitive dysfunction, slurred speech, and worsening coordination because blood's not getting to my brain. bordering on emergency-room-level pain in my upper back and neck because not enough blood is getting to those parts of my body. got it.

anyway, i legit have NEVER seen this discussed until recently and i thought i should share.

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@fishdavidson in Disabled Hardcore Life community

I'm running a survey for my graduate thesis at Delta State University about how social friction is perceived in interactions between disable

This is an archive link of a previous post I made on January 23, 2025, so I can grab the link for citation and inclusion in thesis appendices. If the link doesn't display the text or you aren't a member of the community in which it was posted, this is what it said:

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I'm running a survey for my graduate thesis at Delta State University about how social friction is perceived in interactions between disabled and able-bodied people. The survey probably takes about 15-20 minutes to complete, and I'm looking for respondents from individuals 18 or older who identify as disabled or partially-disabled. If you've already completed the survey, you don't need to do it again. As an incentive for participation, there's an optional raffle that you can participate in for the chance to win an Amazon gift card. Both the survey and the raffle are open to individuals outside the US!

"Let Me Get That For You": Analyzing Frictional Situations in a Disability Context (via Google Forms)

Thank you everyone who has participated in the survey so far, and special thanks to the people who helped identify places where the survey could be improved!

This research survey has received approval (IRB number 2025-037) from Delta State's Institutional Review Board.

You are not a creep if you find yourself sexy with your disability aids. full stop. If your partner is disabled, you are not fetishizing them if you find them sexy when they're in their wheelchair, or wearing their diaper, or have braces on, etc.

Disabled people are allowed to feel sexy and people are allowed to find them sexy. People with facial/limb differences and other physical differences are allowed to feel sexy and people are allowed to be attracted to them.

The problem comes from lack of consent and dehumanization. Expecting all disabled people to fit your sexual fantasy and sexualizing them openly without their consent (i.e. posting/reblogging normal pictures of a disabled person on your fetish blog or sexually harassing a disabled stranger) is fetishization and horrible. Asking us how we have sex or taking secret photos of us to jack off to later is creepy and crossing the boundry into dehumanizing fetishization. Seeing us and our sexuality as an oddity or a funny joke is not okay.

Reminder, sex toys were first and foremost created by and for disabled people. We have always been having sex and have always been seen as attractive by our admirers, without them fetishizing us. Having sex with a consenting disabled person isnt rape, and yes it is possible for us to eagerly consent! While some disabilities make it hard to consent, that isn't true for all of us.

We get horny, we have sex, we jack off, we wear sexy clothes and show off our bodies. We aren't freak shows for abled peoples amusement nor objects for fetishization. We aren't poor innocent virgins who don't know what sex is, we are a diverse and beautiful community all connected by our disabilities.

(post is edited for terminology, please rb this version instead)

stop making fun of bad people for being fat or having small dicks or being socially awkward or whatever else you seem to think is a fair target. none of that shit has anything to do with why theyre bad. i don’t care if a nazi has a stutter or a terf has thinning hair or whatever. at best youre missing the point, at worst your comments are gonna hurt vulnerable people more than they will ever affect the shitty person you’re mocking. why are you so attached to these bullshit standards anyway?

Adult diapers are for disabled people. Full stop. That is what and who they are for. They are for disabled people who need to wear them because of their disabilities. They don't exist for kink. If someone is using them for kink that is not the fucking fault of disabled people. Stop acting like every adult who wears a diaper is disgusting. You're disgusting for assuming that over what the diaper was fucking made for. Grow the fuck up. Someday you'll lose control of your bladder and bowels too.

"gnc straight man being called a faggot doesn't experience homophobia" what the fuck are you talking about. there's absolutely no logic in anything like that. we have kids who literally killed themselves because of homophobic abuse in schools and you would dare to tell them it isn't homophobia that killed them because they weren't actually gay? insane. and so fucking cruel

How to approach a wheelchair user in your way

-> A visual guide

[ID: a graphic with simple figures. on the left is a column of 3 identical images of a wheelchair user sitting in front of a pedestrian. on the right are examples of do's and don'ts. the first don't is a person attempting to step over the wheelchair user. the second don't shows a person attempting to push the wheelchair user. the final image is a do with a person saying "excuse me" to the wheelchair user]

❌ stepping over wheelchair users

❌ pushing wheelchair users

✅ asking politely for the wheelchair user to move