Thanks So Much For Your Feedback! And That Sounds Really Calming :) I Encourage You To Do It More Often.

Digital Detox Helping With Chronic Illness

I did what I like to call a "digital detox" by limiting 90% of the apps I could use on my phone, especially social media. I do this because I find so much negativity in the community. Trust me when I say I know being chronically is hard. But there is no reason any of us need a 24/7 reminder of it.

I also find it difficult when I'm stuck at home for a good majority of my days, with no work, it's hard to keep myseld entertained all day. I end up relying on my phone and I get incredibly sad in the process.

As some of you may know if you watch my YouTube, I was off social media for 7 months. I found it beneficial. While I'm ready to be back on social media, I needed a break

So I only used my phone to film my journey, listened, to music, and text two people. My time spent on my phone was half of what it usually was (really just using the camera app.)

Would you be interested in me uploading to my YouTube channel my journey of a digital detox while living with a chronic illness? Should I do this more often? Would you consider doing this?

good luck with a second cardiologist appointment. I have only done the nasa lean test but got a diagnosis of pots through it. the instructions tell you to avoid excess salt and water 12-24 hours beforehand.

don't do this but i will also avoid taking painkillers before going to a doctor so that i will be crabby and exhausted and sore because i look fine when i'm coping

Its weird I made the same post about purposely making my symptoms worse on Reddit and it got taken down. You're not really supposed to talk about that. Its understandable but idk how else to get my doctors to take me seriously. And thank you! I hope it goes well too apparently they're a really good doctor

For the love of god I am CHUGGING electrolytes why do I feel horrible still

ROUGH DRAFTS

Rough drafts of art I hope to make into stickers and prints. The insparation is beams of light, chronic pain, love, and hope. I want a contrasting primary colors of midnight blue, blinding white, bright red, and shining yellow

Top drawing: representation of my heart palpitations

Bottom left: migraines so bad you feel like an egg being cracked open

Bottom right: my girlfriend is a beam of light in the life of chronic pain and illness

I thought exercise would cure me so I did one sit up. My back hurts. Everyone is telling me to exercise, even my doctor. I’m trying. Will it actually help???

CHECK THE DATE GUYS!!!! TODAY IS THE DAY!!!!

MY WALKER IS ARRIVING THE DAY BEFORE MY BIRTHDAY 🎂

I am absolutely PISSED

I am homeless, disabled, and trying to find housing. I don't qualify since I don't have a I have no income. I asked my social worker about finding housing if my gf lives with me but she doesn't make enough. I asked about getting disability once I receive a proper diagnosis, and I got a MAYBE. Not to mention, I'm so appalled after learning how much disabled people earn in one month. The government wants you to be homeless when you're disabled, and then punsihes you for it.

My gf bringing me water so I don't have to struggle up and down the stairs 💖

New to pots? Need some advice on managing symptons? Stay posted for my new vid coming out May 13 at 6:00 Eastern Time

Love this response! I haven't been able to shower cause of my back and leg pain, but I'm so so glad you were able to :) I'm so grateful for my partner too! We love understanding and patient relationships. We've been together 1 year now and I can't wait for year 9!

I'm trying to create amore positive and content place for disabled and chronically ill people. I see so many negative posts about being chronically and they can really put me down. I wanna change that

I'd love to ask the question, what are you grateful for?

Now, I know this can be SO hard to answer especially when you're chronically ill. But I really want you to try and think of at least one thing. It could be something really small. Or even a list!

I'll go first: I'm grateful for my ability to create art, my mobility aids, and my chosen family.

YOUR TURN!