Guys.. I was able to take a short walk and go up the stairs easier. I think I might be cured from chronic illness 🤭
Let’s make my girlfriend into, a beam of light. She has been a shiny ray of hope for me through these hard times. Chronically, ill and disabled she has left me taking care of me, loving me, no matter what.
That's amazing! My cane is pink and my walker is purple and I'm so happy I get to chose. I'm glad you feel powerful with physical therapy, cause you should! And plushies are the absolute best \ (•◡•) /
I'm trying to create amore positive and content place for disabled and chronically ill people. I see so many negative posts about being chronically and they can really put me down. I wanna change that
I'd love to ask the question, what are you grateful for?
Now, I know this can be SO hard to answer especially when you're chronically ill. But I really want you to try and think of at least one thing. It could be something really small. Or even a list!
I'll go first: I'm grateful for my ability to create art, my mobility aids, and my chosen family.
YOUR TURN!
Self portrait in crayon 🖍️
Me: Before getting really sick I could easily go to bed around 9:30. Can I still do that? (´ . .̫ . `)
Body: Oh god no! You're staying up till 1 am without choice.
Me: Well at least I can sleep in-
Body: WAKE THE FUCK UP ITS 5 AM AND WE JUST HAD A NIGHTMARE
┻━┻ ︵ヽ(`Д´)ノ︵ ┻━┻
Just sending a message to say ‘hi’! And to say I totally get your frustration over “normal” lab results. All my labs have been normal and yet here I am, symptomatic! 🫠
Hello! Just because your lab results came back normal does NOT mean you are invalid and that there is nothing causing them.
I learned after going to the hospital yesterday (forgot I did that yesterday what fuck…) that I most definitely have POTS. I have slightly low sodium and heart palpitations. I have all the symptoms of it. When I treat my body like I have POTS it feels better
What I do to help:
The biggest fucking container of water CHUG IT
Salt, and I mean a lot
Compression socks are a gift from above
AND GET A TILT TEST DONE (I hope to do mine soon)
Hehe thank you... I uh.... Sorts have a collection
I'm not at all saying people can't vent or complain about being disabled and chronically ill. I do it all the time. What we go through is beyond difficult
But I'm on my phone a lot cause I don't have the spoons for anything else. I'm always seeing posts about how horrible it is to be chronically ill. It's constant reminder. Its like picking at a wound never meant to heal in the first place. Sometimes I see more positive posts, but they are few and far between. I should make an effort to post some more positive content.
Rough drafts of art I hope to make into stickers and prints. The insparation is beams of light, chronic pain, love, and hope. I want a contrasting primary colors of midnight blue, blinding white, bright red, and shining yellow
Top drawing: representation of my heart palpitations
Bottom left: migraines so bad you feel like an egg being cracked open
Bottom right: my girlfriend is a beam of light in the life of chronic pain and illness
Call me a gymnast cause I am jumping through hoops trying to get a diagnosis