Basically, Not All Of Us People With Eds Are Hypermobile, And We Shouldnt Reduce Ehlers Danlos To Just

basically, not all of us people with eds are hypermobile, and we shouldnt reduce ehlers danlos to just being hypermobile with stretchy skin.

I have hEDS, the most common type of EDS, where you do get hypermobility, but even hEDS is more than that.

i really wish that ehlers-danlos syndrome wasn't basically just thought of as the "bendy" disorder. firstly, there are more than 13 types of eds, and they all have varying relations to and degrees of hypermobility. secondly, eds are a collection of congenital connective tissue disorders - connective tissue makes up a vast majority of your body and, because of this, eds, hsd, and other congenital connective tissue disorders like loey-dietz, marfans, stickler syndrome, and osteogenesis imperfecta are multi systemic.

having eds or another connective tissue disorder is SO much more than just some flexibility and it's especially frustrated that they're often thought of solely in relation to that one aspect of them because it leads a lot of people down the path of misdiagnosis.

as an advocate and educator regarding ctds and especially eds, i have spoken to SO many people who simply wrote the possibility of them having a ctd like ehlers-danlos off simply because they aren't flexible. it's such a dangerous misconception and really frustrating to see especially given the fact that the muscles of hypermobile people often overcompensate to make up for joint laxity, which can actually lead to a lack of flexibility/high tone/spasticity

so yeah, tl;dr: if you have a bunch of multisystemic symptoms that seem largely unconnected, look into connective tissue disorders. they're much more common than people think, frequently go under the radar, and can really wreck havoc on your body - ESPECIALLY when you aren't aware that you have one

More Posts from I-appel-du-vide and Others

2 weeks ago

Hello 👋🏻, I am from Gaza, Palestine 🍉🇵🇸 I am 41 years old, a mother of four children.My son Fayek Al-Kabir is my first joy and he is 21 years old.He is not happy with his university success, and my daughter here is the beautiful rose 🌹Her dream is to become an engineer.My daughter Layan is 13 years old.My daughter hurts more and more every day.The closure of the crossings affects her illness a lot because she needs An urgent operation to save her from destroying her health.

Hello 👋🏻, I Am From Gaza, Palestine 🍉🇵🇸 I Am 41 Years Old, A Mother Of Four Children.My
Hello 👋🏻, I Am From Gaza, Palestine 🍉🇵🇸 I Am 41 Years Old, A Mother Of Four Children.My

My son Ahmed is 10 years old, and he is the humor of the house.The occupation destroyed our house, which is full of beautiful memories.

I am talking to you with my heart heavy and sad because I am unable to provide the basic requirements of life for my children.I am responsible for them and for providing the simplest necessities of life, such as food, drink, clothes, and housing.The occupation destroyed everything.

My children and I have been honored more than once, from one tent to another and from one place to another, in difficult circumstances very 🥺

Hello 👋🏻, I Am From Gaza, Palestine 🍉🇵🇸 I Am 41 Years Old, A Mother Of Four Children.My
Hello 👋🏻, I Am From Gaza, Palestine 🍉🇵🇸 I Am 41 Years Old, A Mother Of Four Children.My
Hello 👋🏻, I Am From Gaza, Palestine 🍉🇵🇸 I Am 41 Years Old, A Mother Of Four Children.My
Hello 👋🏻, I Am From Gaza, Palestine 🍉🇵🇸 I Am 41 Years Old, A Mother Of Four Children.My

Closing the crossings on Gaza has made life more difficult.Food supplies are expensive.I ask you to help me provide food for my children, and to buy treatment for my daughter, Layan, to keep them alive ,I ask you to help and share my story on social media.Every donation children, and to buy treat contributes to my children’s survival

All thanks, gratitude and love to you 🌹🙏

Please help the child layan to travel and urgent treatment
Chuffed
My name is Mohamed and im raising funds for my niece with the permetion of her mother - my sister. 

Tags
2 weeks ago

Hello my friend, my name is Jaafar from North Gaza, I am 24 years old, and finally after waiting for a whole year of killing, displacement, hunger, massacres and genocide against us, the time for a ceasefire has come, thank God we are still alive after all the exhaustion, and during the next week we will return to our homes in North Gaza, which was completely destroyed, unfortunately our area was completely and brutally destroyed and we have nothing left, neither a home, nor property, nor furniture, nor clothes, nor any other clothes, I know that returning to the north will be very painful and difficult due to the lack of the necessities of life, and we will start building our lives from scratch, but we are happy for the war to end.

Hello My Friend, My Name Is Jaafar From North Gaza, I Am 24 Years Old, And Finally After Waiting For
Hello My Friend, My Name Is Jaafar From North Gaza, I Am 24 Years Old, And Finally After Waiting For
Hello My Friend, My Name Is Jaafar From North Gaza, I Am 24 Years Old, And Finally After Waiting For
Hello My Friend, My Name Is Jaafar From North Gaza, I Am 24 Years Old, And Finally After Waiting For

Please 🙏, donate to my campaign to save my family, even a small amount will help us stabilize ourselves a little, and buy some supplies 🥹, I hope that God will protect your family and friends, thank you 🥰🩵

✅️Vetted by @gazavetters, my number verified on the list is ( #299 )✅️

Help Jaafar Support His Family
Chuffed
Hi, my name is Elizabeth Barnes and I am a US citizen organizing this fundraiser on behalf of my friend Jaafar, who is fundraising to suppor

Tags
2 weeks ago

To those who keep scrolling... this is not just another link ⚠️.

This is my home—bombed and reduced to rubble🏡❤️‍🩹.

This is my room—crushed until its height became less than 30 cm💔 🧱.

To Those Who Keep Scrolling... This Is Not Just Another Link ⚠️.
To Those Who Keep Scrolling... This Is Not Just Another Link ⚠️.

This is my teddy bear and the cover of my bed—pulled from under the debris with my own hands🧸🥹.

To Those Who Keep Scrolling... This Is Not Just Another Link ⚠️.

We spent over a month clearing rubble just to build a tent beside the ruins ⛺.

To Those Who Keep Scrolling... This Is Not Just Another Link ⚠️.

But even the tent wasn’t allowed to stay... ❌

We were forced to leave—by an order from the occupation ⚠️🥹.

It feels like every trace of life is being taken from us, again and again 😔 .

I’ve shared. I’ve begged. I’ve screamed💔.

But the silence around me is louder than my pain🥹.

This isn’t just a donation campaign—this is a cry for life ✊.

If you can’t donate, share 🤝.

And if you can’t share—don’t look away like nothing is happening👌🏻.

Some of us are being buried alive—under the world’s silence🔥.

Donate to Amira's Story: Between Hope and Resilience - A Call for Soli, organized by Abdallah Alanqar
gofundme.com
When sorrow and difficulties strike hard, hope becomes the lo… Abdallah Alanqar needs your support for Amira's Story: Between Hope and Resil

Tags
3 weeks ago
2 weeks ago
A Cry Of Hunger That The World Does Not Hear: A Little Girl Struggles Amid The Crowds To Obtain Some

A cry of hunger that the world does not hear: A little girl struggles amid the crowds to obtain some food as famine continues in the Gaza Strip and aid is prevented from entering.

I am Nazmi, a displaced person from Gaza. I am living through a very difficult war. We live in tents without food, drink, or nutrition for the children who have been suffering from dehydration in this siege for more than 19 months. I cannot buy what is available because its price has risen dramatically. 😥 I need your help so that we can live, just me and my children. 🙏

✅️Vetted by @gazavetters , my number verified on the list is ( #380 )✅️💔

@fvckmami @johnallisonweiss @rhiwddolion @dg-fragments @masktress25-blog @-arianagrande @--luna-- @--cutequotes @--gem-- @---flower--child--- @---happiness--- @--- @------------- @xxgvtz-0r-gutsxx @cedarspiced @bkbrains @thatveganwhiterose @dgalvb @rvengebullet @determinate-negation @piedaho @kn57 @itsgreystorm @introvert-celeste @joonsbees @gk7 @kelpieeq @hoofpeet @fn @fndungeonmom @ckliwy @dbzscreencaps @eb @rnapolimerasi @msmakeupaddict


Tags
1 year ago

pakehas when i tell them being maori is about recognising your maori ancestors, back to the first arrival and percentages didnt matter

Pakehas When I Tell Them Being Maori Is About Recognising Your Maori Ancestors, Back To The First Arrival

Idk, I feel like reverse racism is a thing but its nowhere near to the scale of real racism. In my country people are offered scholarships if they are 'Maori'. And by that the government means if your great great great gran was maori then you're maori too. Idk its something thats always irked me, I feel like you shouldnt be handed money for something you had no control over ya know?

Reverse racism isn’t real

2 weeks ago

HELP A FAMILY FROM GAZA - Make a difference today 🍉🍉

" I am Randa from Gaza, I am 21 years old, my family and I consist of 6 people, I was studying accounting at my university and my brother Zidane and I lost our university, and I was happy with my life until October 7, we moved to the south with difficulty, me and my family, walking on foot, it is impossible to forget this day, it is engraved in my memory, the bombing was over our heads and we were just people, we just wanted safety, and when we arrived in the south, unfortunately our life was very difficult, we lived the winter and summer in the south, the two seasons are more difficult than each other, in the winter we do not sleep from the bitter cold, and in the summer we do not sleep from the heat of the tents and the difficulty of transportation and obtaining water, no safety, no cleanliness, I lost my home, I lost my university, I lost my friends, I am very tired, I want help and to have a safe and clean life, please help me, my family and I are in danger, we want safety, I am tired of this life, bombing, destruction, starvation, high cost of living, I want a safe life, all of you are able to help me towards a better life and complete my educational path, please do not leave us alone, we love life, I want peace. "

That is a desperate plea from Randa ( @randasobh23 ), from Gaza. She is a human being just like you and I, who is tired and just wants saftey and peace, she loves life, and does not want to lose her only because she is Palestinian. Like any person would be, she is tired of living through genocide, she is tired of living through pain and seemingly endless suffering. She has no safe home to return to, to education or stable future to look forward to, and no certainty, the the occupation is violent and unpredictable.

Please, read this and see her as a human just like you, with complex thoughts, experiences and emotions - going through pain and suffering like no other. If you have the means to help her, please donate what you can. Any contribution will make a difference. You should donate to helo her regain stability and move on to a normal life - and help afford the basic needs of living in Gaza. Please - help her. In any way you can. Share, don't let her message go unheard.

Donate to Please help my family in Gaza , organized by Randa Sobh
gofundme.com
I am Randa from Gaza, I am 21 years old, my family and I consist of 6 people, I was studying… Randa Sobh needs your support for Please help

3% OF GOAL RAISED. That is not enough for sustainable living in Gaza. Have some humanity and compassion.


Tags
1 week ago

To all Tumblr users, don't leave me alone ‼️💔

My name is Samir, and I am just a simple man, carrying great love for my family and small dreams I have always wished to fulfill.

Our path in life has never been easy. We are a family of seven, living under harsh conditions that only God truly knows.

I do my best every day to provide my children and family with the basics of life: food, clean water, and a dignified living. But the burden has become heavier than I can carry alone.

Every day, I wake up with the sunrise, holding on to a new hope that I can cover our most basic needs: a simple meal on the table, clean water to drink, and a notebook and pencil for my son who dreams of completing his education.

But expenses continue to rise, and the small income I earn is barely enough to cover even the essentials.

I did not turn to this fundraising campaign out of greed or luxury, but out of genuine need and belief in the goodness that lives in people’s hearts.

I humbly ask for your support to help me provide education for my children, and food and clean water for my family.

Your help, no matter how small, could change our lives and open a new door of hope toward a better future.

I appeal to you from the heart of a father who only dreams of seeing his children grow up healthy and safe to be part of this journey with us.

To All Tumblr Users, Don't Leave Me Alone ‼️💔
To All Tumblr Users, Don't Leave Me Alone ‼️💔

Please, contribute whatever you can and share our story with others. Your support whether through donations, words, or sharing truly makes a difference.

Donate to Help Samir Survive A Famine, organized by Adam M
gofundme.com
Hello guys, this fundraiser was created with the help of my friend Adam. Our goal is to help th… Adam M needs your support for Help Sami

I got $1760 in a very long time almost 7 months

I need any small donation, it will mean a lot to me, any donation, even if it is $1

May God bless every giving hand and reward you with goodness.


Tags
1 week ago

Please, Ahed's family really needs help. His wife has heart disease and he needs to afford her medical care.

Trapped Family in Gaza Appeals for Help to Survive

A Plea for Help from Gaza: A Family Seeking Safety

Hello, I am Ahed Al-Bashiti, son of a family of 7 members.

Trapped Family In Gaza Appeals For Help To Survive
Trapped Family In Gaza Appeals For Help To Survive
Trapped Family In Gaza Appeals For Help To Survive
Trapped Family In Gaza Appeals For Help To Survive

We live in the midst of the ongoing hellish war in Gaza, trapped between walls of fear and despair.

Donate to Help the Al-Bashiti Family Rebuild Their Lives, organized by Yasmine Daoud
gofundme.com
Hi, my name is Yasmine, and I am raising funds for my friend Ahed in Gaza… Yasmine Daoud needs your support for Help the Al-Bashiti Family R

We struggle daily to survive in an environment filled with threats and dangers.

Trapped Family In Gaza Appeals For Help To Survive

My father and brothers lost our only source of income and our house was destroyed and we are now homeless 💔

Trapped Family In Gaza Appeals For Help To Survive
Trapped Family In Gaza Appeals For Help To Survive
Trapped Family In Gaza Appeals For Help To Survive

We urgently appeal for your moral and financial assistance to cover the necessary costs for escaping to a safe environment, where we can build a better future for our children and ensure our family's safety.

We are in desperate need of your support. Any donation, no matter how small, can help save our lives. Thank you for your attention and support during these harsh times.


Tags
1 week ago

Hello my friend, please help. We do not have money to buy food and drink. I have young children who do not know the taste of sleep because of the bitter cold caused by the rain. We do not have shelter. Our services are torn. Donate to me, even if it is a little. I ask you to help, my friend 🙏🙏😭 ✅️Vetted by @gazavetters, my number verified on the list is ( #380 )✅️💔

I cannot donate becayse i do not have a bank account, but i can support you in other ways, like talking about struggles, reblogging your posts so they gain more reach, and making posts on other social medias that link to your campaign.


Tags
  • steepsheep
    steepsheep reblogged this · 3 days ago
  • steepsheep
    steepsheep liked this · 3 days ago
  • winterandfruits
    winterandfruits liked this · 3 days ago
  • melismasthmatic
    melismasthmatic liked this · 3 days ago
  • pinkfey
    pinkfey liked this · 3 days ago
  • yurisolde
    yurisolde liked this · 4 days ago
  • rockyrat03
    rockyrat03 liked this · 4 days ago
  • breechingbaby
    breechingbaby liked this · 4 days ago
  • potatoobsessed999
    potatoobsessed999 liked this · 4 days ago
  • esp-not-espn
    esp-not-espn liked this · 4 days ago
  • boylans
    boylans liked this · 4 days ago
  • sumtingfersher
    sumtingfersher liked this · 5 days ago
  • tripsens
    tripsens liked this · 5 days ago
  • wurmholz
    wurmholz reblogged this · 5 days ago
  • darkkurenai
    darkkurenai reblogged this · 5 days ago
  • raytoroinmybackpack
    raytoroinmybackpack liked this · 5 days ago
  • yingtai-is-reading
    yingtai-is-reading liked this · 6 days ago
  • asmuchasidliketo
    asmuchasidliketo liked this · 6 days ago
  • elen-aranel
    elen-aranel reblogged this · 6 days ago
  • teethyfrog
    teethyfrog liked this · 6 days ago
  • s0up-witch
    s0up-witch liked this · 6 days ago
  • styxnbones
    styxnbones reblogged this · 6 days ago
  • styxnbones
    styxnbones liked this · 6 days ago
  • itshomobirb
    itshomobirb liked this · 6 days ago
  • dsudis
    dsudis liked this · 6 days ago
  • favoritefandomsfavoritefandom
    favoritefandomsfavoritefandom reblogged this · 6 days ago
  • unpretty
    unpretty liked this · 6 days ago
  • ronaldohatepage
    ronaldohatepage liked this · 6 days ago
  • dolomite-alps
    dolomite-alps reblogged this · 6 days ago
  • dolomite-alps
    dolomite-alps liked this · 6 days ago
  • johnwickfucker
    johnwickfucker liked this · 6 days ago
  • qthewhatever
    qthewhatever reblogged this · 6 days ago
  • apieceofpearpie
    apieceofpearpie liked this · 6 days ago
  • amarits
    amarits liked this · 6 days ago
  • mycomars
    mycomars liked this · 6 days ago
  • turquoiseorchid
    turquoiseorchid liked this · 6 days ago
  • imalwaysinpain
    imalwaysinpain reblogged this · 6 days ago
  • emptyemptycorners
    emptyemptycorners liked this · 6 days ago
  • guardian-tn
    guardian-tn reblogged this · 6 days ago
  • guardian-tn
    guardian-tn liked this · 6 days ago
  • reveriereversed
    reveriereversed liked this · 6 days ago
  • slumbering-shadows
    slumbering-shadows reblogged this · 6 days ago
  • bebeocho
    bebeocho liked this · 6 days ago
  • flamingbluepanda
    flamingbluepanda liked this · 6 days ago
  • swirlspill
    swirlspill liked this · 6 days ago
  • maculategiraffe
    maculategiraffe reblogged this · 6 days ago
  • my-t4t-romance
    my-t4t-romance liked this · 6 days ago
  • maculategiraffe
    maculategiraffe liked this · 6 days ago
  • rs-junk-drawer
    rs-junk-drawer liked this · 6 days ago
  • thewolfofthestars
    thewolfofthestars reblogged this · 6 days ago
i-appel-du-vide - l' appel du vide
l' appel du vide

always searching, for serenity, now im on the; edge of reality.

193 posts

Explore Tumblr Blog
Search Through Tumblr Tags