Disabled - Blog Posts

One doctor just throws you to another doctor and it is an endless cycle

My partner and I opened an Etsy shop! We’re planning to sell Pokemon-inspired items- patches, props, charms and the like- along with items like plushies and wood carvings! So far, we have three patches available in our shop, with a number of other designs in development :>

You can check out our shop at the link above, or search for GinkgoGuildGeneral on Etsy!

Every so often I almost forget that Cleo is the absolute best ever, but then something like this happens:

All the armor stand parkgoers in Scarland are adorable, but Scar saw this family and literally almost cried. And so did I. Cleo's storytelling in Minecraft is just unbeatable. Every little one of these wooden people has a real heart inside.

Does ANYBODY with pots have any tips on how to make some kind of progress with exercise, or at least not be completely out of spoons after? I miss running sm, and it's driving me crazy

No way I was ever a competitive gymnast

Anyone else sometimes forget the level of disabled they are because it's so normal to yourself?

Sometimes i'll remember something i used to do, something i was able to do and that i definitely wasn't thinking about and i'll have trouble believing it. I know i was walking up and down stairs multiple times a day everyday and oftentimes running them but. It just doesn't true. Like, what do you mean i used to walk a kilometre to school and back every day when i was only half my size?? That can't possibly be right? But somehow it is! I used to jump on those garden trampolines for hours on end. How???

Has anyone cracked the code to not being completely exhausted 24/7? I feel like I can only get my obligations done before it's right back to bed

The deafening ear ringing every time I stand up is going to drive me insane

How'd I dislocate my hip by sleeping 😭

Anybody else with ehlers danlos syndrome have sway back?

Idk how to fix it, but I was wondering if anyone else does this

Any other chronically I'll people have the experience as a kid where they just Didn't Feel Good? That kind where you couldn't describe your symptoms, or pinpoint anything specifically wrong with you, other than just feeling bad. That definitely should've been more of a red flag.

Yeah... text to speech has kinda saved my life in that area

My hands hurt a lot too. So like. Limited ability to be on my phone and type or to even play games. Thanks ehlers danlos and fucked up joints.

Random vent:

I legitimately do not know what is going to happen to me in the future. All I want is to be a firefighter, but two days into emt school and I'm already having a flare up. We went to visit the fire station today, and I nearly passed out just from standing still. I was always such an athletic child, and everyone expected that I would kick ass in this field, yet here I am, struggling to stand. I already knew that I would have a very short, painful career, but now I don't know if I can do it at all.

I always drink a ton of cold water and pour it over my head

Respectfully how the fuck do you take hot baths with pots and not die

Oh trust me, it’s not without consequences. I add cold water to the bath if it gets to be too much, and when I get out I immediately sit down in my towel while my heart calms down that way I don’t eat shit on the bathroom floor (and that’s also why I have to have the door unlocked, love that for me) I didn’t used to have heat intolerance but now I do, and my body hurts enough that I make the decision to walk through the flames of hell each time instead of dealing with my wack ass degenerative joints

Being a disabled person going into the medical field so so weird. Other disabled people are saying "fuck medical practitioners" and I'm like "...sorry? Idk what I did, but srry ig"

Question for others with hEDS, specifically those who use a wheelchair:

How does it not hurt your shoulders? I have hEDS, but don't use one, and just about anything hurts my shoulders. I was wondering how moving your chair around wouldn't hurt. Thanks!