Pine Tree With Speckles Of Snow. British Columbia, Canada. January 2023.

As someone who has an 'invisible' disease, and who seems 'too young to be disabled,' when I was still on my journey to finding the right meds, I got a thing that allowed me to use disabled spots. (I now don't need it, as I am in remission.) If I was not in the great land of Canada, where our (unofficial) slogan is, "Be nice, we're Canadian." (at least what some people say) someone would have probably asked why I was using a disabled spot or that I didn't look it. Just because I'm not using a wheelchair or crutches or 'look disabled' doesn't mean I'm any less valid.

i hope you guys know defending disabled people's right to exist in public also involves defending disabled people's right to exist in public in ways that others might perceive as annoying, unpleasant, uncomfortable, and inconvenient at times. a blatant example is the "slow walker" thing. someone with tourette's syndrome who has issues with verbally ticcing is likely going to have trouble staying quiet in a public space where they're expected to be and doesn't deserve to be met with anger or punishing behavior for it. autistic children (and some adults) getting triggered into meltdowns due to an overstimulating environment. people with hearing problems having their phone on speaker while on a phone call. a wheelchair user taking up part of the road/sidewalk/aisle. people with autism, adhd, hearing problems, or other things that affect volume control having loud conversations. someone audibly talking to themselves, which can be attributed to many things. motor tics. dyskinesia. ataxia. pseudobalbar effect. the list goes on. some of thus may even be potentially triggering for your own issues if you're someone who's also mentally and/or physically disabled, but if you're well aware of how you can't help your response to it, you should be equally aware of how others can't help themselves either. people who aren't able to be disabled quietly and conveniently don't deserve to be punished or met with anger (or turned into a spectacle) for not deciding to shut themselves away.

fun facts about sharks

YESSSSSS THANK YOU! I got diagnosed with juvenile arthritis when I was 8, and only just now got a mobility aid to help me, because since i've been in remission (touch wood) for the last 4-5 years, whenever I tell people I'm disabled they act really surprised or just... don't believe me... (for some reason)

But I'm so happy that this post showed up for me!

Friendly reminder that:

Young people can have arthritis too.

There are hundreds of life long conditions and diseases out there that are typically diagnosed between 12 and 30.

There is a vast difference between being tired and having chronic fatigue.

Just because you can’t tell that someone is unwell from looking at them, doesn’t mean that you should assume that they are ok.

Many chronic illnesses are life long, and incurable. Many of them are potentially fatal.

If you have a disease like Lupus, on good days you still feel like you have a bad flu, 24/7.

Many of the medications used to treat chronic conditions have side effects that can really affect someone’s self esteem - like extreme weight gain, skin changes and hair loss.

Most chronic illnesses have very little awareness - its unlikely that you’ve heard of Sjogren’s Syndrome, Scleroderma, Ehlers-Danlos Syndrome or Fibromyalgia.

However these diseases can cause symptoms as varied as joint pain, fatigue, constant nausea, kidney failure, pneumonia, photo sensitivity, full body rashes, paralysis, strokes etc.

So please remember that invisible illnesses exist too :)

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blue & red sword

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knife

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And they told me 'oh that table's in the wrong spot' even though I only just knew there was a table there like 2 minutes before...

Production Update:

My director assumes that I can organize a whole cable layout for our theatre in less then a day.

They also assume that I can record audio in less then an hour. I'm gonna need at least ten minutes to set up everything :(

They also think that the tech team (me and one other person) can see in pitch black dark and somehow get the cues right on time. And no, we can't have flashlights because that would be "too distracting". (I just turned up the brightness on my phone homescreen and used it kind of like a glow stick)

One of our lights is broken but they don't understand why the lighting designer can't get a good wash. "It's not that hard", they say, not understanding technology. (We literally only have like 13 channels on our lighting console, so one out of commission effects everything)

*Gasp!* A Monty Python reference? In this day and age? Why, it must be the coming of destiny!

*Goes and stares at a pond for an hour to think about life*

It turns out strange women lying in ponds distributing swords is actually a great basis for a system of government.

aah its so hard not to the blue outlines are haunting me

yay a post about arthritis! thank you!

Seeing people say that arthritis isn't disabling in the year 2023 sure gives me some. . . not great feelings. Like yeah, cool, thanks for completely undermining the decade or so of horrible pain I've experienced, my gradual loss of mobility, the constant fatigue and confusion (because rheumatoid arthritis affects more than just your joints!), the ableism I've faced from everyone in my life, and the degradation of my fine motor skills as the pain in my fingers and wrists especially gets worse and worse.

Also the ageism in it. . . "My grandparent has arthritis, that doesn't make them disabled." Idk how to tell you this bud but pretty much every elderly person in the world is disabled in some way because bodies break down and start doing weird shit naturally. Sorry that you see aging and disability as inherently contradictory but it's not my fault that you're so determined to gatekeep the label of "disabled" from people that you can't show even a bit of compassion to people whose experiences are different from yours.

Anyway @ fellow arthritic people I know this sucks so fucking bad and that no one takes us seriously but I promise you are not alone ily 🪻

I don't check Tumblr for about 3 hours to play Minecraft and listen to show tunes & Kpop, and suddenly I'm followed by like 15 bots? Come on, Tumblr!

Thank you @anti-homophobia-cheese for the tag! This one is super fun!

Tagging @cha-melodius @zwiazdziarka @orchidscript @firenati0n @read-and-write- @gayrootvegetable @alasse9 @caterpills @xthelastknownsurvivorx @cultofsappho @love-has-a-way-ofgrowingbackward and anyone else that wants to play!