I Am Constantly Worried That My Unpredictable Health Will Lose Me All My Friends. You Might Say Thats

never stop deal with this so this your periodic reminder that

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!! if you see someone write different online. unless they explicitly tell you something different. leave them alone. don’t comment on their write. don’t do anything unprompted to “help” without ask. it rude annoying we heard it million times promise. !!

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some people with language disorders. agrammatism. cognitive struggles. or write with symbol base AAC that not support grammar inflections.

yes we will sometimes write different than you use to.

yes it not “correct grammar,” you so observant (sarcasm).

no it not for fun, no it not choice, no it not writing quirk.

whatever you want say, we probably heard it million times. yes even if it friendly joke - n we appreciate you friendly. but please

great that it “actually help you read/understand better than full grammar.” some people may like you tell them that. but personally not want hear it too - my way write my disability, it about me n it not on purpose it out of my control. would rather you talk about how way break down concept (something can actually control n try really hard at) as easy understand.

“this just gave stroke/seizure/whatever ‘funny’ ‘edgy’ disability” joke. not that anyone make it would listen but. shut up. it not funny to me it not funny to stroke survivors or to seizure havers.

decide stop apologize for exist if it hard read. even if you have receptive language / comprehension / reading / cognitive / etc disability - it unfortunate but conflicting accessibility exist. (yes, do understand actually, because speak from experience.)

if you want know what am say please at least put in some effort to read it.

if after genuine try, still struggle, do what you do when you see tumblr post in “perfect grammar” you don’t understand - polite ask for explain or rephrase or summarize.

it still english, or whatever language person use. unless you actual look for it be turn different language, it still english, no you not need “translate.” (no don’t care that “translate” okay in writing quirk community because again. not writing quirk)

not “fix.”

and. understand sometimes we can’t rephrase in different way, even if that different way include still write different.

personally am allow other people answer “can you rephrase” questions without go through me first, for now, because of this. - but understand this is reluctant compromise. because:

understand sometimes we still sensitive to other people rewrite explain in perfect grammar. because have long history of people refuse put effort in read our stuff but instead always give more attention to people who write perfect, even if their writing not any less complicated than ours. because have long history of be charity case n get unsolicit “help” “translate” when we never ask.

because have long history of be forcibly spoken for n be misunderstood. because people who answer may (& many times do) get it wrong & we then have to spend more effort chase down n correct when we already struggle with communication, n that other version always spread faster than our correction.

so know other people who write different, don’t allow people rephrase at all unless go through them first. please also respect that even if inconvenient.

n on that note.

unless we give you explicit permission to you (like “you specifically can do it” or like above “can do it if someone ask,” or “anyone can do it all times”). don’t. don’t rewrite what we write into correct grammar, into perfect grammar.

don’t give random disabled person unsolicited help. it not friendly it not helpful it rude n annoying. not your charity case. who even are you. no one asked.

none. of. your. business.

not need your fix. get off moral high ground.

n like everything. there some jokes n comments that *some* people who write different may be okay with if they friend with that person make it - sometimes opposite of what this post say. if you not friend with that person then. maybe don’t.

people who write different not all same. sometimes okay or not okay with different things. but. this general see.

the first time you hear about [stuff am tell you in post] probably 456737th time we re-explain it. excuse us for be exhausted n done n our time be tired n angry n impatient.

this been a PSA.

UHC website has an article entitled "Response to Misinformation" in which it explicitly labels Luigi as a killer despite a trial not taking place. Which in itself is defamation and very telling of their concerns with pushing a narrative more than a legal and ethical perspective.

i had the same experience when i had to use the elevators.

alright lets get this out of the way.

school bathrooms should be unlocked during school ALWAYS

school children should be allowed to go to the bathroom ALWAYS

school children should NEVER have to ask to go to the bathroom, just tell the teacher that they need to go

schools should NEVER question a child on why they need the bathroom

schools should NEVER make jokes about how often a child uses the bathroom

schools should NEVER get angry at children for using the bathroom

NEVER should a teacher approach a child about their bathroom usage.

if there is a concern or problem with a childs use of the bathrooms, the school should speak to their parent or have a meeting involving the parents and the principle.

if there is misuse of the bathrooms, the school should speak to their parent or have a meeting involving the parents and the principle.

you never know what children could be dealing with, whether they have bladder issues, gi issues, mental health issues or other disabilities. some children may be using the bathroom to hide from bullies, or they may have addiction issues.

it doesnt matter. its shouldnt be the teachers job to police toilet usage. only when there is an issue should limits or supervision be put in place, AFTER meeting with their parents and potentially the student to figure out the reasons for such issues.

i know this is really controversial but im really sick of horror stories from kids like me who dealt with the shit that is school bathrooms

If you’ve ever related to the phrase “if you want something done right, do it yourself” then you have absolutely no right telling a disabled person with carers how it “must be so nice to have people help you to cook/ clean/ shower”

yes omgosh im having such a hard time finding brightly coloured wool yarnnnn

i just want natural fibre thats colourful pleaseeee

wish be knit with cool yarn rn

BFL & targee & cormo & rambouillet & —

this is officially my longest migraine. day 28.

i am beyond sick of this. mentally struggling with how reliant on my carer i have to be during migraines.

i can handle it when its only a few days but this long is a whole other world. i dont experience this level of dependance that often so im not really used to it still.

on day 5 of a migraine get me out of here

disabled people!!!

what are some illnesses/disabilities that youve never seen representation for and would love to see?

let me know in replies reblogs asks messages whatever suits you :3

STUNNING CRIES

Bloom

I’m practicing painting and I’ve been in a winx funk lately

one of the worst parts for me about chronic illness is not having answers.

im a very logical and analytical person i love things to make sense i love patterns and reasons.

i have answers for pats of my health, and im so grateful for that, but the parts that i dont have answers for haunt me.

i think about it all the time. what if its not real and thats why theres no answer? what if im not explaining my symptoms right and thats why i havent had the right test that would give me the right answer.

i know logically that its a waste of time to think about, but i cant help it, i obsess over it. not understanding the world is one thing, but not understanding my own body? my own life? thats what gets me.