New To Pots? Need Some Advice On Managing Symptons? Stay Posted For My New Vid Coming Out May 13 At 6:00

Me: Before getting really sick I could easily go to bed around 9:30. Can I still do that? (´ . .̫ . `)

Body: Oh god no! You're staying up till 1 am without choice.

Me: Well at least I can sleep in-

Body: WAKE THE FUCK UP ITS 5 AM AND WE JUST HAD A NIGHTMARE

┻━┻ ︵ヽ(`Д´)ﾉ︵ ┻━┻

For the love of god I am CHUGGING electrolytes why do I feel horrible still

in trouble financially once again. please help two poor trannies keep food on the table this month.

And if you can believe it, I am e-begging once again. bills are all paid but we have no money to pay for food until my food stamps come in two weeks from now. anything helps and anything means the world.

venmo/paypal/cashapp : snowycrone

HAPPY CHRONIC ILLNESS NEWS

Im so excited to say that after two months of having days that were an absolute roller coaster, I finally had a good day. A true good one. I don't mean my usual days where there is a sprinkle of good in a scoop of bad ice cream.

I usually spend my days doom scrolling, bored, and napping.

But my therapist and I came up with a plan to write down everything I do. This way I can create a schedule. I filled my day with low effort activities and rested. I drew, colored, did my makeup, did a graditude list, meditated. I'm so happy to prove to myself I in fact CAN have good days despite my illness

I wish everyone a good day with lots of rest

Would anyone want a video on how I went from dressing in decora kei to, this?

Lol idk what to call my current style. I just do what I want

Last birthday post!

Thanks so much for your feedback! And that sounds really calming :) I encourage you to do it more often. In my settings, I'm able to put my phone on "Down Time" which allows access to only a few apps. I'm not sure what phone you have (I have Apple), but you could try that!

Digital Detox Helpung With Chronic Illness

I did what I like to call a "digital detox" by limiting 90% of the apps I could use on my phone, especially social media. I do this because I find so much negativity in the community. Trust me when I say I know being chronically is hard. But there is no reason any of us need a 24/7 reminder of it.

I also find it difficult when I'm stuck at home for a good majority of my days, with no work, it's hard to keep myseld entertained all day. I end up relying on my phone and I get incredibly sad in the process.

As some of you may know if you watch my YouTube, I was off social media for 7 months. I found it beneficial. While I'm ready to be back on social media, I needed a break

So I only used my phone to film my journey, listened, to music, and text two people. My time spent on my phone was half of what it usually was (really just using the camera app.)

Would you be interested in me uploading to my YouTube channel my journey of a digital detox while living with a chronic illness? Should I do this more often? Would you consider doing this?

Guys.. I was able to take a short walk and go up the stairs easier. I think I might be cured from chronic illness 🤭

Love this response! I haven't been able to shower cause of my back and leg pain, but I'm so so glad you were able to :) I'm so grateful for my partner too! We love understanding and patient relationships. We've been together 1 year now and I can't wait for year 9!

I'm trying to create amore positive and content place for disabled and chronically ill people. I see so many negative posts about being chronically and they can really put me down. I wanna change that

I'd love to ask the question, what are you grateful for?

Now, I know this can be SO hard to answer especially when you're chronically ill. But I really want you to try and think of at least one thing. It could be something really small. Or even a list!

I'll go first: I'm grateful for my ability to create art, my mobility aids, and my chosen family.

YOUR TURN!

Such a cute idea!

Showing off the friend I crocheted for my cane, his name is Rio (yes, Arcane reference). I've had him for a while but I love him.

The pink rose pattern cane was not my choice initially, it was just what was available to me at the time, but it has grown on me :)