collapsing on the floor in front of people that question my chronic illness just for them to freak out like i haven't told them this could happen at least 5 times
navigating doctors visits and applying for university in the same week while going to school should be a valid answer if asked what exercises i do
this is why i always have headphones in
"it's not polite" well neither is my pain so fuck off
"Stop looking at your phone"
No. I need a constant distraction from the pain I am in. I promise you, you'd rather see me play solitaire on my phone for 45 mins than deal with me while being fully aware of my body. I PROMISE YOU I am listening better if i'm fiddling on my phone than if I'm sitting and being aware of my agony.
Also to everyone who has ever called me an iPad kid, die in a hole.
people that adapt to your chronic illness,
people that give you a ride and pick you up places without making you feel guilty
people that go to the ER with you
people that make sure to walk slowly so you can keep up while using a mobility aid
people that are willing to try different things to help you
people that are willing to learn and listen to you when speaking about your chronic illness
i ate a dry piece of bread... nothing else... my stomach feels like someone is stabbing me
teaching people that were curiously asking about my cane how to walk with it because i refuse to make mobility aids a topic that isn't spoken about
wanted to go to london to see a festival with some friends and i realized i would need to get an accessible ticket to go...
it feels odd to actually depend on accessibility
i miss travelling without basically taking a mini pharmacy with me
how to ask your doctor for stronger pain meds without basically being called a drug addict
sometimes i forget you can actually just pass out from pain
my body just said "nope"
hypothetically in how much pain would i have to be in order for it to be okay to tell people to fuck off? because i am close
everything that could hurt... hurts...
i'm tired of being scared of how i feel
started doing physical therapy again and my chronic pain got worse... really debating just quitting rn
i love teachers that offer accommodations in class without me even asking for it
someone told me that they would end themselves if they had even half of my health issues... idk what to do with that information...
everytime i am out of a flare i convince myself i am usually dramatic and this won't impact my life in any significant way in the future... then the next flare is coming up and changes my mind real quick
i'm in too much pain to sleep and i have to get up in a few hours cause it's a busy day
i am lucky if i get to close my eyes for a few minutes and it sucks
just bonded with someone over the fact that both of our bodies seem to hate us
fighting the occasional urge to scream, because being chronically ill feels unfair and it really is all too much sometimes
making jokes about being chronically ill with my friends, because somehow things are a little less heavy when you laugh about it
i know i shouldn'r be but i am kinda scared to use my cane out in public alone... i just use it with someone i trust around
being told you look like shit is weirdly validating. like at first it’s a bit hurtful but then i’m like…you can see it??? YOU CAN SEE IT????
made the typical joke about "being allergic to gravity" today and i got an understanding nod instead of a "wtf"... now i'm the one that's confused
grateful for everything my life is besides the illness
grateful for everyone i get to have close to my heart
grateful for everything i get to experience
i refuse to let being sick stop me from being grateful for the rest
i can't get rid of this constant nausea ffs
the urge the give my dnd character a chronic illness cause i want representation
despite going to the doctor way too often there are still so many things wrong that i don't even know where to start
(the list of things i should probably get checked is loooong)
Being chronically ill and a “normal” illness on top of it (cold, flu etc etc) SUCKS
I see you
It sucks and it’s twice as painful and you’re twice as nauseous and can’t keep anything down and have less than the zero energy you had before
I see you I’m sorry it sucks and I’m right here with you
the concept of doctors is better than reality