We need to recognize the collective trauma disabled people went through and are still going through with covid when everyone around us told us that our lives were less important than their convenience. That "only the sick and elderly will die so why should I do anything differently?"
I lost my faith in humanity at that point and I don't think I'll ever be able to get it back.
i be checking my phone like someone cares about me lol
doctors hate her! This woman is experiencing symptoms that might point to a health problem and wants doctors to do something about it
I think that it's really important for people to realize that being disabled is traumatic. genuinely. your body and brain feel like they are breaking down and wrong. you are in constant heavy stress from stuff like chronic pain. most disabled people i know have a somewhat regular emotional break down from the trauma of it all. and we are expected to just smile through it by society, to not be in the way, to not be an issue.
You don't owe anyone an explanation of your condition/disability, how or when it started, what meds you take, what tests you've undergone, or literally anything about your health!
It doesn't matter if it's a stranger, a friend, or a relative.
It's your life and you have a right to privacy.
Don't let them guilt you into answering invasive questions.
if i ever interacted with you and it was awkward just know im sorry and painfully aware that sometimes i come off like a person who is having the first conversation of their life
visibly disabled people will present others with the most basic and easy to understand request like “please don’t talk to me like I am a small child” and in response people will just start monologuing about how difficult and confusing this is for them and how they’re doing their best and how they need patience and understanding too and it’s so fucking tiring lol
me: ive been bedbound for six months
dr: have u tried getting up?
me:
dr: being upright is good for u to prevent deconditioning
me:
dr:
me: it was in fact the first thing i tried
yknow what i hate so much? when i technically Could do something that requires more spoons like reading or watching something that im not familiar with, but i know i Should give my brain a rest and read or watch the most mind-numbingly familiar and low spoons things i can find instead