Me: Before Getting Really Sick I Could Easily Go To Bed Around 9:30. Can I Still Do That? (´ . .̫ .

gentle check in for my fellow POTSies. does your body feel:

heavy

weak

shakey

sweaty

or generally overwhelmed?

if yes, here's a little reminder to hydrate, get in some electrolytes, take ur meds if you forgot, and adjust your positioning if you can! sit down, lay down, stretch your legs, elevate your legs, etc. if you've been in one position too long, you may find a little bit of movement to help.

i know for me even sitting upright too long can exhaust me and i dont realize until im out of sitting up spoons. i just did that today now, after some wandering around the house, im having my Horizontal Time (bed). after this i'll likely take a 5 minute walk.

there's no shame in needing rest. there's no shame in needing a break from something to go stretch or get water/food. there's no shame in only being able to do very light exercise. it's okay to listen to your body and do whatever is best for you!

I am absolutely PISSED

I am homeless, disabled, and trying to find housing. I don't qualify since I don't have a I have no income. I asked my social worker about finding housing if my gf lives with me but she doesn't make enough. I asked about getting disability once I receive a proper diagnosis, and I got a MAYBE. Not to mention, I'm so appalled after learning how much disabled people earn in one month. The government wants you to be homeless when you're disabled, and then punsihes you for it.

My gf bringing me water so I don't have to struggle up and down the stairs 💖

I thought exercise would cure me so I did one sit up. My back hurts. Everyone is telling me to exercise, even my doctor. I’m trying. Will it actually help???

Guys.. I was able to take a short walk and go up the stairs easier. I think I might be cured from chronic illness 🤭

TW- my inspiration for the art piece is rather sad

A young angel, drowning. Their wings wet, and they can’t fly to safety, snd they can’t call for help. Losing your innocence so young is so difficult, but you’re not alone. You have many supporting you, including me

Say it with me! Wheelchairs aren’t sad! Mobility aids aren’t sad! Mobility aids are instruments of freedom!

I'm trying to create a more positive and content place for disabled and chronically ill people. I see so many negative posts about being chronically ill and they can really put me down. I wanna change that

I'd love to ask the question, what are you grateful for?

Now, I know this can be SO hard to answer especially when you're chronically ill. But I really want you to try and think of at least one thing. It could be something really small. Or even a list!

I'll go first: I'm grateful for my ability to create art, my mobility aids, and my chosen family.

YOUR TURN!

HAPPY CHRONIC ILLNESS NEWS

Im so excited to say that after two months of having days that were an absolute roller coaster, I finally had a good day. A true good one. I don't mean my usual days where there is a sprinkle of good in a scoop of bad ice cream.

I usually spend my days doom scrolling, bored, and napping.

But my therapist and I came up with a plan to write down everything I do. This way I can create a schedule. I filled my day with low effort activities and rested. I drew, colored, did my makeup, did a graditude list, meditated. I'm so happy to prove to myself I in fact CAN have good days despite my illness

I wish everyone a good day with lots of rest