If You Ever Feel Like You're Not "smart Enough" For STEM Or Didn't Do That Great In School, I Just Wanna

Honesty, some of these genuinely changed my life once I started to really listen and incorporated them into it

collection of useful things tumblr has taught me:

even if you can't fall asleep, laying down with your eyes closed will still rest your body

you don't have to brush your teeth standing up

you don't have to do any chore standing up, from dishes to showering

you don't have to shower with the lights on

if you can't brush your teeth, flossing and a tongue scraper gets rid of plaque and bad breath

if you can't do that, mouthwash kills a lot of bacteria

eating "unhealthy" food is better than eating no food

you can make the same meal everyday for however long you still want it

some pills come in syrups or chewables if you can't swallow them

kids nutritional shakes can be a quick way to get fuel if you can't eat/don't have time

if walking hurts/exhausts you on a regular basis, canes and rollers are for you, no matter how young you are

we have free will—if doing something "out of the ordinary" makes life easier for you, do it

TW sleep deprivation, derealisation, depersonalisation, hallucinations, suicidal thoughts

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Can we talk about the effects of spending all of your formative years dealing with chronic pain? About what comes with it besides "just" the pain?

I used to routinely go days without sleeping. And I don't mean the way some people say they "didn't sleep at all last night" when actually they did sleep 2 hours. I mean no sleep at all for 3-4 ish days, I'm not sure bc my memories from that time are fuzzy (wonder why). The pain kept me up night after night. And it wasn't until the overwhelming urge to sleep finally won over the pain that I would be able to sleep.

Do you know what happens when you go without sleep for too long?

At first, you're just more tired than usual, it gets harder to concentrate, you get snappy easier. Then it'll feel like everything is too loud or slightly shushed like you're in a bubble, it's hard to focus your eyes properly, the ground and the walls get squiggly. Obviously, the pain you already have gets exponentially worse but also different, heavier.

If you are awake still, you'll start to have micro sleeps. That's when your brain shuts down briefly for a micro second while you're awake bc it fucking needs to sleep. Time feels weird, stretching and shrinking in on itself. It won't feel real. You won't feel real. You'll forget basic shit like your own name.

It varies from person to person how long you have to go without sleep before the visual and auditory hallucinations start. But if you're awake for long enough, they will start. Whispers of your name when you're alone, songs playing when there's no music on, shadow people in your peripheral vision.

Maybe you'll think about killing yourself just to make it stop. Maybe you don't even think killing yourself would mean death, but instead you belive you'll wake up and everything will be back to normal. Your ability to reason, to think logically will twist.

Eventually, the urge to sleep will be greater than the pain and finally you will get to rest.

I understand all too well why sleep deprivation is used as torture.

In what universe does experiencing this countless of times when you're a literal teenager not affect you when you're an adult. Even when it doesn't happen anymore bc of semi proper pain management and meds to sleep. It haunts me. Still.

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The Disability Library

I love books, I love literature, and I love this blog, but it's only been recently that I've really been given the option to explore disabled literature, and I hate that. When I was a kid, all I wanted was to be able to read about characters like me, and now as an adult, all I want is to be able to read a book that takes us seriously.

And so, friends, Romans, countrymen, I present, a special disability and chronic illness booklist, compiled by myself and through the contributions of wonderful members from this site!

As always, if there are any at all that you want me to add, please just say. I'm always looking for more!

Edit 20/10/2023: You can now suggest books using the google form at the bottom!

Updated: 31/08/2023

Articles and Chapters

The Drifting Language of Architectural Accessibility in Victor Hugo's Notre-Dame de Paris, Essaka Joshua, 2012

Early Modern Literature and Disability Studies, Allison P. Hobgood, David Houston Wood, 2017

How Do You Develop Whole Object Relations as an Adult?, Elinor Greenburg, 2019

Making Do with What You Don't Have: Disabled Black Motherhood in Octavia E. Butler's Parable of the Sower and Parable of the Talents, Anna Hinton, 2018

Necropolitics, Achille Mbeme, 2003 OR Necropolitics, Achille Mbeme, 2019

Wasted Lives: Modernity and Its Outcasts, Zygmunt Bauman, 2004

Witchcraft and deformity in early modern English Literature, Scott Eaton, 2020

Books

Fiction:

Misc:

10 Things I Can See From Here, Carrie Mac

A-F:

A Curse So Dark and Lonely, (Series), Brigid Kemmerer

Akata Witch, (Series), Nnedi Okorafor

A Mango-Shaped Space, Wendy Mass

Ancillary Justice, (Series), Ann Leckie

An Unkindness of Ghosts, Rivers Solomon

An Unseen Attraction, (Series), K. J. Charles

A Shot in the Dark, Victoria Lee

A Snicker of Magic, Natalie Lloyd

A Song of Ice and Fire, (series), George R. R. Martin

A Spindle Splintered, (Series), Alix E. Harrow

A Time to Dance, Padma Venkatraman

Bath Haus, P. J. Vernon

Beasts of Prey, (Series), Ayana Gray

The Bedlam Stacks, (Series), Natasha Pulley

Black Bird, Blue Road, Sofiya Pasternack

Black Sun, (Series), Rebecca Roanhorse

Blood Price, (Series), Tanya Huff

Borderline, (Series), Mishell Baker

Breath, Donna Jo Napoli

The Broken Kingdoms, (Series), N.K. Jemisin

Brute, Kim Fielding

Cafe con Lychee, Emery Lee

Carry the Ocean, (Series), Heidi Cullinan

Challenger Deep, Neal Shusterman

Cinder, (Series), Marissa Meyer

Clean, Amy Reed

Connection Error, (Series), Annabeth Albert

Cosima Unfortunate Steals A Star, Laura Noakes

Crazy, Benjamin Lebert

Crooked Kingdom, (Series), Leigh Bardugo

Daniel Cabot Puts Down Roots, (Series), Cat Sebastian

Daniel, Deconstructed, James Ramos

Dead in the Garden, (Series), Dahlia Donovan

Dear Fang, With Love, Rufi Thorpe

Deathless Divide, (Series), Justina Ireland

The Degenerates, J. Albert Mann

The Doctor's Discretion, E.E. Ottoman

Earth Girl, (Series), Janet Edwards

Everyone in This Room Will Someday Be Dead, Emily R. Austin

The Extraordinaries, (Series), T. J. Klune

The Extraordinary Education of Nicholas Benedict, (Series), Trenton Lee Stewart

Fight + Flight, Jules Machias

The Final Girl Support Group, Grady Hendrix

Finding My Voice, (Series), Aoife Dooley

The First Thing About You, Chaz Hayden

Follow My Leader, James B. Garfield

Forever Is Now, Mariama J. Lockington

Fortune Favours the Dead, (Series), Stephen Spotswood

Fresh, Margot Wood

H-0:

Harmony, London Price

Harrow the Ninth, (series), Tamsyn Muir

Hench, (Series), Natalia Zina Walschots

Highly Illogical Behaviour, John Corey Whaley

Honey Girl, Morgan Rogers

How to Become a Planet, Nicole Melleby

How to Bite Your Neighbor and Win a Wager, (Series), D. N. Bryn

How to Sell Your Blood & Fall in Love, (Series), D. N. Bryn

Hunger Pangs: True Love Bites, Joy Demorra

I Am Not Alone, Francisco X. Stork

The Immeasurable Depth of You, Maria Ingrande Mora

In the Ring, Sierra Isley

Into The Drowning Deep, (Series), Mira Grant

Iron Widow, (Series), Xiran Jay Zhao

Izzy at the End of the World, K. A. Reynolds

Jodie's Journey, Colin Thiele

Just by Looking at Him, Ryan O'Connell

Kissing Doorknobs, Terry Spencer Hesser

Lakelore, Anna-Marie McLemore

Learning Curves, (Series), Ceillie Simkiss

Let's Call It a Doomsday, Katie Henry

The Library of the Dead, (Series), TL Huchu

The Lion Hunter, (Series), Elizabeth Wein

Lirael, (Series), Garth Nix

Long Macchiatos and Monsters, Alison Evans

Love from A to Z, (Series), S.K. Ali

Lycanthropy and Other Chronic Illnesses, Kristen O'Neal

Never Let Me Go, Kazuo Ishiguro

The Never Tilting World, (Series), Rin Chupeco

The No-Girlfriend Rule, Christen Randall

Nona the Ninth, (series), Tamsyn Muir

Noor, Nnedi Okorafor

Odder Still, (Series), D. N. Bryn

Once Stolen, (Series), D. N. Bryn

One For All, Lillie Lainoff

On the Edge of Gone, Corinne Duyvis

Origami Striptease, Peggy Munson

Our Bloody Pearl, (Series), D. N. Bryn

Out of My Mind, Sharon M. Draper

P-T:

Parable of the Sower, (Series), Octavia E. Butler

Parable of the Talents, (Series), Octavia E. Butler

Percy Jackson & the Olympians, (series), Rick Riordan

Pomegranate, Helen Elaine Lee

The Prey of Gods, Nicky Drayden

The Pursuit Of..., (Series), Courtney Milan

The Queen's Thief, (Series), Megan Whalen Turner

The Quiet and the Loud, Helena Fox

The Raging Quiet, Sheryl Jordan

The Reanimator's Heart, (Series), Kara Jorgensen

The Remaking of Corbin Wale, Joan Parrish

Roll with It, (Series), Jamie Sumner

Russian Doll, (Series), Cristelle Comby

The Second Mango, (Series), Shira Glassman

Scar of the Bamboo Leaf, Sieni A.M

Shaman, (Series), Noah Gordon

Sick Kids in Love, Hannah Moskowitz

The Silent Boy, Lois Lowry

Six of Crows, (Series) Leigh Bardugo

Sizzle Reel, Carlyn Greenwald

The Spare Man, Mary Robinette Kowal

The Stagsblood Prince, (Series), Gideon E. Wood

Stake Sauce, Arc 1: The Secret Ingredient is Love. No, Really, (Series), RoAnna Sylver

Stars in Your Eyes, Kacen Callender [Expected release: Oct 2023]

The Storm Runner, (Series), J. C. Cervantes

Stronger Still, (Series), D. N. Bryn

Sweetblood, Pete Hautman

Tarnished Are the Stars, Rosiee Thor

The Theft of Sunlight, (Series), Intisar Khanani

Throwaway Girls, Andrea Contos

Top Ten, Katie Cotugno

Torch, Lyn Miller-Lachmann

Treasure, Rebekah Weatherspoon

Turtles All the Way Down, John Green

U-Z:

Unlicensed Delivery, Will Soulsby-McCreath Expected release October 2023

Verona Comics, Jennifer Dugan

Vorkosigan Saga, (Series), Lois McMaster Bujold

We Are the Ants, (Series), Shaun David Hutchinson

The Weight of Our Sky, Hanna Alkaf

Whip, Stir and Serve, Caitlyn Frost and Henry Drake

The Whispering Dark, Kelly Andrew

Wicked Sweet, Chelsea M. Cameron

Wonder, (Series), R. J. Palacio

Wrong to Need You, (Series), Alisha Rai

Ziggy, Stardust and Me, James Brandon

Graphic Novels:

A Quick & Easy Guide to Sex & Disability, (Non-Fiction), A. Andrews

Constellations, Kate Glasheen

Dancing After TEN: a graphic memoir, (memoir) (Non-Fiction), Vivian Chong, Georgia Webber

Everything Is an Emergency: An OCD Story in Words Pictures, (memoir) (Non-Fiction), Jason Adam Katzenstein

Frankie's World: A Graphic Novel, (Series), Aoife Dooley

The Golden Hour, Niki Smith

Nimona, N. D. Stevenson

The Third Person, (memoir) (Non-Fiction), Emma Grove

Magazines and Anthologies:

Artificial Divide, (Anthology), Robert Kingett, Randy Lacey

Beneath Ceaseless Skies #175: Grandmother-nai-Leylit's Cloth of Winds, (Article), R. B. Lemburg

Defying Doomsday, (Anthology), edited by Tsana Dolichva and Holly Kench

Josee, the Tiger and the Fish, (short story) (anthology), Seiko Tanabe

Nothing Without Us, edited by Cait Gordon and Talia C. Johnson

Nothing Without Us Too, edited by Cait Gordon and Talia C. Johnson

Unbroken: 13 Stories Starring Disabled Teens, (Anthology), edited by Marieke Nijkamp

Uncanny #24: Disabled People Destroy Science Fiction, (Anthology), edited by: Elsa Sjunneson-Henry, Dominik Parisien et al.

Uncanny #30: Disabled People Destroy Fantasy, (Anthology), edited by: Nicolette Barischoff, Lisa M. Bradley, Katharine Duckett

We Shall Be Monsters, edited by Derek Newman-Stille

Manga:

Perfect World, (Series), Rie Aruga

The Sky is Blue with a Single Cloud, (Short Stories), Kuniko Tsurita

Non-Fiction:

Academic Ableism: Disability and Higher Education, Jay Timothy Dolmage

A Disability History of the United States, Kim E, Nielsen

The Architecture of Disability: Buildings, Cities, and Landscapes beyond Access, David Gissen

Being Seen: One Deafblind Woman's Fight to End Ableism, Elsa Sjunneson

Black Disability Politics, Sami Schalk

Borderline, Narcissistic, and Schizoid Adaptations: The Pursuit of Love, Admiration, and Safety, Dr. Elinor Greenburg

Brilliant Imperfection: Grappling with Cure, Eli Clare

The Cambridge Companion to Literature and Disability, Barker, Clare and Stuart Murray, editors.

The Capacity Contract: Intellectual Disability and the Question of Citizenship, Stacy Clifford Simplican

Capitalism and Disability, Martha Russel

Care work: Dreaming Disability Justice, Leah Lakshmi Piepzna-Samarasinha

Catatonia, Shutdown and Breakdown in Autism: A Psycho-Ecological Approach, Dr Amitta Shah

The Collected Schizophrenias: Essays, Esme Weijun Wang

Crip Kinship, Shayda Kafai

Crip Up the Kitchen: Tools, Tips and Recipes for the Disabled Cook, Jules Sherred

Culture – Theory – Disability: Encounters between Disability Studies and Cultural Studies, Anne Waldschmidt, Hanjo Berressem, Moritz Ingwersen

Decarcerating Disability: Deinstitutionalization and Prison Abolition, Liat Ben-Moshe

Demystifying Disability: What to Know, What to Say, and How to Be an Ally, Emily Ladau

Dirty River: A Queer Femme of Color Dreaming Her Way Home, Leah Lakshmi Piepzna-Samarasinha

Disability Pride: Dispatches from a Post-ADA World, Ben Mattlin

Disability Visibility: First-Person Stories From the Twenty-First Century, Alice Wong

Disfigured: On Fairy Tales, Disability and Making Space, Amanda Leduc

Every Cripple a Superhero, Christoph Keller

Exile and Pride: Disability, Queerness and Liberation, Eli Clare

Feminist Queer Crip, Alison Kafer

The Future Is Disabled: Prophecies, Love Notes, and Mourning Songs, Leah Lakshmi Piepzna-Samarasinha

Growing Up Disabled in Australia, Carly Findlay

It's Just Nerves: Notes on a Disability, Kelly Davio

The Immortal Life of Henrietta Lacks, Rebecca Skloot

Language Deprivation & Deaf Mental Health, Neil S. Glickman, Wyatte C. Hall

The Minority Body: A Theory of Disability, Elizabeth Barnes

My Body and Other Crumbling Empires: Lessons for Healing in a World That Is Sick, Lyndsey Medford

No Right to Be Idle: The Invention of Disability, 1840s-1930s, Sarah F. Rose

Nothing About Us Without Us: Disability Oppression and Empowerment, James I. Charlton

The Pedagogy of Pathologization Dis/abled Girls of Color in the School-prison Nexus, Subini Ancy Annamma

Physical Disability in British Romantic Literature, Essaka Joshua

QDA: A Queer Disability Anthology, Raymond Luczak, Editor.

The Right to Maim: Debility, Capacity, Disability, Jasbir K. Puar

Sitting Pretty, (memoir), Rebecca Taussig

Sounds Like Home: Growing Up Black & Deaf in the South, Mary Herring Wright

Surviving and Thriving with an Invisible Chronic Illness: How to Stay Sane and Live One Step Ahead of Your Symptoms, Ilana Jacqueline

The Things We Don't Say: An Anthology of Chronic Illness Truths, Julie Morgenlender

Uncanny Bodies: Superhero Comics and Disability, Scott T. Smith, José Alaniz 

Uncomfortable Labels: My Life as a Gay Autistic Trans Woman, (memoir), Laura Kate Dale

Unmasking Autism, Devon Price

The War on Disabled People: Capitalism, Welfare and the Making of a Human Catastrophe, Ellen Clifford

We've Got This: Essays by Disabled Parents, Eliza Hull

Year of the Tiger: An Activist's Life, (memoir) (essays) Alice Wong

Picture Books:

A Day With No Words, Tiffany Hammond, Kate Cosgrove-

A Friend for Henry, Jenn Bailey, Mika Song

Ali and the Sea Stars, Ali Stroker, Gillian Reid

All Are Welcome, Alexandra Penfold, Suzanne Kaufman

All the Way to the Top, Annette Bay Pimentel, Jennifer Keelan-Chaffins, Nabi Ali

Can Bears Ski?, Raymond Antrobus, Polly Dunbar

Different -- A Great Thing to Be!, Heather Alvis, Sarah Mensinga

Everyone Belongs, Heather Alvis, Sarah Mensinga

I Talk Like a River, Jordan Scott, Sydney Smith

Jubilee: The First Therapy Horse and an Olympic Dream, K. T. Johnson, Anabella Ortiz

Just Ask!, Sonia Sotomayor, Rafael López

Kami and the Yaks, Andrea Stenn Stryer, Bert Dodson

My Three Best Friends and Me, Zulay, Cari Best, Vanessa Brantley-Newton

Rescue & Jessica: A Life-Changing Friendship, Jessica Kensky, Patrick Downes, Scott Magoon

Sam's Super Seats, Keah Brown, Sharee Miller

Small Knight and the Anxiety Monster, Manka Kasha

We Move Together, Kelly Fritsch, Anne McGuire, Eduardo Trejos

We're Different, We're the Same, and We're All Wonderful!, Bobbi Jane Kates, Joe Mathieu

What Happened to You?, James Catchpole, Karen George

The World Needs More Purple People, Kristen Bell, Benjamin Hart, Daniel Wiseman

You Are Enough: A Book About Inclusion, Margaret O'Hair, Sofia Sanchez, Sofia Cardoso

You Are Loved: A Book About Families, Margaret O'Hair, Sofia Sanchez, Sofia Cardoso

The You Kind of Kind, Nina West, Hayden Evans

Zoom!, Robert Munsch, Michael Martchenko

Plays:

Peeling, Kate O'Reilly

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With an extra special thank you to @parafoxicalk @craftybookworms @lunod @galaxyaroace @shub-s @trans-axolotl @suspicious-whumping-egg @ya-world-challenge @fictionalgirlsworld @rubyjewelqueen @some-weird-queer-writer @jacensolodjo @cherry-sys @dralthon @thebibliosphere @brynwrites @aj-grimoire @shade-and-sun @ceanothusspinosus @edhelwen1 @waltzofthewifi @spiderleggedhorse @sleepneverheardofher @highladyluck @oftheides @thecouragetobekind @nopoodles @lupadracolis @elusivemellifluence @creativiteaa @moonflowero1 @the-bi-library @chronically-chaotic-cryptid for your absolutely fantastic contributions!

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Submit a Book:

I could not agree more! You get it. Sometimes (often I feel) being disabled does make you a burden and that's okay. There should be nothing wrong or shameful about that - it is simply stating facts and acknowledging reality.

as much as i appreciate the intent of the “being disabled doesn’t make you a burden” type posts, i don’t really agree. a lot of times being disabled DOES make you a burden

& i think that maybe we should try to shift focus to the fact that even if you’re a huge burden on society and can contribute absolutely nothing, you’re still a human being who deserves to exist.

like. there’s nothing morally wrong with being a burden on other people. you aren’t a bad person for needing to rely on others. you’re allowed to be a burden & disabled people who are burdens on others, i love you

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disabled people are worth whatever cost or resources is needed to keep them alive. disabled people are worth it even if they don't live long. they're worth it even if they will need extra support and resources for every day of their life. they're worth it even if they spend all they life indoors. none of it is wasted. none of it is in vain. time, effort, money, resources spent on a life are not wasted. these things have served their purpose. the joy of someone's existence is not undermined by not lasting forever. there's no meaningful point, some threshold where you can say "okay this is enough. after that it's not worth it." it's always worth it.

schizophrenia is not just experiencing positive symptoms (hallucinations and delusions). a lot of schizophrenics are neurodivergent in other ways. this focus on the positive symptoms is a villainious way to gatekeep us from neurodivergent spaces because our positive symptoms are typically portrayed as "scary".

our negative symptoms (flat effect, being withdrawn, avolition and anhedonia) are skewed to portray us as "evil" because we're not "emotive" or "caring" enough. schizospec disorders make everyday activities so hard. basic hygiene isn't a habit, we have little to no motivation to do basic things, the lack of happiness and pleasure can turn into severe depression for some of us and that's why depressive and bipolar schizoaffectives exist. people don't grasp the fact that schizophrenia is a disability.

i've personally experienced a lot of cruelty from other neurodivergent people because there is little to no education on schizospec disorders even within neurodivergent spaces. we're seen as inherently morally reprehensible for our disorder and people are so casually ableist to us. i'm not able to speak up for myself in these spaces because i feel like there is no where else i can go. neurotypicals are cruel to schizophrenics but so are other neurodivergent people. people need to have more care and love for schizophrenics.

yes that includes schizophrenics with little to no empathy, schizophrenics of color, trans schizophrenics, gay schizophrenics, schizophrenic systems, autistic schizophrenics, schizophrenics with adhd, fat schizophrenics, poor schizophrenics, homeless schizophrenics, schizophrenic sex workers, schizophrenics who've experienced abuse, schizophrenics with ocd, schizophrenics with ptsd/cptsd, schizophrenic children and teens, elderly schizophrenics, schizophrenics who are also physically disabled, all schizophrenics.

all schizophrenics deserve love.

Seeking advice: new wheelchair user

I will be using a wheelchair semi-regularly the next month to see if it will help reduce pain flare-ups / baseline pain and to figure out if it's helpful for me.

Tomorrow is the first day and I am going to uni and therapy. I have only used a wheelchair a couple of times but I'm comfortable with folding it and such as my dad's disabled and it's his wheelchair I'm borrowing. In theory I know how to maneuver around but I'm nervous about it.

Do any wheelchair-users have tips/advice for new wheelchair-users?

Extra info: it's a foldable wheelchair, brand is Quickie. I'm nervous about tipping backwards (no anti-tip), going up and down curbs, taking the metro, painful hands/arms/shoulders.

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I love Switzerland’s entry so much

bitches just want us all to be perfectly perisex more than anything