What able bodied authors think I, an amputee and a wheelchair user, would want in a scifi setting:
Tech that can regenerate my old meat legs.
Robot legs that work just like meat legs and are functionally just meat legs but robot
Literally anything that would mean I don't have to use a wheelchair.
If I do need to use a wheelchair, make it fly or able to "walk me" upstairs
What I actually want:
Prosthetic covers that can change colour because I'm too indecisive to pick one colour/pattern for the next 5+ years.
A leg that I can turn off (seriously, my above knee prosthetic has no off switch... just... why?)
A leg that won't have to get refitted every time I gain or loose weight.
A wheelchair that I can teleport to me and legs I can teleport away when I'm too tierd to keep walking. And vice versa.
In that same vein, legs I can teleport on instead of having to fiddle around with the sockets for half an hour.
Prosthetic feet that don't require me to wear shoes. F*ck shoes.
Actually accessible architecture, which means when I do want to use my wheelchair, it's not an issue.
Prosthetic legs with dragon-claw feet instead of boring human feet or just digigrade prosthetics that are just as functional as normal human-shaped ones.
A manual wheelchair with the option to lift my seat up like those scissor-lift things so I'm not eye-level with everyone's butt on public transport/so I can reach the top shelf by myself.
A prosthetic foot that lights up when it hits the ground like those children's shoes.
Dear game developers:
Make your games more accessible by
Allowing Button remapping
Supporting multiple kinds of controllers
Supporting multiple types of inputs for when solving puzzles or clues
Match the color and or pattern puzzle
Follow the sound and controller vibration to find the mcguffin
Allow for zooming in and out if you’re doing any kind of “pattern alignment” puzzle.
Subtitles on everything, for fuck’s sake
If your motion/camera thing’s instructions start with “stand up and….”, rethink your design.
Allow for adjusting the field of view
Aim assist.
If someone is struggling with a puzzle or task, start offering tool tips and hints on screen
Remember that the goal is not to have the player play the game like you would. The goal is for the gamer to have fun and experience the game and art you’ve spent so much time and energy to create in a way that brings them joy.
Removing and avoiding harmful tropes around disability - physical or otherwise.
You are not a creep if you find yourself sexy with your disability aids. full stop. If your partner is disabled, you are not fetishizing them if you find them sexy when they're in their wheelchair, or wearing their diaper, or have braces on, etc.
Disabled people are allowed to feel sexy and people are allowed to find them sexy. People with facial/limb differences and other physical differences are allowed to feel sexy and people are allowed to be attracted to them.
The problem comes from lack of consent and dehumanization. Expecting all disabled people to fit your sexual fantasy and sexualizing them openly without their consent (i.e. posting/reblogging normal pictures of a disabled person on your fetish blog or sexually harassing a disabled stranger) is fetishization and horrible. Asking us how we have sex or taking secret photos of us to jack off to later is creepy and crossing the boundry into dehumanizing fetishization. Seeing us and our sexuality as an oddity or a funny joke is not okay.
Reminder, sex toys were first and foremost created by and for disabled people. We have always been having sex and have always been seen as attractive by our admirers, without them fetishizing us. Having sex with a consenting disabled person isnt rape, and yes it is possible for us to eagerly consent! While some disabilities make it hard to consent, that isn't true for all of us.
We get horny, we have sex, we jack off, we wear sexy clothes and show off our bodies. We aren't freak shows for abled peoples amusement nor objects for fetishization. We aren't poor innocent virgins who don't know what sex is, we are a diverse and beautiful community all connected by our disabilities.
(post is edited for terminology, please rb this version instead)
How to live a great disabled life- A guide full of resources to make your life easier and probably the best place to start (including links to some of the below resources). Everything from applying for good quality affordable housing to getting free transportation, affordable medication, how to get enough food stamps, how to get a free phone that doesn't suck, how to find housemates and caregivers, how to be homebound, support groups and Facebook pages (including for specific illnesses), how to help with social change from home, and so many more.
Turning a "no" into a "yes"- A guide on what to say when denied for disability aid/accommodations of many types, particularly over the phone. "Never take no for an answer over the phone. If you have not been turned down in writing, you have not been turned down. Period."
How to be poor in America- A very expansive and helpful guide including things from a directory to find your nearest food bank to resources for getting free home modifications, how to get cheap or free eye and dental care, extremely cheap internet, and financial assistance with vet bills
How to be homebound- This is pretty helpful even if you're not homebound. It includes guides on how to save spoons, getting free and low cost transportation, disability resources in your area, home meals, how to have fun/keep busy while in bed, and a severe bedbound activity master list which includes a link to an audio version of the list on Soundcloud
Master List of Disability Accommodation Letters For Housing- Guides on how to request accommodations and housing as well as your rights, laws, and prewritten sample letters to help you get whatever you need. Includes information on how to request additional bedrooms, stop evictions, request meetings via phone, mail, and email if you can't in person, what you can do if a request is denied, and many other helpful guides
Special Laws to Help Domestic Violence Survivors (Vouchers & Low Income Housing)- Protections, laws, and housing rights for survivors of DV (any gender), and how to get support and protection under the VAWA laws to help you and/or loved ones receive housing and assistance
Dealing With Debt & Disability- Information to assist with debt including student loans, medical debt, how to deal with debt collectors as well as an article with a step by step guide that helped the author cut her overwhelming medical bills by 80%!
There are so many more articles, guides, and tools here that have helped a lot of people. And there are a lot of rights, resources, and protections that people don't know they have and guides that can help you manage your life as a disabled person regardless of income, energy levels, and other factors.
Please boost!
[large text: Where to Start Your Research When Writing a Disabled Character]
So you have decided that you want to make a disabled character! Awesome. But what's next? What information should you decide on at the early phrase of making the character?
This post will only talk about the disability part of the character creation process. Obviously, a disabled character needs a personality, interests, and backstory as every other one. But by including their disability early in the process, you can actually get it to have a deeper effect on the character - disability shouldn't be their whole life, but it should impact it. That's what disabilities do.
[large text: If you don't know what disability you would want to give them in the first place;]
Start broad. Is it sensory, mobility related, cognitive, developmental, autoimmune, neurodegenerative; maybe multiple of these, or maybe something else completely? Pick one and see what disabilities it encompasses; see if anything works for your character. Or...
If you have a specific symptom or aid in mind, see what could cause them. Don't assume or guess; not every wheelchair user is vaguely paralyzed below the waist with no other symptoms, not everyone with extensive scarring got it via physical trauma. Or...
Consider which disabilities are common in real life. Cerebral palsy, muscular dystrophy, stroke, cataracts, diabetes, intellectual disability, neuropathy, multiple sclerosis, epilepsy, thyroid disorders, autism, dwarfism, arthritis, cancers, brain damage, just to name a few.
Decide what specific type of condition they will have. If you're thinking about them having albinism, will it be ocular, oculocutaneous, or one of the rare syndrome-types? If you want to give them spinal muscular atrophy, which of the many possible onsets will they have? If they have Ehlers-Danlos Syndrome, which one out of the 13 different types do they have? Is their amputation below, or above the knee (it's a major difference)? Not all conditions will have subtypes, but it's worth looking into to not be surprised later. This will help you with further research.
If you're really struggling with figuring out what exact disability would make sense for your character, you can send an ask. Just make sure that you have tried the above and put actual specifics in your ask to give us something to work with. You can also check out our "disabled character ideas" tag.
Here are some ideas for a character using crutches.
Here are some ideas for a character with a facial difference (obligatory link: what is a facial difference?).
[large text: If you already know what disability your character is going to have;]
Start by reading about the onset and cause of the condition. It could be acquired, congenital, progressive, potentially multiple of these. They could be caused by an illness, trauma, or something else entirely. Is your character a congenital amputee, or is it acquired? If acquired - how recently? Has it been a week, or 10 years? What caused them to become disabled - did they have meningitis, or was it an accident? Again, check what your options are - there are going to be more diverse than you expect.
Read about the symptoms. Do not assume or guess what they are. You will almost definitely discover something new. Example: a lot of people making a character with albinism don't realize that it has other symptoms than just lack of melanin, like nystagmus, visual impairment, and photophobia. Decide what your character experiences, to what degree, how frequently, and what do they do (or don't do) to deal with it.
Don't give your character only the most "acceptable" symptoms of their disability and ignore everything else. Example: many writers will omit the topic of incontinence in their para- and tetraplegic characters, even though it's extremely common. Don't shy away from aspects of disability that aren't romanticized.
Don't just... make them abled "because magic". If they're Deaf, don't give them some ability that will make them into an essentially hearing person. Don't give your blind character some "cheat" so that they can see, give them a cane. Don't give an amputee prosthetics that work better than meat limbs. To have a disabled character you need to have a character that's actually disabled. There's no way around it.
Think about complications your character could experience within the story. If your character wears their prosthetic a lot, they might start to experience skin breakdown or pain. Someone who uses a wheelchair a lot has a risk of pressure sores. Glowing and Flickering Fantasy Item might cause problems for someone photophobic or photosensitive. What do they do when that happens, or how do they prevent that from happening?
Look out for comorbidities. It's rare for disabled people to only have one medical condition and nothing else. Disabilities like to show up in pairs. Or dozens.
If relevant, consider mobility aids, assistive devices, and disability aids. Wheelchairs, canes, rollators, braces, AAC, walkers, nasal cannulas, crutches, white canes, feeding tubes, braillers, ostomy bags, insulin pumps, service dogs, trach tubes, hearing aids, orthoses, splints... the list is basically endless, and there's a lot of everyday things that might count as a disability aid as well - even just a hat could be one for someone whose disability requires them to stay out of the sun. Make sure that it's actually based on symptoms, not just your assumptions - most blind people don't wear sunglasses, not all people with SCI use a wheelchair, upper limb prosthetics aren't nearly as useful as you think. Decide which ones your character could have, how often they would use them, and if they switch between different aids.
Basically all of the above aids will have subtypes or variants. There is a lot of options. Does your character use an active manual wheelchair, a powerchair, or a generic hospital wheelchair? Are they using high-, or low-tech AAC? What would be available to them? Does it change over the course of their story, or their life in general?
If relevant, think about what treatment your character might receive. Do they need medication? Physical therapy? Occupational therapy? Orientation and mobility training? Speech therapy? Do they have access to it, and why or why not?
What is your character's support system? Do they have a carer; if yes, then what do they help your character with and what kind of relationship do they have? Is your character happy about it or not at all?
How did their life change after becoming disabled? If your character goes from being an extreme athlete to suddenly being a full-time wheelchair user, it will have an effect - are they going to stop doing sports at all, are they going to just do extreme wheelchair sports now, or are they going to try out wheelchair table tennis instead? Do they know and respect their new limitations? Did they have to get a different job or had to make their house accessible? Do they have support in this transition, or are they on their own - do they wish they had that support?
What about *other* characters? Your character isn't going to be the only disabled person in existence. Do they know other disabled people? Do they have a community? If your character manages their disability with something that's only available to them, what about all the other people with the same disability?
What is the society that your character lives in like? Is the architecture accessible? How do they treat disabled people? Are abled characters knowledgeable about disabilities? How many people speak the local sign language(s)? Are accessible bathrooms common, or does your character have to go home every few hours? Is there access to prosthetists and ocularists, or what do they do when their prosthetic leg or eye requires the routine check-up?
Know the tropes. If a burn survivor character is an evil mask-wearer, if a powerchair user is a constantly rude and ungrateful to everyone villain, if an amputee is a genius mechanic who fixes their own prosthetics, you have A Trope. Not all tropes are made equal; some are actively harmful to real people, while others are just annoying or boring by the nature of having been done to death. During the character creation process, research what tropes might apply and just try to trace your logic. Does your blind character see the future because it's a common superpower in their world, or are you doing the ancient "Blind Seer" trope?
Remember, that not all of the above questions will come up in your writing, but to know which ones won't you need to know the answers to them first. Even if you don't decide to explicitly name your character's condition, you will be aware of what they might function like. You will be able to add more depth to your character if you decide that they have T6 spina bifida, rather than if you made them into an ambiguous wheelchair user with ambiguous symptoms and ambiguous needs. Embrace research as part of your process and your characters will be better representation, sure, but they will also make more sense and seem more like actual people; same with the world that they are a part of.
This post exists to help you establish the basics of your character's disability so that you can do research on your own and answer some of the most common ("what are symptoms of x?") questions by yourself. If you have these things already established, it will also be easier for us to answer any possible questions you might have - e.g. "what would a character with complete high-level paraplegia do in a world where the modern kind of wheelchair has not been invented yet?" is much more concise than just "how do I write a character with paralysis?" - I think it's more helpful for askers as well; a vague answer won't be much help, I think.
I hope that this post is helpful!
Mod Sasza
I stand in front of a crowd and tap the microphone. "Disabled people deserve full bodily autonomy," I announce, and the crowd devolves into shouting. I am being asked about every single contingency in which bodily autonomy can possibly be taken away. I am not allowed to ask these people why they want so badly to control disabled people's lives. I am a representative, after all.
A man in the third row calls me a whore. A woman up near the front calls me a filthy god-hating anarchist. I am the villain of the story. I'm ruining their childhoods when I point out the flaws and ableist tropes in media that I never said they weren't allowed to enjoy. I'm policing their language when I ask them not to use slurs.
Someone else calls me a fascist. A Creationist with Calvinist leanings is using the same arguments against me as the literal social Darwinist. The topic of "faking disability" is brought up and everyone suddenly has a story to share and presents it to me. I am horrified by most of these stories because they feature ambulatory wheelchair users being harassed and young people with invisible disabilities being chased out of bathrooms.
I tap the microphone again and announce, louder, "Autism speaks is actually a hate organization." At this rate, I'm never going to get to my powerpoint on the social/medical model of disability and why the intersection is important. But I am a representative, and in between the name calling and accusations, they are asking me questions. And so I answer.
Disclaimer: Though I have been using a cane for 6 years, I am not a doctor, nor am I by any means an expert. This guide is true to my experience, but there are as many ways to use a cane as there are cane users!
This guide will not include: White canes for blindness, crutches, walkers, or wheelchairs as I have no personal experience with these.
This is meant to be a general guide to get you started and avoid some common mishaps/misconceptions, but you absolutely should continue to do your own research outside of this guide!
The biggest recurring problem I've seen is using the cane on the wrong side. The cane goes on the opposite side of the pain! If your character has even-sided pain or needs it for balance/weakness, then use the cane in the non-dominant hand to keep the dominant hand free. Some cane users also switch sides to give their arm a rest!
A cane takes about 20% of your weight off the opposite leg. It should fit within your natural gait and become something of an extension of your body. If you need more weight off than 20%, then crutches, a walker, or a wheelchair is needed.
Putting more pressure on the cane, using it on the wrong side, or having it at the wrong height will make it less effective, and can cause long term damage to your body from improper pressure and posture. (Hugh Laurie genuinely hurt his body from years of using a cane wrong on House!)
(an animated GIF of a cane matching the natural walking gait. It turns red when pressure is placed on it.)
When going up and down stairs, there is an ideal standard: You want to use the handrail and the cane at the same time, or prioritize the handrail if it's only on one side. When going up stairs you lead with your good leg and follow with the cane and hurt leg together. When going down stairs you lead with the cane, then the good leg, and THEN the leg that needs help.
Realistically though, many people don't move out of the way for cane users to access the railing, many stairs don't have railings, and many are wet, rusty, or generally not ideal to grip.
In these cases, if you have a friend nearby, holding on to them is a good idea. Or, take it one step at a time carefully if you're alone.
Now we come to a very common mistake I see... Using fashion canes for medical use!
(These are 4 broad shapes, but there is INCREDIBLE variation in cane handles. Research heavily what will be best for your character's specific needs!)
The handle is the contact point for all the weight you're putting on your cane, and that pressure is being put onto your hand, wrist, and shoulder. So the shape is very important for long term use!
Knob handles (and very decorative handles) are not used for medical use for this reason. It adds extra stress to the body and can damage your hand to put constant pressure onto these painful shapes.
The weight of a cane is also incredibly important, as a heavier cane will cause wear on your body much faster. When you're using it all day, it gets heavy fast! If your character struggles with weakness, then they won't want a heavy cane if they can help it!
This is also part of why sword canes aren't usually very viable for medical use (along with them usually being knob handles) is that swords are extra weight!
However, a small knife or perhaps a retractable blade hidden within the base might be viable even for weak characters.
Bases have a lot of variability as well, and the modern standard is generally adjustable bases. Adjustable canes are very handy if your character regularly changes shoe height, for instance (gotta keep the height at your hip!)
Canes help on most terrain with their standard base and structure. But for some terrain, you might want a different base, or to forego the cane entirely! This article covers it pretty well.
Many cane users decorate their canes! Stickers are incredibly common, and painting canes is relatively common as well! You'll also see people replacing the standard wrist strap with a personalized one, or even adding a small charm to the ring the strap connects to. (nothing too large, or it gets annoying as the cane is swinging around everywhere)
(my canes, for reference)
If your character uses a cane full time, then they might also have multiple canes that look different aesthetically to match their outfits!
When it comes to practical things outside of the cane, you reasonably only have one hand available while it's being used. Many people will hook their cane onto their arm or let it dangle on the strap (if they have one) while using their cane arm, but it's often significantly less convenient than 2 hands. But, if you need 2 hands, then it's either setting the cane down or letting it hang!
For this reason, optimizing one handed use is ideal! Keeping bags/items on the side of your free hand helps keep your items accessible.
When sitting, the cane either leans against a wall or table, goes under the chair, or hooks onto the back of the chair. (It often falls when hanging off of a chair, in my experience)
When getting up, the user will either use their cane to help them balance/support as they stand, or get up and then grab their cane. This depends on what it's being used for (balance vs pain when walking, for instance!)
That's everything I can think of for now. Thank you for reading my long-but-absolutely-not-comprehensive list of things to keep in mind when writing or drawing a cane user!
Happy disability pride month! Go forth and make more characters use canes!!!
one of the biggest things I can recommend to anyone getting a new custom chair (but especially a first custom chair) is to understand all of the parts of a wheelchair and what they do. I decided to make a guide with wheelchair parts to research and places to look for information to make this process a little bit easier. additional link suggestions are welcome.
General resources:
Permobil - The Wheelchair Handbook
Motion Composites - Preparing for Your Wheelchair Evaluation: Before the Evaluation (Part 1)
Motion Composites - Preparing for Your Wheelchair Evaluation (Part 2)
1. Frame
Motion Composites - Folding vs Rigid Wheelchair Frames: How to Choose
Permobil - Manual wheelchairs: rigid and folding frames. How do you choose?
GTK - Oh what’s in a frame? Comparing Multiple Materials
Motion Composites - Wheelchairs: Carbon Fiber Versus Aluminum
2. Front frame angle
Motion Composites - Understanding the Impact of Rigid Wheelchair Front Frame Angle
Sunrise Medical - Rigid Frame Wheelchairs – Frame Angle and Inset
4. Seat dump
Permobil - Ergonomic Seating and Manual Wheelchairs
Spinlife - Wheelchair Back & Seat Angle
5. Caster size, style, and position
Motion Composites - Front Casters for Manual Wheelchairs Practical Guide
Sunrise Medical - Front Caster Position in Manual Wheelchairs
6. Caster forks
New Mobility - Caster Wheels and Forks
Sunrise Medical - Maneuverability in Manual Wheelchairs - What Fork to use?
New Mobility - Innovations: Emerging Trends in the Wheelchair Market (information about single sided forks)
7. Footplate
Motion Composites - Footrest Options to Support Function and Mobility
When Tania Talks - Active User Wheelchair Footplate Options
8. Calf strap
Spex Seating - Lower Leg Support Considerations in Wheelchair Seating
9. Seat pan
Permobil - Solid Seat Insert for Wheelchair: Taking a Closer Look at Cushion Components
10. Seat cushion
Permobil - What to Look for in Seating & Positioning Products
Permobil - How to Choose a Cushion in Long Term Care
Permobil - Cushion Geometry: Linear and Contoured
Freedom Mobility Center - Wheelchair Seat Cushions: 5 Tips for Choosing the Right One for You
Mobility Basics - Seat Cushion Rigidizer
Motion Composites - Selecting the Right Cushion for Your Wheelchair a Clinicians Guide
Motion Composites - Covering the Basics of Wheelchair and Back Support Covers
11. Seat belts
12. Clothing guards
Sherman Oaks Medical Equipment - Wheelchair Clothes Guards / Side Guards Guide
13. Arm rests
United Spinal Association - Wheelchair Armrests What Do They Really Do?
Spinlife - Wheelchair Arm Rest Choices
Motion Composites - Armrests: Getting the Support you Need
14. Back supports
Motion Composites - Solid vs Upholstery Backs
Mobility Management - How to Choose the Right Back Height for your Client
Freedom Mobility Center - Why a Solid Back is Preferred Over a Sling Back
Mobility Basics - Back Supports
Sunrise Medical - Tips for Selecting Prefabricated Wheelchair Backs
Motion Composites - Covering the Basics of Wheelchair and Back Support Covers
15. Head supports
16. Push handles
Motion Composites - Push Handles: Pushing Around
17. Wheels
Motion Composites - Rolling Along: The Importance of Rear Wheel Selection
Sunrise Medical - Comparing Wheelchair Wheel Spoke Options
Mobility Basics - Manual Wheelchair Wheels
18. Tires
New Mobility - Everything You Need to Know About Selecting the Right Wheelchair Tires
GTK - Solid versus Pneumatic Tyres
Mobility Basics - Manual Wheelchair Wheels
Motion Composites - Tire Selection: Balancing Performance and Maintenance
19. Brakes
Motion Composites - Wheel Locks: Unlocking Safety and Function
20. Push rims/Hand rims
Motion Composites - Getting a Grasp: Understanding the Impact of Hand Rims
DME Hub - Wheelchair Hand Rom Options and Factors to Consider
21. Anti-tip wheels
22. Camber
Motion Composites - Camber - Degrees of Performance
23. Center of Gravity
Motion Composites - Rear Wheel Position 101
I think wed all benefit if everyone on this website learned that sex work isn’t just part of a feminist issue, it’s part of a modern cultural erasure of sex and pleasure and a class antagonism that has been fostered since the advent of capitalism, and more importantly: I like my fucking job
Not smoking weed before I use my forearm crutches so I'm not operating machinery under the influence
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