Chronicstuff

PLEASE HELP A DISABLED PERSON

I had a fainting episode from my POTS. I have a broken nose, stitches on my nose and the inside and outside of my mouth, a concussion, a sprained neck, and an injured tooth and tailbone

My husband has to stay home with me, and we have so many bills including medical bills and medical supplies that we need to buy. If ANYONE can help, thank you so much.

you know as disabled people it's actually pretty scary that you can't trust your doctors. like people who have medical trauma or distrust or dislike doctors and nurses aren't doing it for fun. we need these guys to help with our lives. we need healthcare to stay alive or to stop from getting worse, or to function at all. but often when you're dismissed and not communicated with you're left floundering and often have to make decisions yourself without that specialist knowledge. sometimes doctors know less than you about your disability anyway. sometimes they're wrong and give you advice that's detrimental to what you need or want, and you kinda have to just trust that the next guy is also not wrong. i think we're pretty lucky if we can find other people with our condition who are well researched in it. but i still think that uncertainty is something that disabled people shouldn't have to navigate

How do people keep replying when friends ask how are you? I hate being so negative but often it's my reality like I couldn't do a lot of things today but I'm trying and nothing has changed!! I don't want to push them away by being the one who's always sick

if i ever interacted with you and it was awkward just know im sorry and painfully aware that sometimes i come off like a person who is having the first conversation of their life

Some people don’t want to hear this but sometimes accessibility is not sustainable or eco-friendly. Disabled people sometimes need straws, or pre-made meals in plastic containers, or single-use items. Just because you can work with your foods in their least processed and packaged form doesn’t mean everyone else can.

yknow what i hate so much? when i technically Could do something that requires more spoons like reading or watching something that im not familiar with, but i know i Should give my brain a rest and read or watch the most mind-numbingly familiar and low spoons things i can find instead

actually though medical trauma is often really glossed over in general discussions and depictions of disability. i always get the sense that fiction mis-attributes medical trauma to hating being disabled but like. even people who are perfectly fine with their disability can experience extensive and severe medical trauma. people who are diagnosed or undiagnosed. people who were born disabled or became disabled after birth. you have to submit yourself constantly to the whims of people with significant power over you! you're forced to consent to things that you might find invasive in order to access healthcare. if you're trying to access healthcare you have to expose your difficulties, sometimes pain, sometimes suffering up for someone else's dissection and perusal. and it feels like shit even when they don't dismiss you or berate you, or assault you, or gaslight you, or deny you healthcare. god help you if you're also trans or black or brown or can't speak the local language well or a number of other intersecting issues

We need to recognize the collective trauma disabled people went through and are still going through with covid when everyone around us told us that our lives were less important than their convenience. That "only the sick and elderly will die so why should I do anything differently?"

I lost my faith in humanity at that point and I don't think I'll ever be able to get it back.

People eventually get diagnosed BECAUSE they are already disabled and struggling. The symptoms don't appear AFTER the diagnosis. So don't expect everyone without a professional diagnosis to be basically fine. That makes no sense.

One of the most dangerous things in the world is not being able to say no to people because you don’t want to upset them or dissapoint them. This will completely ruin your life in every way possible, at work, in your private life, your sex life and your friendships. It’s a way of removing your own consent in your own decisions and go against your wishes, it is always a crime against yourself. Let yourself have a say. Upsetting people is better than traumatizing yourself.