Oh My Gosh This Is So Helpful Ive Always Felt So Stupid For Not Knowing How To Do IDs Tysm For The Info

i miss the beach so much

People wouldn't do XYZ to a person with [disability aid] is such a bad take. I guarantee they do. They always do.

oh wow, i love that honestly. it put into words exactly how ive felt about my acceptance of being disabled.

"Acceptance isn’t defeat: It’s a declaration of self-respect under irrefutable circumstances. This is where you are and you’re going to make the best out of every moment of it."

Ilana Jacqueline "Surviving and Thriving with an Invisible Chronic Illness: How to Stay Sane and Live One Step Ahead of Your Symptoms"

notalgia is so strange because what do u mean i long for things that remind me of the worst times of my life?

just got a second hand babydoll dress i am WINNING.

no because it just absolutely enrages me when people consider themselves a “freedom fighter” or an “activist” or whatever the fuck you wanna call it.

but then they dont apply that to all minorities.

why is one minority less worthy than the other?

i was trying to figure out why I find it so difficult to talk about my illness & disability with new people, or even people from my past, and I realized part of it is that I still feel like a phony? I didn't bring my cane last night and so it felt like I would get called a faker. or maybe that I was really a faker, see I'm out without my cane maybe I don't need it? and then the other part is that when it's a new person I feel like they're going to immediately run for the hills bc I am a huge red flag burden for so many reasons having these problems.

and then I thought about it some more & while some of that is kinda true, mostly I have to kill the ableist in my head. yes, sometimes it will be too much for people. but I have to let them make that choice. I have to just be who I am & let it happen even if it's heartbreaking to not meet new friends or connections. because not everyone will see it that way, and I literally cannot hide it so I have to just exist as I am and let the cards fall as they might.

alright lets get this out of the way.

school bathrooms should be unlocked during school ALWAYS

school children should be allowed to go to the bathroom ALWAYS

school children should NEVER have to ask to go to the bathroom, just tell the teacher that they need to go

schools should NEVER question a child on why they need the bathroom

schools should NEVER make jokes about how often a child uses the bathroom

schools should NEVER get angry at children for using the bathroom

NEVER should a teacher approach a child about their bathroom usage.

if there is a concern or problem with a childs use of the bathrooms, the school should speak to their parent or have a meeting involving the parents and the principle.

if there is misuse of the bathrooms, the school should speak to their parent or have a meeting involving the parents and the principle.

you never know what children could be dealing with, whether they have bladder issues, gi issues, mental health issues or other disabilities. some children may be using the bathroom to hide from bullies, or they may have addiction issues.

it doesnt matter. its shouldnt be the teachers job to police toilet usage. only when there is an issue should limits or supervision be put in place, AFTER meeting with their parents and potentially the student to figure out the reasons for such issues.

i know this is really controversial but im really sick of horror stories from kids like me who dealt with the shit that is school bathrooms

anyway be normal about people with renal or gastrointestinal disabilities and conditions. your personal hang ups about anyone's disability are worthless. leave them far away from disabled people.

I know I'm shouting into the void with this one but like. Genuinely so many low support needs people dont understand what it's like having even medium support needs. Like I am entirely dependent on other people for many of my needs. I can not see a doctor without someone else scheduling the appointment, taking me there and doing a large amount of the communication for me.

If my caretaker had not been accepting of me being trans and invested hundreds of hours into psych appointments and taking me to my endocrinologist and doing all the paperwork involved with my name change and literally taking a week off work to stay with me in the hospital for surgery etc i would have just like. Never transitioned. My ability to transition was entirely dependent on a singular person and that's what a lot of other parts of my life are like as well. and that's fucking terrifying and a great way to be neglected and abused in ways that are horribly hard to get away from.

I dont drive, I dont work, I struggle to leave the house at all, I dont fucking communicate with people majority of the time. The things that are hard for you? I probably can not do them to begin with. No one in my family lives even close to a comparable life to me. None of my irl friends do. I'm incredibly isolated.

And then I go online and see people rant about how easy MSN and HSN people have it because we just get everything we need and how because people can tell we are disabled everything is so easy because none of you even manage to listen to us talk about the neglect and abuse and trauma we face/d. I see people angry at their (more) disabled siblings for getting care they need to survive instead of mad at society for creating a system where its incredibly hard for families to take care of both a higher support needs child and another child.

And I see people who live completely independent lives who work and drive and make their own doctors appointments and grocery shop and travel by themselves call themselves MSN (I could go on a rant about how that's also often the fault of LSN influencers for not leaving a lot of room in their own community for legitimate struggle but that's for another day).

I just want my needs met. I want to be able to decide where I live. I want choice in my care. I want to be able to have community with those like me. I want others to realize I exist and leave the words i have to describe my existence alone. I want others to listen to what I have to say about what my life is like.