Latest Posts by mothforfairylightss - Page 4

i would love a no symptoms day

"you complain a lot" when i haven't even told them half my symptoms and mentioned not feeling well two days in a row

one good thing about being chronically ill that i learned about this week is when you need to drive your friend to the hospital for drinking too much alcohol you know your way around and exactly where to go

i would like to cancel my chronic illness prescribtion... i need to get things done

i once asked a teacher to leave the room cause i was feeling like i was about to pass out so i wanted to lay down, he said yes, but after class came up to me telling me i should see a therapist because this seems like a serious mental problem.

SIR i am chronically ill...

i told him this is a physical condition and he said he doesn't believe me and doesn't wanna hear excuses

me casually overdoing it on a low symptoms day and then wondering the next day why i feel bad

(will i ever learn? probably not)

asking for accomodations shouldn't be this emberassing and shouldn't be a big deal and i shouldn't feel this guilty for needing them

everytime i feel something even just mildly wrong with my body for more than a few minutes i immediately panic thinking that this might be a new chronic symptom...

which sucks, because that makes my heart rate go up with then causes even more of my regular symptoms

how do i get rid of this anxiety about new symptoms?

rain is annoying because i don't have the strength to use both a cane and an umbrella...

love leaving the house thinking it's just a few drops of rain and then basically taking a literal shower

i love crocheting, but it messes with my wrists and makes them hurt even more, yet i refuse to give it up, because i don't want my illness taking another thing from me that i enjoy (especially since i can do it without leaving my bed)

Mobility aids and other disability tools are really hot

If I see you in public using something that's helping you to get around or feel better then just know I'm thinking you're hot

doctors will give me a test and go “well obviously we hope it’s not that” and I’m sitting there like bitch I have been through so many tests so many doctors so many specialist I have been in the ER more times than I can count I almost do hope it is that because then at least I know what’s fucking wrong with me instead of walking into the ER with my issues and being told it’s anxiety even though I know it’s not

i explained to my teacher today that my medical condition won't just go away, there is no cure... he said that it can't be true, because he can't believe that all you're being told is "you just gotta live with it"

he also said i shouldn't choose my carreer path depending on how doable it would be with my illnees, but this is my reality... i need to consider things like that

so my school decided cause there were too many absences last year to note it on report cards which is whatever BUT they are gonna make a special note about it if you miss over 12 hours (even if it's excused, which is btw less time than i spent at hospitals the last month) so no matter what happens basically you have to go which is dumb

first of all i think doctors notes should completely excuse it because then it wasn't just staying at home for fun... also my school is the only one doing it in this region so only we will have disadventages when applying to university and yk how little 12 hours are? shit happens, like so many things can happen that you have no control over

a teacher offered to try to find a solution for me which i am thankfull for, but also this isn't only about me:

"oh but it probably won't affect you" i don't care it's still unfair

i really respect people that say "oh i wouldn't wish this on anyone else" about their chronic illness because I WOULD

(unfortunately i might have become a little bitter, but i'm working on it)

Just because it’s “to be expected” doesn’t mean you’re not allowed to be upset about it.

cluster headaches SUCK

i'm just existing and my head is all like *ouch* *ouch* *ouch*

when i am really fatigued i always say "i feel like i'n melting"

because that's what my muscles feel like and for some reason people seem to get that this at least isn't good instead of responding with the usual "i am tired too"

me: oh! i think i feel ok today!

me: [sits up]

me: oh. never mind

thinking about the time i fainted and after managing to get up with my friends help i walked up to my gym teacher telling him i gotta sit down and he refused to let me because "sitting down will make you feel worse"

SIR i have a chronic illness and was just laying face down in the gass...

but he obviously didn't notice cause he was too busy yelling at me for being late

(he knows too, it's not like he's unaware of me having health issues)

i think i keep forgetting my chronic illness won't just stop once i graduate... like i'll actually have to live with it in the future and i have to work with it

i've always seen my graduation as the final goal before having the freedom to decide what i want my life to look like and now that is being taken from me

i always forget... i guess despite all i am still secretely waiting for a magical cure

having a low symptoms day and then suddenly the chronic pain strikes once again

"just listen to your body"

hate to break it to you, but if i would do that i wouldn't even get out of bed

i always feel bad thinking i would prefer having a weelchair some days

i would never say it out loud because i know it would be an invonvenience and people already look at me weird for using a cane, but i would actually just be able to do things whenever i want to...

i hate when i, a completely healthy person (very chronically ill), get sick (flare up) for no reason at all (i exerted myself way past my limit just cuz i didn’t wanna be “annoying”)

You are well within your right to be angry about the help you didn't get and should have gotten.

You are well within your right to be angry about having your needs neglected.

You are well within your right to be angry.

SAY IT WITH ME: MEDICAL GASLIGHTING IS MALPRACTICE

being chronically ill it's so difficult to not dismiss healthy people struggleing with a short time illness

like "i'm sorry you got a cough, i have to make big adjustments to my everyday life to not regularly faint" is not the answer i wanna give others

saying "oh you're tired cause you stayed up on tiktok for too long? i didn't sleep at all cause of how much pain i was in" isn't empathetic

it's just hard not to compare my suffering to others seemingly minor issues

i always need to remind myself that this isn't minor to them, no matter how i might feel about it... i refuse to loose my empathy in addition to everything else i have to limit

loving people with chronic health conditions and there being nothing to do to help them SUCKS

i have chronic issues myself but when i break down it's mostly because the people i love are miserable

i am tired of seeing the people i care about suffer without being able to help