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I've used a wheelchair for about a week now and I was soo nervous about it. But it's honestly been great, despite the minor accidents. I've gotten both thumbs stuck between the tire and the fender sideguard.. and I've tipped backwards onto the ground. But the worst part about that was that my open drink spilled everywhere:(
It feels easy, natural, amazing to just be able to move so freely with a lot less pain than before. I'm gonna be really sad, when I have to give it back.
Seeking advice: new wheelchair user
I will be using a wheelchair semi-regularly the next month to see if it will help reduce pain flare-ups / baseline pain and to figure out if it's helpful for me.
Tomorrow is the first day and I am going to uni and therapy. I have only used a wheelchair a couple of times but I'm comfortable with folding it and such as my dad's disabled and it's his wheelchair I'm borrowing. In theory I know how to maneuver around but I'm nervous about it.
Do any wheelchair-users have tips/advice for new wheelchair-users?
Extra info: it's a foldable wheelchair, brand is Quickie. I'm nervous about tipping backwards (no anti-tip), going up and down curbs, taking the metro, painful hands/arms/shoulders.
I recently started using a cane everyday and so my previously invisible disability is suddenly visible. I also started medschool. It's been a while since I was properly social so I have questions...
People don't walk next to me. And if they accidentally do, they leave to walk next to someone else even if that means squeezing in three people on the sidewalk. No one talks to me if it's not to ask me "what's wrong". I have really tried to make an effort and talk to people but I don't know what to do.
Can it have something to do with my disability and my cane? Like they're scared to say the wrong thing? Or maybe it's because they've sensed the autism?;)
I recently went on a touristy vacation where I knew we were going to be walking a lot so I brought the cane I have with me. Mind you it was a 3ish week long vacation in a foreign country. I had bought a cane maybe a year before even though my doctor didn't think I needed it because "you could just sit down or not walk for long distances instead" and "you're too young to use a cane". So naturally I ignored her and followed my disabled friend's advice instead and bought a cane. But I barely used it because I got in my own head about not reaaally needing it and other internalised ableism stuff. Also people staring didn't help.
Fast forward to the vacation where I used it religiously. And it helped soo much! I noticed I could walk farther and walk for more days in a row, because my pain levels were lower. It helped so much that I could no longer justify not using it to myself.
Now it's 6 weeks later and I use my cane everyday.
I've been considering shaving my head because of the pain. It's still constant and my hair makes it worse. Is it stupid? Will I regret it? Will I feel like I'm "giving in" to the pain? Does that even make sense? I'm tired of feeling like I have no control over the pain. And this feels like a way I can maybe at least not hurt myself more and gain a little control back? I don't know. I'm tired
It's so frustrating that my neurologist is so clearly in over his head. To my face he's denying that there's any uncertainty in the diagnosis he has given me and is blaming anything that doesn't fit on my mental health. But on paper he has gone back and forth between two diagnosises for months now. He is switching between the two every time he writes in my medical chart and when I ask him about it he denies that he's unsure. I can't fucking wait to start af the headache clinic
I've been dealing with some of the worst pain of my life for the past 6 ish months. Knowing it could have been avoided if my pain doc had not decided to stop one of my medications is bittersweet. If she had only listened when I told her the pain was worse. But she didn't care. She simply told me to try not to think about it. I should have fought harder but I was so exhausted and dissociated. I've finally started treatment for it again, I just hope it works fast. I'm so tired...
Can't believe it took me 8 years to realise that the random pain I get in half of my face for a couple of days to a week every other month is a migraine...
I always thought it didn't matter bc it's not every day like my fibro pain
My chronic pain has gotten worse every winter for the past 4ish years. And not just a flare up that goes away again but permanently worse. And I don't know if it's simply a coincidence that it happens every winter but I'm so nervous and scared because it's getting cold again.