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It’s so strange
I can never fully express what it’s like living with a tbi and the recovery, nothing ever sounds right, all the words feel wrong.
It’s like I’m transcribing a language dead and gone, all the words I have to say you don’t understand, you don’t have the words for what I felt, you don’t have any conjugations or phrases that equate to my grief. so I’m just left saying,
“It was bad”
I think ppl tend to brush over the loneliness of brain trauma and how isolating it is to be recovering from a tbi (traumatic brain injury)
I've been in recovery for 2yrs and something I don't think ppl fully understand is how when ur trying to “move on” and “go back to normal”, your body doesn't move like your body anymore.
It doesn't feel like your body anymore.
There is nothing more devastating than trying live your life in a body that doesn't feel like yours or work like the body you once had. Like how tf do you expect me to move on when my limbs don't feel like my limbs?!
You're left mourning the death of the body you once had and no one else sees or knows how disconnected from yourself you feel.
Brain damage sucks
Sigyn likes building the lego sets Loki likes the minifigures
"Brain damage" only sounds like a harsh and offensive way to describe brain injuries because people constantly use it as an insult. It's a totally neutral descriptor of what it is. I have brain damage. My brain is damaged. It's not ableist to call it that, it's ableist to call people you don't like brain damaged because you think it's an inherently bad thing to be.
give love to people with traumatic brain injury, acquired brain injury, stroke, neurological condition, worsening mental health, trauma, PTSD and all other brain based conditions that make you feel conflicted about your identity. About whether or not you’re the ‘same person’ you were before your injury or illness. People constant evolve and change but can be more difficult when changes more sudden, pronounced, and noticed by others. I hope you are doing well and are able to find some peace, support and love.
Reminder from someone with actual literal brain damage from a brain injury to stop fucking using "brain damage" and "brain injuries" as a means of describing someone whose opinions you don't like or deem as stupid.
It's ableist and offensive as fuck, and for some reason a lot of leftist people think it's okay to use. I've seen posts replying to right wing racists calling them "brain damaged if you believe this" and "do you have a brain injury? do you not understand X?". Just now I saw a beautiful post about fat people throughout history that was absolutely ruined by opening with "How do we break it to boomers with actual brain damage and nostalgic brainrot..." before continuing to say that fat people existed throughout history.
Brain damage does not make you racist. A brain injury doesn't make you ignorant, or fatphobic, or unaware of history and politics. Stop fucking using my disability as a catch all to describe people you think are shitty. Y'all use it like it's a replacement for how people used to use the R-slur, which shows you learned absolutely nothing about why the R-slur was wrong to use and decided to throw in other disabilities instead. Fuck off and stop doing it.
(And don't do it with other disabilities either, because I know y'all do.)
I know a lot of people with brain injuries. They're smart, and funny, and compassionate. They learn about the world and care about social issues and wish they could go to protests if their disability won't allow them to. Are there right wing people with brain injuries? Sure, absolutely. But they are not right wing because they have a brain injury, and using any disability as an insult is still fucking ableist.
Tldr - stop using brain damage and brain injury as an insult. It's ableist and incredibly offensive.
Love, your local brain injured/brain damaged pal
As someone who is somewhat of a “veteran” of the online ND community, I’m disappointed in the lack of positivity and love for lesser known diverse cognitive conditions, and the opposing abundance of posts about “cures” or outdated criteria or treatments for those conditions. So, without further ado, I want to say hello to anyone with any of the disorders I’m listing, and give them the love and support that hardly anyone else in our community has… Shoutout to:
People with Down syndrome
People with Fragile X
People with William’s syndrome
People with dyslexia
People with dyspraxia
People with dyscalculia
People with dysgraphia
People with Prader-Willi syndrome
People with PANS or PANDAS
People with aphasia
People with a TBI (traumatic brain injury)
People with chronic/early onset mental illnesses
People with cerebral palsy
People with FASD or were otherwise disabled via other substances in utero
And many, many more I may have forgotten to list (but still support and love, I will add more to my list)
You are all beautiful and wonderful, and you all deserve so more love, appreciation, acceptance and support. You are just as neurodiverse as the rest of us, and your voices deserve to be heard and amplified.
I love you all ❤️
Is there anyone else who doesn't remember the "before my TBI" time? Like, you were super young (I was eighteen months) when the TBI happened, and there was never really a "before" for you, this has just always been your reality?
Where are all the "slow" kids, the challenged kids, the burnouts from birth, the burden to have in class? Where are the autists who can't mask, who self harm, who are loud and can't stop stimming? The NDs with processing disorders, brain damage, brain fog? The ones with down syndrome, FAS, and other conditions that people treat like curses or defects. I hardly ever see them past 18 and I know they don't just dissolve once they become adults.
happy Pride month ! ! here is your reminder that intensely / severely / big / whatever word wanna use Mentally Disabled people CAN use whatever label/exoression they want because they have the same autonomy as You !
yes this includes Kink
includes Gender
includes HRT
includes Sexuality
includes Romance
includes Neo/Xeno labels
includes those who Can't understand gender sexuality etc because STILL have autonomy to do whatever want
includes EVERYTHING & EVERYONE
!
I would probably have way less diagnoses if the doctors had explained to my parents and properly documented things when I was a baby.
Like, I have some unspecified hip condition, I was born with it. That's all my mom knows. I figure it's bilateral, and that might be why my gait is weird and gods know how many of the other problems I have with my legs, like how one's longer than the other. The TBI I got as a baby was, according to my mom, complicated. All the doctor really bothered with was saying I'd be fine, he didn't tell her a lot of details. Again, gods know how many of my things that could have caused. There was whatever happened when I was five, when a severe allergic reaction (to something I had only been slightly allergic to before and have only been slightly allergic to after) and asthma we hadn't known I had put me in the PICU for days and the hospital for two weeks, then a nebulizer for months and an inhaler for year but never an Epi Pen, which I have questions about now. Apparently I also have something up with my heart.
And we don't have any of this information because the doctors weren't explaining it.
Consider these
People with personality disorders are not inherently abusive. Yeah, even people with NPD and ASPD (why do I have to say that?) There is no such thing a narcissistic abuse. People with ASPD are not serial killers. They are people, stop putting them down for no reason. People with personality disorders are welcome here. All of them.
Armchair diagnosing is bad. I don't care how shit someone is, if you call them a narcissist, a psychopath, a sociopath, a compulsive/pathological liar, or literally any other disorder that they haven't been professionally diagnosed with, you're a dick. You can't know what's going on in their head. You are not their doctor and are not qualified to diagnose them. And it's just a dick move to diagnose Casey Anthony as someone with a heavily-stigmatized symptom THAT I ALSO HAVE HAD
Stop. Tagging. Your. Writing. With. Disability. Tags. The PTSD tag is nearly unusable because everyone tags their fics as PTSD. Stop it. That space is not for you. It's for us.
People with intellectual, developmental, cognitive, whatever disability deserve to be heard.
As do semispeaking and nonspeaking autistics.
Yes, we do need to listen to caretakers, they're how some people communicate. No one is invalid because they're a caretaker, they're invalid when they're an ableist caretaker.
If the autism "cure" were to exist right now, it would mean eugenics. I don't give a shit if you want it, it would mean eugenics. Society is way too anti-autism for us to trust non-autistics with a cure. I won't get into my rant about the concept of a cure unless asked, it doesn't matter. What does matter is that if that cure is created, it will be forced on people, even those who vehemently oppose it, so it can't exist yet without putting people in danger.
Autism Speaks is shit. So is National Autistic Society. So is the Autism Society. ASAN is on thin fucking ice.
Stop tagging political posts with NPD, ASPD, compulsive liar, or no empathy. You're being ableist and armchair diagnosing. And putting that shit on our feeds.
ABA is bad. Yes, always. All of it. I lost a friend to ABA and I will not budge on this. All pro-ABA people will be blocked, I do not give a shit.
I do not care about syscourse. I am not a system and am not qualified to have an opinion on it.
If you point out typos, grammar mistakes, or whatever when the other person hasn't explicitly said it's okay, stop. You're being ableist.
Stop using TBI as an insult. Yes, I was dropped on my head (okay, I fell, but still,) as a baby. Fuck you too.
This is a safe place for systems and I'm firmly anti-Split.
Autistic and intellectually disabled people are allowed to transition, be queer, get tattoos, drink, have sex, whatever, should they so want.
Mental age is bullshit. He doesn't have the mind of a two-year-old, he has the mind of an adult with IDD.
The posts of disabled people are not an excuse for you to trauma-dump. I don't care what your ex did, that person with NPD wasn't talking about them and it's a dick move to bring that up on their unrelated post.
People should not have to work to live. No one. Ever. Period.
Healthcare should be free
Caretakers need to stop killing their disabled charges
Autism Mommies (TM) are shitty people.
Don't even get me started on Fathering Autism (bitch, you aren't fathering autism, you're fathering ABBY)
Disabled people deserve dignity and privacy. All of them. Yes, even those ones. We're still people. You don't need to know how we go to the toilet.
Fiction does not determine morality and sending people anon hate telling them to kill themselves is a shitty thing.
Telling people to kill themselves in general is a shitty thing. What are you gonna do if they actually do it and you get arrested for manslaughter?
Trans kids deserve to transition, intersex kids deserve to not be mutilated and forced onto HRT when they can't or don't consent, children can and will be queer
Actual sex education needs to be standard
Label policing LGBT+ identities is bad
Devotees and "transableds" are not allowed here
Children and disabled people deserve to exist in public, even if you don't like us
Stop. Saying. Retard. Stop using autistic as an insult. Stop it and go to hell.
I'm pro-choice and I know you don't actually care about fetuses with Down Syndrome, you're just trying to guilt me.
I will reblog with more takes as they occur to me
And, most importantly, listen to ALL disabled voices. All of them. Every single one. We stand together or we don't stand a chance.
Something that drives me fucking crazy is when I have trouble with word finding or remembering something, then explain it's just a brain injury problem, and the person responds by saying something like "oh I'm the exact same way!"
You're not the exact same way, if you can read without technology assistance, if you can hold a job, if you can stay verbal 100% of the time, if you don't have to wear an emergency bracelet with your husband's phone number on it any time you leave the house without him, if you can drive a car, etc. It's not the fucking same, stop being an invalidating tool.
Not me listening to The Little Mermaid soundtrack and crying about not feeling like a person anymore after my TBI
After a year of trialing other injectable migraine treatments that barely worked because our insurance company changed the formulary- my appeal was FINALLY approved & I get to go back on the medication that actually helped!!! Never in my life have I been more excited to stab myself in the stomach, lol.