Me but my body won't let me nap 。・゚・(ノД`)・゚・。
can the doctor prescribe me for five naps a day, mandatory
Just sending a message to say ‘hi’! And to say I totally get your frustration over “normal” lab results. All my labs have been normal and yet here I am, symptomatic! 🫠
Hello! Just because your lab results came back normal does NOT mean you are invalid and that there is nothing causing them.
I learned after going to the hospital yesterday (forgot I did that yesterday what fuck…) that I most definitely have POTS. I have slightly low sodium and heart palpitations. I have all the symptoms of it. When I treat my body like I have POTS it feels better
What I do to help:
The biggest fucking container of water CHUG IT
Salt, and I mean a lot
Compression socks are a gift from above
AND GET A TILT TEST DONE (I hope to do mine soon)
good luck with a second cardiologist appointment. I have only done the nasa lean test but got a diagnosis of pots through it. the instructions tell you to avoid excess salt and water 12-24 hours beforehand.
don't do this but i will also avoid taking painkillers before going to a doctor so that i will be crabby and exhausted and sore because i look fine when i'm coping
Its weird I made the same post about purposely making my symptoms worse on Reddit and it got taken down. You're not really supposed to talk about that. Its understandable but idk how else to get my doctors to take me seriously. And thank you! I hope it goes well too apparently they're a really good doctor
Happy birthday to meee!!!!! Introducing my walker named Susie, throne on wheels
THANK YOU TO EVERYONE WHO DONATED TO MY GO FUND ME TO GET MY WALKER
Psst… HEY
If you are also queer, disabled, and/or have chronic pain, and wanna see art and other content about it, then feel free to follow my youtube ;))
I've been making shorts, and hopefully filming a full video when I have the energy!
One of my videos (´ . .̫ . `)
WORK IN PROGRESS
Represents my chest pain and rapid heart rate
Can you believe I used to NEVER wear black? I only dressed in rainbows for 6 years. Then on day I decided to dress like this:
Growing up is crazy
I love the colors!! I've seen scribble art where its a portrait not sure how they do that but it's pretty cool :))
I'm trying to create amore positive and content place for disabled and chronically ill people. I see so many negative posts about being chronically and they can really put me down. I wanna change that
I'd love to ask the question, what are you grateful for?
Now, I know this can be SO hard to answer especially when you're chronically ill. But I really want you to try and think of at least one thing. It could be something really small. Or even a list!
I'll go first: I'm grateful for my ability to create art, my mobility aids, and my chosen family.
YOUR TURN!
CHECK THE DATE GUYS!!!! TODAY IS THE DAY!!!!