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Possible Ehlers Danlos - Blog Posts

1 year ago

So recently I’ve bee considering applying for a balance and mobility support/service dog, but I want a bit more information from people who actually have them and aren’t paid to give a good review

(It’s also alarmingly difficult to find organizations that train balance and mobility service dogs)

I understand the financial drain and the time you need to put in to make the team function properly. I understand that a service dog is considered a medical device and not a pet, but they still need love and support and breaks like all loving things should. I understand that given my allergies a poodle would be the best option but I could also push for a less common breed.

Does anyone have an info, tips or blogs to recommend?

I really want to be independent once I move out and I really think a balance and mobility support dog would be helpful.


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1 year ago

Just remembering the times I’ve actively been falling asleep in front of a doctor due to my chronic fatigue but then they still don’t do anything but tell me I need more sleep

Which isn’t unreasonable but I am a student. An AP GT student who falls asleep during class as well so I don’t get the notes or miss the lesson so I have to come in after school to get notes (or dig around the online classroom for the teachers that actually post their notes) and then have to teach myself the lesson.

Then I have to do the homework which is difficult for me to focus on (we think it’s undiagnosed adhd given other symptoms) and trying to complete the assignment takes a minimum of an hour. Give or take given exhaustion and falling asleep reading the questions, pain in my wrist, fingers, hands, etc, or having to do other things.

Then multiple by the four educational classes I’m in (thank god French doesn’t have homework)

I get as much sleep as I can

All this to say, I’m glad it’s summer and I’m glad I was finally diagnosed (maybe collegeboard will finally consider accommodating me)


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1 year ago

This is kinda weird but I’m trying to figure out how weird my ankles actually are. I have over-pronated ankles but high arches, which apparently is strange because flat feet cause over-probated ankles and high arches cause under-pronated.

Over-pronated ankles look like ) (

Under-pronated ankles look like ( )

And normal ankles are straight | |

Please reblog if you care to so I can get a larger sample! It would be much appreciated!


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2 years ago

I need the sleep that a cat gets and bonus of having warmth to soothe my joints? Hell yeah I’m sleeping on a warm surface

Pls reblog if u vote :)


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2 years ago

HAHAHHAHAHAHAHA

*falls asleep in stats class hunched over my desk, with four missing assignments due to doctors appointments, falling asleep and missing notes*

Saw a sign at my high school saying: “ Don’t quit when you’re tired, quit when you’re finished.” Hahahahahaha, not all of us have that luxury


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2 years ago

I solved my issue of joint pain after baking for about an hour!!! My mom finally let me get ankle braces after I had a very intense pain day. So I wore my ankle braces with my house crocs. I used to just wear crocs so my feet weren’t straight up on the tile, but crocs have zero arch support so my ankles would by over-pronating for over an hour with almost zero relief. But my ankles braces hold my arches up while supporting my ankles as well so they didn’t over-pronate. I for once was not in pain when I was finished baking!!!

Total win!!!


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