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i am constantly worried that my unpredictable health will lose me all my friends. you might say thats irrational, but it has already happened to me twice.
i have been called flakey, unreliable, a downer and probably more i havent heard. and i cant help but wonder, if the world around me was accessible, would i be any of those things?
the lengths i go to for relationships never feels flaky or unreliable to me. but maybe to other people it doesnt matter why i cant show up sometimes. maybe all that matters to them is a yes or no are they here with no context.
try be accessible and lenient with your disabled friends please..
kinda proving my own point by posting about consistency and then getting really sick and going to hospital jfhdkd
“consistency is key” doesn’t apply to many disabled people.
going to the doctor and having them tell me that and that i need to stick to a schedule they have deemed appropriate is completely comedic.
what about the fact that my health and ability to do anything is a constant gamble? it can change drastically and almost instantly at any given time.
what about how right now i can stand up and make myself breakfast, but by lunch time? who knows. i may be unable to even sit up.
how do u listen to me explain that i dont have a daily or weekly schedule because of how unpredictable my health is, and reply by giving me a schedule.
do you not think i have tried to stick to a routine and schedule like all the healthy people around me??
all i see is people with consistency. i grew up thinking i was broken because i couldnt. i have pushed myself to breaking points trying to fit your mould of success and health.
im sorry if you experience this too. im going to make another post about what consistency can look like for me and other disabled people. because while we dont fit the classic definition of it, there are ways we can make our own version. i wish doctors would listen to me and would help me find my version instead of insisting on theirs, but they havent, so i wanna try help others find theirs.
“consistency is key” doesn’t apply to many disabled people.
going to the doctor and having them tell me that, and that i need to stick to a schedule they have deemed appropriate is completely comedic.
what about the fact that my health and ability to do anything is a constant gamble? it can change drastically and almost instantly at any given time.
what about how right now i can stand up and make myself breakfast, but by lunch time? who knows. i may be unable to even sit up.
how do u listen to me explain that i dont have a daily or weekly schedule because of how unpredictable my health is, and reply by giving me a schedule.
do you not think i have tried to stick to a routine and schedule like all the healthy people around me??
all i see is people with consistency. i grew up thinking i was broken because i couldnt. i have pushed myself to breaking points trying to fit your mould of success and health.
im sorry if you experience this too. im going to make another post about what consistency can look like for me and other disabled people. because while we dont fit the classic definition of it, there are ways we can make our own version. i wish doctors would listen to me and would help me find my version instead of insisting on theirs, but they havent, so i wanna try help others find theirs. prt. 2 here (now going to make multiple more posts on this topic lol)