I Was Trying To Figure Out Why I Find It So Difficult To Talk About My Illness & Disability With New

i was trying to figure out why I find it so difficult to talk about my illness & disability with new people, or even people from my past, and I realized part of it is that I still feel like a phony? I didn't bring my cane last night and so it felt like I would get called a faker. or maybe that I was really a faker, see I'm out without my cane maybe I don't need it? and then the other part is that when it's a new person I feel like they're going to immediately run for the hills bc I am a huge red flag burden for so many reasons having these problems.

and then I thought about it some more & while some of that is kinda true, mostly I have to kill the ableist in my head. yes, sometimes it will be too much for people. but I have to let them make that choice. I have to just be who I am & let it happen even if it's heartbreaking to not meet new friends or connections. because not everyone will see it that way, and I literally cannot hide it so I have to just exist as I am and let the cards fall as they might.

More Posts from Zylahbee and Others

5 months ago

ughhh this is so goooood

Ive been noodling around with the idea of icy being bloom’s mirror since with her backstory in season 8 it sure looks that way. But instead. I shall do smth else.

Icy’s mirror is not bloom. Bloom n icy are not mirrors of each other.

Icy’s mirror is Daphne.

Both older sisters, both heirs to their kingdoms. Both kingdoms cursed, both wanted to save their little sister. Icy is what Daphne could have become if she was too late to save Bloom. Daphne is what Icy could have been if she succeeded in saving her sister n sacrificed herself in the process.

At first icy hates bloom for inexplicable reasons. Run of the mill reasons. But when she realises what bloom’s story is and relates it to herself, every time they face off, icy is faced with the fact that this could have been her sister. And when she sees daphne (in season 5 when they trap her to steal sirenix), that is her mirror. She is faced with the fact that that is what she could have been (at least similar) if she had succeeded. She could have seen her sister grow up. I think what’s the most heartbreaking part is when bloom wishes her sister’s corporeal form back.

Coz icy is clearly being thrown in jail/has to flee again, But bloom and daphne has their entire family back. Mom and dad and all. And i think resentment only builds from there WHICH i wld say is the motive for her to always go after the winx. Even after season 5.


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4 months ago

incredible 10/10

Everyone Gets To Observe My Crutches

everyone gets to observe my crutches

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Wheelchair dude does art for money for a prescription wheelchair. 🧑🏻‍🦽
5 months ago

you guys made luigi mangione trend for days and I need to see the same energy for brianna boston. she is a 43 year old mother of three who ended a phone call with blue cross blue shield (after being denied a claim) “delay deny depose, you people are next” and is now being held under a 100,000$ bond and could face FIFTEEN years of prison if charged. she has no weapons, her record is clean, and yet she is being held behind bars. they are afraid of the public and are trying to subdue. do not let them!!!! be outraged that our freedom of speech is being threatened!!!!! deny defend depose! free brianna boston!

1 month ago

anyone who thinks health issues end with walking out of the hospital doors, massive reality check for ya. there is no clocking out of chronic illness or disability.

surgery does not cure everything, medication does not cure everything. hospital cannot cure everything.

the amount of people in my life who believe that when i go to hospital, i will be discharged cured or symptom free is astonishing to me.

most of these people have known me long enough to have seen me through multiple hospital admissions and every time they come back to this way of thinking even though its never happened.


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5 months ago

im down

Adult winx club fans should just find a place of completely forgotten land, pay for it together and build a bunch of tiny houses that are exact replicas of the dorm rooms in Winx Club and have parties and fashion shows and also maybe start a band or something

5 months ago

chronic illness sucks like i just wanna do my silly little hobbies


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2 months ago

Classical Ehlers-Danlos syndrome, pancreatic insufficienty, hemiplegic migraines

thanks for the suggestions ill add them to the research list!!

3 months ago

yea..

It’s hard not to feel alienated sometimes by your friends, even if unintentionally, as a physically disabled person.

“Oh, let’s go to this place!”

“How far away is it?”

“It’s only a three-minute walk.”

But you can’t do that three-minute walk. And it’s uncomfortable speaking up that you can’t do that three-minute walk. And maybe you’re well enough that day to push through it, but you pay for it afterwards. The worst part, your friends think they’re being accommodating because it’s such a short walk. However, a short walk to them isn’t a short walk for you. But eventually, you simply start saying no to hangouts because you don’t want to be a burden because you can’t engage in basic activities that are easy for everyone else.

Sometimes you do speak up, and you’ll ask something like, “Can we drive there?” and there’s always pushback. “Oh, it’d take longer to drive there than to walk” or “walking is good for you!” You regret mentioning anything at all; the discomfort and guilt linger.

Structural inaccessibility adds another layer to this problem. You’re forced to say no to countless hangouts that aren’t wheelchair-accessible. Even if you can walk, you might not be able to walk far enough to enjoy the planned outing. People start noticing you always say no, and before long, they stop inviting you at all. Maybe it’s better this way. It still feels lonely.


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3 months ago

I hate that there's no way to be disabled that people will accept.

If you show joy, or acceptance in your disability, you're not really disabled and no one will take you seriously when you do complain and well it can't be that bad and oh I'm sure you're used to it.

But if you're miserable then you're whiny and annoying and people hate that it's "all you talk about" and its always ugh you're always tired and can we please stop talking about this it's making me depressed and oh I'd kill myself if that happen to me.

If you're happy you have everything figured out and don't need help anyway but if you're miserable you're a whiny bitch that can't just suck it up. There's no winning

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