Losing Yourself In World Events Is Extremely Easy Right Now. Reminder That Its Okay To Take A Step Back

I hate that there's no way to be disabled that people will accept.

If you show joy, or acceptance in your disability, you're not really disabled and no one will take you seriously when you do complain and well it can't be that bad and oh I'm sure you're used to it.

But if you're miserable then you're whiny and annoying and people hate that it's "all you talk about" and its always ugh you're always tired and can we please stop talking about this it's making me depressed and oh I'd kill myself if that happen to me.

If you're happy you have everything figured out and don't need help anyway but if you're miserable you're a whiny bitch that can't just suck it up. There's no winning

i LOVE lizzies relationships with her parents she loves them so much.

Fact #29:

Lizzie Hearts has a close relationship with her father.

Source: The Book.

getting the cancer response is particularly funny for me.

i had cancer. thats what made me chronically ill.

telling people that seems to blow their minds.

theyre like no but cancer is the worst and you dont have that now but you had it before so youve had both cancer and being chronically ill but like cancer is worse and-

they dont know what to do with that. they tried to make a smart comment and it failed miserably. its funny to me. (i have to laugh or ill cry)

Telling a chronically ill person "at least its not cancer"

Or someone who's disabled due to a tragic accident "it could've been worse it could've disabled you more"

Or anything along the lines of "you could be dead or more disabled be greatful" I hope you rot in a hole where everyone you ever loved forgets you ever existed and you have to sit with that like in coco where you disappear when you're forgotten because that is so insanely rude and even more disgusting and if you don't know how to talk about disabilities without trying to "look on the bright side" or try and cheer people up about it maybe you shouldn't talk about them because some disabilities just are and they're always going to be and there's nothing anyone can do about it

And if someone is dying from their condition but its taking years instead of being fast like tv and stuff portrays it pls for the love of God don't tell them they "aren't dying fast enough" or "weren't you dying last year"

This post is specifically in reference to all the horrible comments able bodied people leave on disabled ppls social media's where the person shares their experiences

Shout out to people who use adult diapers

Shout out to people who have chronic UTI

Shout out to people who have catheters

Shout out to people who have urostomys

Shout out to people who still wet the bed

Shout out to people with kidney scarring

Shout out to people who deal with kidney stones

Shout out to people with kidney cancer

Shout out to people with kidney failure

Shout out to people who I didn’t mention but still have kidney/urinary tract issues

I love you, I know it sucks, the judgement sucks, the symptoms suck. You’re not gross, it’s okay to talk about it. Your suffering isn’t taboo, never let anyone treat you like it is.

I know I'm shouting into the void with this one but like. Genuinely so many low support needs people dont understand what it's like having even medium support needs. Like I am entirely dependent on other people for many of my needs. I can not see a doctor without someone else scheduling the appointment, taking me there and doing a large amount of the communication for me.

If my caretaker had not been accepting of me being trans and invested hundreds of hours into psych appointments and taking me to my endocrinologist and doing all the paperwork involved with my name change and literally taking a week off work to stay with me in the hospital for surgery etc i would have just like. Never transitioned. My ability to transition was entirely dependent on a singular person and that's what a lot of other parts of my life are like as well. and that's fucking terrifying and a great way to be neglected and abused in ways that are horribly hard to get away from.

I dont drive, I dont work, I struggle to leave the house at all, I dont fucking communicate with people majority of the time. The things that are hard for you? I probably can not do them to begin with. No one in my family lives even close to a comparable life to me. None of my irl friends do. I'm incredibly isolated.

And then I go online and see people rant about how easy MSN and HSN people have it because we just get everything we need and how because people can tell we are disabled everything is so easy because none of you even manage to listen to us talk about the neglect and abuse and trauma we face/d. I see people angry at their (more) disabled siblings for getting care they need to survive instead of mad at society for creating a system where its incredibly hard for families to take care of both a higher support needs child and another child.

And I see people who live completely independent lives who work and drive and make their own doctors appointments and grocery shop and travel by themselves call themselves MSN (I could go on a rant about how that's also often the fault of LSN influencers for not leaving a lot of room in their own community for legitimate struggle but that's for another day).

I just want my needs met. I want to be able to decide where I live. I want choice in my care. I want to be able to have community with those like me. I want others to realize I exist and leave the words i have to describe my existence alone. I want others to listen to what I have to say about what my life is like.

Winx Pixix

helps pixies and fairies unite through their powers

Autism Speaks Canada is "concluding its operations" on January 31st 2025!

i have such a complicated relationship with the word “goals.”

i grew up constantly being asked what my goals or ambitions are for my life. i had answers when i was younger, id come up with different jobs all the time.

but as i got older - and sicker, i found it increasingly hard to feel encouraged by having goals.

it felt more like a weight that i wasnt able to carry, like i was carrying a massive burden on my back with everything going on in my life, and then i was expected to pretend like that burden wasnt there, and to jump up as high as everyone else who didnt have that burden.

as i continued to get sicker (to the point i had to leave school early) the questions of goals never stopped, and that was deeply confusing for me.

my goal was take care of myself, that was it. but that never seemed to be enough for people.

i would answer saying “im just trying to take care or myself and heal at the moment.” and they would ask me again, “but what are your life and career goals?”

why is taking care of myself not a good enough goal?

so now as i am in less of a crisis stage of life, im starting to open myself up to more “career and life goals.”

but thinking of goals is incredibly hard now.. i find myself feeling sick with anxiety thinking about even simple goals.. and i think im just really terrified of “failing” again and having to quit like i did with school.

i also feel like i have spent many years now trying to gain a healthy relationship with rest, with healing, with not being what society deems as “productive,” that i feel a bit uneasy about returning to more “productive” goals.

i dont want to lose what ive learnt over my time healing, i dont want to pressure myself too much to go back to being a “productive member of society.”

there are things i want to achieve in my life, of course there are. i dont lack motivation, in fact i have a really hard time having enough time and energy to do all the things im really eager to do.

its just that i have such a complicated relationship and past with the normal path that society wants people to take in life, im scared of losing myself, and failing in re-engaging in such things.

how do other chronically ill/disabled people answer the “what do you do for a living/are you at university/do you travel” type of questions when you cant do any of those at the moment 😭

i feel so pathetic and stupid being like.. ermm i do none..! i just.. yk.. try to keep myself alive