it should be illegal to take a nap and still have a headache when you wake up. like no i shut it off and back on again why are you still here
playing a fun game of anxiety or new chronic illness symptom
some guy invited me to go clubbing with him and his friends... i tell him i would go, even though it's not something i usually do, but i couldn't drink because of the medication i'm taking/health issues
he looked at me and just went "oh maybe some other time then"
and my question is why? WHY am i required to drink to hang out with people? and if that's just a rule then there won't be some other time, because i got a chronic illness and not just a cold
should just start whacking peoples shins with my cane if they stare at me
i feel like i wasted all my healthy years with being sad
my mom told me she doesn't know what to do anymore with all the different health issues i got... which is like fair enough, but i wonder if she realizes how i feel and how draining it is to actually go to all the different doctors appointments
can't completely stand upright rn, but i'm still gonna try to function tomorrow (we'll see how that goes)
overdid it today... will suffer the consequences later
can I have one *points at you*
Dysautonomia is so wild.
You'll just be vibing and chilling, and your nervous system will go, "Hey, can't help but notice you ate a little more food than usual; we're gonna have to shut everything else down and direct all the blood in your body to your stomach," and suddenly you're lying on the floor with your legs elevated and a heart rate of 140 because your body doesn't body so good.
healthy people will never understand the amount of joy i feel when i come home dreading having to feed myself to then realize i still got leftovers
naptime does become mandatory again when you're chronically ill
i'm so tired of feeling sick all the time
i don't want to be miserable... i wanna worry about things that other people my age worry about and not how to manage doctor appointments... i want a doctor to actually help... i wanna feel okay and not be scared of dying
they CANCELLED the cardiologist appointment i was waiting for for OVER HALF A YEAR!
i was waiting for over an hour just to have someone come up to me to tell me they have to cancel and that i should call in 3 weeks to make a new appointment
the medical system is fucking bullshit and neglectful
casually having a low symptom day the day of a doctors appointment
gonna start answering "i hope you get better" with "thanks, i probably won't"
like i hope so too it's just not realistic rn
the flesh is unwilling and honestly, the spirit isn't too keen on the idea either
i wish stores would have more places to sit and rest for a little
like pleaseee i don't wanna pass out on your floor
i need people to understand that when i say i can't do something it means that i can't do something, it is not up for discussion
i just went climbing today which is something that will probably send me into a flare up, but omg it was so much fun...
i wish i could do things like that without consequences
love the random wave of nausea that hits me multiple times a day /s
feeling hungover and drunk at the same time eventhough i didn't drink and am actually just chronically ill
Chronic illness be like: now our right knee is hurting
Me: ok. Is this a new accessory or should I get it checked out?
Chronic ilness: I don't know sis, sounds like a you problem tbh...
[cheerfully] i've been in self-made hells worse than this
i don’t know. i’m barely a person. i just want to be kind and hold someone’s hand. eat an ice cream cone. stare at the lake. feel the sun on my skin. lay in the grass. run through a sprinkler. it’s so easy to forget life is supposed to feel like a deep breath and not a gasp
why tf do people think i am joking when i say i am chronically ill and then continue making fun of it as if it's nothing apart from some silly little joke
this is my fucking life, it shouldn't be a joke to you, you shouldn't assume i am lying just cause you can't tell i'm chronically ill just by looking at me when i don't use my mobility aid
i'm just gonna pretend when people stare at me in public/their heads turn when i walk by it's because i'm pretty, not because i use a cane
perhaps i am simply a delicate spoiled houseplant but i don’t think having a fun productive day should give you multi-day hangovers
watching other people just live their life doing things you don't know if you'll ever be able to again...
going to school with a chronic illness really is a gamble sometimes