Kinda Proving My Own Point By Posting About Consistency And Then Getting Really Sick And Going To Hospital

kinda proving my own point by posting about consistency and then getting really sick and going to hospital jfhdkd

“consistency is key” doesn’t apply to many disabled people.

going to the doctor and having them tell me that and that i need to stick to a schedule they have deemed appropriate is completely comedic.

what about the fact that my health and ability to do anything is a constant gamble? it can change drastically and almost instantly at any given time.

what about how right now i can stand up and make myself breakfast, but by lunch time? who knows. i may be unable to even sit up.

how do u listen to me explain that i dont have a daily or weekly schedule because of how unpredictable my health is, and reply by giving me a schedule.

do you not think i have tried to stick to a routine and schedule like all the healthy people around me??

all i see is people with consistency. i grew up thinking i was broken because i couldnt. i have pushed myself to breaking points trying to fit your mould of success and health.

im sorry if you experience this too. im going to make another post about what consistency can look like for me and other disabled people. because while we dont fit the classic definition of it, there are ways we can make our own version. i wish doctors would listen to me and would help me find my version instead of insisting on theirs, but they havent, so i wanna try help others find theirs.

More Posts from Zylahbee and Others

1 week ago

its devastating, seeing the life ive longed for happen to others while im stuck in bed in a flare up… again.. its so hard.

i unfollow a lot of people for this honestly, if i havent seen them in the past few years then i dont see the point in seeing a bunch of posts that make me feel bad, its sad.

Being chronically ill in your 20s is stupid you have to see your peers like “started a family🥰” “got married😍” “bought a house😇” “scored a promotion😋” meanwhile you’re fighting for your life to take a shower


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3 months ago
zylahbee - zylahbee
2 months ago

I wish health professionals understood that because I am disabled and in pain so much it takes a toll on my mental health...

that doesn't mean I have somatic symptom disorder

thanks for coming to my Ted talk

3 months ago

okay but why are so many medical professionals focused solely on getting their patients back to their jobs and not actually helping the patient feel better. like you will be literally unable to digest food or eat or do anything and they'll be like "that's not good we gotta get you BACK to WORK!!!!!!!!" and so they drag their heels and take up a bunch of time and give you treatments that don't work or take forever to give you ones that do and when you tell them. hey i still don't feel good the first thing is "BUT YOUR JOB!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!"

fuck my stupid job. i'm dying. i'm a person not a walking job. help me. a lot of medical professionals will refuse to do their job and instead lecture you about being unable to go to your job instead. unreal.

1 month ago

omark thinks if imark just finds out about gemma he'll love her the exact same way omark does and he becomes genuinely frustrated that that's just not the case. he just doesn't understand that his innie is his own person with his own relationships and memories that he takes just as seriously and just looking at and learning about his outies wife won't suddenly ignite something in him. oirving wanted to try to be loved the same way his innie was, idylan fell for gretchen as he got to know her. imark has helly, he doesn't know gemma, he doesn't need to reach across the barrier to find romantic connection, he's got everything he needs on the severed floor. and omark's inability to understand that is why his wife has been left alone in the lumon stairwell

2 months ago

im being referred to multiple new specialists and being put on multiple new medications im so exhausted and im sick of not getting any answers and only short term relief


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4 months ago

'People are panicking about AI tools the same way they did when the calculator was invented, stop worrying' cannot stress enough the calculator did not forcibly pervade every aspect of our lives, has such a low error rate it's a statistical anomaly when it does happen, isn't built on mass plagiarism, and does not obliterate the fucking environment when you use it. Be so fucking serious right now


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4 months ago

oh my gosh this is so helpful ive always felt so stupid for not knowing how to do IDs tysm for the info 😭🙏🏻

On Image Descriptions

We all know that feeling, we think our image descriptions are not good enough. We think they’re too short and insignificant. We wonder if it’s worth it posting one at all, but it’s always worth it. And here is why:

Even if an image description doesn’t mention everything in the image, it tells you a million things which aren’t in the image.

If your description is [ID: Reaction image of a nodding woman. /end ID] it tells you one million things. Such as: The image is not a tweet adding further information or context, it’s not a screenshot of a Snopes article debunking the post, it’s not someone disagreeing.

Those six little words, that nodding woman, it might not seem like a lot. It might seem like you can skip right over it, like it’s not worth mentioning - but it is.

An image could always be a wall of text explaining why OP is wrong, and simply knowing that’s not the case is super useful. Knowing that it’s just a reaction image, just a meme, just a photograph, is super useful.

Even a bad ID tells a lot.


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2 months ago

childhood potions and spells making my beloved

🪲🐞🐌

🪲🐞🐌

Kid-friendly interaction only please!

X, X, X

X, X, X

X, X, X


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2 months ago

i really cannot understand how people see disabled life as this glamorised lazy life. i genuinely cannot wrap my head around this.

how could ANY of what i go through be seen that way i just dont get it.


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zylahbee - zylahbee
zylahbee

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