Psst… HEY
If you are also queer, disabled, and/or have chronic pain, and wanna see art and other content about it, then feel free to follow my youtube ;))
I've been making shorts, and hopefully filming a full video when I have the energy!
One of my videos (´ . .̫ . `)
Just had to pay a thousand dollars of medical debt…
I spent a third of my savings, I can’t get a job because of my disability. I haven’t gotten a diagnosis. And if i want a diagnosis I gotta keep fucking pay off medical debt. And no getting paid disability till I get a diagnosis. THE AMERICAN HEALTH CARE IS ABSOLUTELY FUCKED
People act like we CHOSE to be disabled. That we CHOSE to not be able to hold a job, or not be able to take care of ourselves.
All I gotta say at this point is
I am NOT cured, I repeat I AM NOT CURED 😭😭
Guys.. I was able to take a short walk and go up the stairs easier. I think I might be cured from chronic illness 🤭
Call me a gymnast cause I am jumping through hoops trying to get a diagnosis
Love this response! I haven't been able to shower cause of my back and leg pain, but I'm so so glad you were able to :) I'm so grateful for my partner too! We love understanding and patient relationships. We've been together 1 year now and I can't wait for year 9!
I'm trying to create amore positive and content place for disabled and chronically ill people. I see so many negative posts about being chronically and they can really put me down. I wanna change that
I'd love to ask the question, what are you grateful for?
Now, I know this can be SO hard to answer especially when you're chronically ill. But I really want you to try and think of at least one thing. It could be something really small. Or even a list!
I'll go first: I'm grateful for my ability to create art, my mobility aids, and my chosen family.
YOUR TURN!
CHECK THE DATE GUYS!!!! TODAY IS THE DAY!!!!
Thanks so much for your feedback! And that sounds really calming :) I encourage you to do it more often. In my settings, I'm able to put my phone on "Down Time" which allows access to only a few apps. I'm not sure what phone you have (I have Apple), but you could try that!
I did what I like to call a "digital detox" by limiting 90% of the apps I could use on my phone, especially social media. I do this because I find so much negativity in the community. Trust me when I say I know being chronically is hard. But there is no reason any of us need a 24/7 reminder of it.
I also find it difficult when I'm stuck at home for a good majority of my days, with no work, it's hard to keep myseld entertained all day. I end up relying on my phone and I get incredibly sad in the process.
As some of you may know if you watch my YouTube, I was off social media for 7 months. I found it beneficial. While I'm ready to be back on social media, I needed a break
So I only used my phone to film my journey, listened, to music, and text two people. My time spent on my phone was half of what it usually was (really just using the camera app.)
Would you be interested in me uploading to my YouTube channel my journey of a digital detox while living with a chronic illness? Should I do this more often? Would you consider doing this?
Me but my body won't let me nap 。・゚・(ノД`)・゚・。
can the doctor prescribe me for five naps a day, mandatory