"Electrodes Embedded In The Brains Of Four People Have Captured A Detailed And Precise Portrait Of Chronic

Okay but can we talk about Clovis? Everyone always talks about what was wrong with other characters or like Hazel and Piper’s eyes or how Nico was outed, and yes, we should absolutely talk about those things, but no ones ever mentioned this?  I’m always really upset about how his character was distilled down to “hahaha he sleeps a lot” and how it was used basically as a humorous thing. 

Basically, Clovis was a character whose entire personality was a his disability, and it’s entire use was a bit of expose and comic relief.

I have chronic fatigue, and there is NOTHING funny about it. Not just in a “don’t make fun of disabilities way”, but also in a “it is just such a shitty way to live and if you don’t know what’s happening yet it’s terrifying” 

When I was in sophomore year of high school, I developed hahsimoto’s, my endocrinologist, one of the top in the country, said I had “one of the worst cases she had ever seen”, for reference on the severity. I would wake up and go to school, often oversleeping and not getting to school until 10 or 11, sleep through the ride over, go to class, sleep through a lot of those, sleep through lunch, get home, immediately go to bed and often sleep through dinner and until the next morning. I could not stay awake. and I felt the fatigue through my whole body. Doing even the simplest tasks like walking ten feet or microwaving food exhausted me, and my thoughts were cloudy and forming comprehensive sentences was incredibly difficult. I had no idea what was going on at the time, and I was terrified.

I got diagnosed and put on synthroid, so it’s not so bad, but I also have EDS other issues, so chronic fatigue will always be a part of my life. It’s not nearly so bad anymore, but it’s still an obstacle I face everyday and is incredibly difficult, especially as part of an “invisible disability”, and having Rick Riordan use that as a joke is just really annoying. 

Also, can you imagine what it would have been like for him as a child? To have such incredibly sever chronic fatigue, it would have made it near impossible for him to do basically /anything/ as a child, and he probably had a ton of trouble in school - if he even made it to school. 

The biggest thing, though, is that he would have no idea why this was happening. He probably would have been shuttled from doctor to doctor, given test after test after test, none of them yielding any results. No one would know what was causing it, because it wasn’t due to anything medical, it was because of his dad. Can you imagine how hard that would have been? 

Chronic illness isn’t a joke. 

Housing is a privilege.

“Fewer than 5 percent of units have the features needed to accommodate a person with moderate mobility difficulties. The percentage of wheelchair-accessible units is even smaller; less than 1 percent of all units are equipped with features that would allow a wheelchair user to live independently.”

Marriage is a privilege.

“The [SSI] monthly maximum Federal amounts for 2023 are $914 for an eligible individual, $1,371 for an eligible individual with an eligible spouse.”

Minimum wage is a privilege.

“Section 14(c) of the Fair Labor Standards Act authorizes employers, after receiving a certificate from the Wage and Hour Division, to pay special minimum wages — wages less than the Federal minimum wage — to workers who have disabilities for the work being performed.”

We still need to fight for accessibility and equity for all disabled people.

Despite the ADA, equity is still out of reach.

Favorite LGBTQIA+ tumblr!

For sure would have to be @crimson-chains

I absolutely love all of their works and am always waiting. For them to update both on tumblr and their other accounts.

If you see this @crimson-chains, I want you to know that you bring so much joy into my life and are an absolutely amazing artist and storyteller, thank you for all you do!

I need to rant, feel free to ignore.

Ok so

Every year I go to camp

I have been going for 4-5 years but last year due to COVID the session got canceled.

This was devastating to me because this camp is my second home, it brings me the most joy a location can.

I was absolutely stoked that I would be able to go this summer with some adjustments for COVID.

Until I found out that this’ll be the last summer.

My camp is part of this bigger organization that does a lot for its communities since it’s start but has been really going through it over the span of COVID and because they simply can’t afford to function with all of there locations, there closing most of them, including my camp.

This is my last summer.

I’ll never get to be a LIT.

I’ll never get to finish raggers.

I’ll never get to see my counselors again.

The turmoil this brings me isn’t something I like to show, but I need to get it all out.

I’m sorry.

So I decided to draw them............

Okay but imagine

The Sander sides

As

The six queens

Like

Roman as Katherine of Aragon

Remus as Anne Boleyn

Patton as Jane

Janus as Anna of Cleves

Virgil as Kathrine Howard

And...

Logan as Cathrine Parr

That’s it that’s the whole post.

“Lilo and Stitch” 2002

Deleted Scene

Lilo plays a trick on the tourists.

So recently I’ve bee considering applying for a balance and mobility support/service dog, but I want a bit more information from people who actually have them and aren’t paid to give a good review

(It’s also alarmingly difficult to find organizations that train balance and mobility service dogs)

I understand the financial drain and the time you need to put in to make the team function properly. I understand that a service dog is considered a medical device and not a pet, but they still need love and support and breaks like all loving things should. I understand that given my allergies a poodle would be the best option but I could also push for a less common breed.

Does anyone have an info, tips or blogs to recommend?

I really want to be independent once I move out and I really think a balance and mobility support dog would be helpful.

If a cane helps you even just a tinyyyyy bit, you should still use the cane!