Chronicstuff

Disabled people are not obligated to do everything that a non-disabled person can do. Stop treating us as though our bodies are the same. What you do normally can be detrimental and dangerous to us.

People eventually get diagnosed BECAUSE they are already disabled and struggling. The symptoms don't appear AFTER the diagnosis. So don't expect everyone without a professional diagnosis to be basically fine. That makes no sense.

Doctor calls you with your bloodwork results and just says “I’m really mad at you” and then hangs up

How do people keep replying when friends ask how are you? I hate being so negative but often it's my reality like I couldn't do a lot of things today but I'm trying and nothing has changed!! I don't want to push them away by being the one who's always sick

Had an appointment with my neurologist today. Guess who went there with a stupid spark of hope to be taken seriosly this time and ended up crying ugly in the parking lot 🙃🙃

Why why why do medical professionals so insistently push people with chronic pain to “just push through it.”

I’m in a flare right now and my left hip has been hurting no stop for almost three weeks. My physical therapist knows this and I reminded her last time I saw her. So tell me why she proceeded to have me do a bunch of jumping exercises landing with all my weight on my left leg.

I told her the exercises were hurting a lot and she told me to just work through it. Well it’s been half a week and ever since that appointment my hip has hurt even more than before.

If you've ever told a person who's had to be bedbound for a period of time that you wish you could "just stay in bed", DO IT.

Stay in bed. For days. But don't get up if someone needs you to, or you get bored, or you get antsy. Don't do anything other than rest. Just lie in your bed, whether you need to get stuff done around the house or socialize or anything else "productive". You'll have to cancel on people, you'll disappoint them, they won't understand.

And if you're thinking, "well, i CAN'T just be in bed. There's stuff that has to be done - I have plans", maybe ask yourself why you assumed a disabled person doesn't have plans or things to do or desires.

shoutout to the people who desperately want to move out but can't because they have medium/high support needs, and their family is the only people they have to rely on. especially since autistic and disabled adults are much more likely to suffer from loneliness. i hope you get what you need soon.

different than what I usually post but I'm mentally so so tired and in a ranting mood lol

able bodied people doing things that aren't ideal for their health is so normalized, but when disabled people do it it's wrong or worse somehow?? are disabled people not allowed to be human sometimes??? "isn't that bad for XYZ?" "didn't you say you shouldn't XYZ?" "i thought people with XYZ shouldn't-" I'M AWARE!! I DID NOT ASK!! im not a toddler that you have to remind to eat their veggies or not to stand too close to the tv, im a grown ass adult. ive been living with my disability and chronic illnesses as long as i can remember. sometimes i don't wear my braces when i should, or drink more alcohol than i should, or have caffeine, or do things that I KNOW could trigger flares or seizure or some other issue my body feels like being a bitch about. im fucking human. im allowed to do things that make me happy even if it's not the best for me, just like anyone else. let me live, christ.

Some people don’t want to hear this but sometimes accessibility is not sustainable or eco-friendly. Disabled people sometimes need straws, or pre-made meals in plastic containers, or single-use items. Just because you can work with your foods in their least processed and packaged form doesn’t mean everyone else can.