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Disabled - Blog Posts
yes lets build more walls between disabled people and completely forget that mental illness is also disabling
you're either disabled or not there's nothing called "able bodied", the brain is part of the body too
seriously why do yall fall for this crap
(allistics may vote in this poll !!)
this poll was requested a while ago by an anonymous ask.
putting all of the leftie amerimutt vocabulary on the shelf until you idiots start writing your shitty essays on discrimination and oppression in a way that is digestable to non-english users
do you really fucking think everyone understands whatever the fuck "utilizing acceptance within power structures to their own benefits" or any other word salad of yours means?
just say you hate nonwesterners with your guts and go because that's the tactic ive seen - use complicated and niche words that an average nonwesterner does not comprehend, and when they (rightfully) are like "wtf is this even" you target them as racists/ableists/whatever ism has been invented in the past 7 days because this must mean they interact in bad faith
USE SIMPLE ENGLISH IN YOUR POST AND STOP ACTING LIKE EVERYONE IS OUT THERE TO ABUSE YOU, YOU FUCKING SCUTTLEBUGS
hot take but neetcore is appropiating and distorting the struggles of actual neets, making neetdom look like some „uwu otaku nerd anime fan” shit, making the result of severe disabilities (unclean rooms to the point of mold) an „aesthetic”
fuck neetcore and fuck you rich white kids who turn struggles into aesthetics
Transferian
A transferian system (AKA katamaric or amalgamic) is a median system where the facets "come and go". The core idea of transferians is that the facet(s) eventually become the host of the system, and while the old host leaves, it may leave fragments of its personality. The new host, taking on the role not only inherits the traits of former hosts but also adds their own traits.
Some traits of former hosts may be lost to time, but it's not permanent as they can be reintroduced by a facet that happens to have a similar aspect.
Note: While this term was coined with medians in mind, this is not a strictly exclusive term.
also on pluralpedia! (alt text embedded)
some of y'all got way too comfortable with looking every excuse to villianize a disabled person.
yes disabled people can also be shitty, but i don't see you have the same energy towards ableds?
different rant below
also i feel like the yell about "look disabled ppl are now closer to equality" is just. fake as hell. because me and many other people are still treated like second class citizens even among our own, we often live in loneliness because people DO NOT want to interact with us.
also, dear ableds please cherish your privilege on having social skills and mobility WITHOUT pushing it onto us like it's something everyone has.
"just go outside and make friends" what a way to say you are so privileged you have no big issues with socializing, rachel
Hey chat. Serious post fo today.
I am currently fixing to make arrangements for an appointment to get screened for cancer due to a bad report of an abnormality in my ovaries. It runs in my family which is why I, as of right now, am fucking terrified.
I recently got wrongfully fired from my job. And I, again, as of right now, and broke as fuck and am trying to find the right lawyer.
Even a fucking dollar would help and will go towards gas money for appointments if the worse comes to worse.
If you can’t donate, please spread the word.
Thank you :’)
shout out to “gross” disabled people.
people who can’t shower/bathe people who can’t shave people who can’t wash their clothes people who need help going to the bathroom people who have nasty habits (biting nails, picking nose, etc) people who can’t brush their teeth people who can’t go to the doctor people who can’t clean their room people who can’t make their beds people who vomit a lot people who wet the bed people who constantly have diarrhea people who’s physical deformities are seen as repulsive
and every other kind of person I missed that deserves to be here too.
you are people, first and foremost. your thoughts deserve to be heard, discussed, acknowledged, no matter what. you are not lesser. you are just another person. you should never be ignored for what you can/can’t do. you deserve care.
to abled people: check yourself. make sure you listen. and you can reblog, just don’t derail. maybe don’t add on, either.
This- this is SO true
important!!!
transcript:
A person with a somewhat masculine voice says in a higher pitched tone, “Blue hair is weird!” They then change their voice to their regular tone, and say, “I’m gonna teach you this how I would teach a child. I don’t know your life story, but for the sake of making this an educational video, I’m gonna use stereotypes, so only take what resonates with you.
One child is born in a seemingly functional, to their awareness, loving family, while the other is getting quite the opposite. You can’t choose that you’re born with it, so you’re put out in this world and the majority of your peers are like you, and the majority of your teachers, parents and authority are like you, and the majority of the media out there is showing people like you. So all of the kids that are not depicted by this media feel erased and different immediately from the time they’re born, how they are born. You may feel too feminine as a boy, too masculine as a girl, like you’re in the wrong body, like you don’t think exactly neurotypically as everyone else, you’re too thin, you’re too thick, you’re too dark, you’re not dark enough. Kids like this immediately understand the struggle of not being accepted by the majority, and if it’s not the peers doing it, keep in mind they have the same authority and media only depicting the majority of one type of person.
So both the outcasts and the masses are gonna ask the same question of how do I fit into society, and the majority of the authority and media is gonna be saying things like “God is the answer,” “man marries woman,” “girls are this way, boys this way.” You have a set amount of rules that if you have no reason to question, you’re not gonna disagree with. But when this world has taught you it’s not for people like you, you’re gonna ask, “why is it that way?” which brings us to, “who is teaching us this?” Oh, people from this era or earlier, who’s making this stuff, people in this era or earlier, “Let me do my research on who taught them that stuff.”
A common flaw with human beings is that they accept societal norms that are only in place for a little bit over their lifetime because they never lived to see a reason to question it. When you are born in a world that’s seemingly against you, you have reason to research why these traditions are in place, and you say, “Wow, if I happened to be born in the 1900s, pink was for boys and blue was for girls, and cheerleading is for boys and heels are for men, and the bible was changed to be anti-gay”. It’s almost like what we are taught is unreliable and not inherently factual, and in the time this was being taught, no one in the masses was disagreeing.
Everyone’s born in a box, but we weren’t all born with default settings, so we learned that humans can express themselves however they want. The way you think that only natural hair colors is normal, or how you dress is the right way, or blue hair automatically makes you weird, or pronouns equals liberal, that is taught to you. If this existed in the 1900s, this would be awesome [he points at blue hair], and this would just be english language [he points at pronouns]. When you’re wildly accepted by the masses, I see why you wouldn’t want to step down, you’re at the top of the pyramid. But the reason that we dye our hair blue is that the only people that wildly accepted us are other people who weren’t afraid of being different.
Now listen, maybe you just like authentically being a part of the masses, maybe your true self likes this stuff, that’s fine. But you also have to acknowledge that you were taught to avoid anything that would get you bullied or a negative reaction by the masses. So therefore, who’s really the top of the pyramid? [He flips the pyramid drawing upside-down].”
End transcript.
CW : VENT THAT HAS NOTHING TO DO WITH MLM BUT I NEED TO GET OUT
CW for disabilities and self-harm
I became sick over memorial day weekend (for those who don't know, we have the memorial day off.). Now all of my disabilities are flaring again, and i just got out of a huge flare not even a month ago.
I'm convinced this is because i don't wear a mask anymore. and before you blame me for my own issues, I don't wear one because my family doesn't anymore. I don't like to wear them in the house and due to breathing issues, i cannot wear them for a long time anyways. If i'm gonna get sick being at home or out in public, what's the point? OFC i would wear one if you asked me and would always warn you if i was sick because disabled ppl and able-bodied ppl with preferences matter.. always.
Anyways, I'm just in so much pain. I want to cry and scream and rip out my hair. I want to throw things across the room but all of that would get me recorded and prolly sent back to the psychiatric hospital.
i can't breathe without wheezing and coughing, my knees click when i walk and i keep going into pre-syncope. My fingers ache and i lost my hand brace for my wrist when it locks up. My hips hurt and even sitting criss-cross no longer helps. my back hurts and i can't crack it and i have a major headache.
I had to come home from school today, i begged my parents until they gave in. I'm scared. I'm sad. I'm depressed. I feel as if it'd be better if i just .. wasn't here. That way nobody would have to suffer. anymore. idk
I'm just so.. tired, man. Nothing is going my way, it never has. I'm so so tired, i feel so numb. I don't want to be here anymore.
Little comic i wanted to draw, I got a scrub thing and i tasted it cause it said it was shugar
Full comic vvv
I wish I was messin with yall lmao, it does taste really sweet but also tastes like soap, Idk it just looked like it would be yummy
The Premium Package: Bonus Round
Bloodwork came back positive for GAD65 antibodies. So now my rheumatologist is assuming not just neuropsychiatric lupus, but also Stiff Person Syndrome and GAD65 autoimmune encephalitis, based on my imaging and other test results.
I guess we’re just collecting neuroimmune disorders like trading cards now. Got brain fog? Muscle spasms? Random hallucinations? Congratulations, you might qualify for the rare holographic edition.
At this point, it feels less like getting answers and more like unlocking increasingly cursed DLC. The collector’s set is not supposed to be this complete.
Feeling sick...
I have been feeling sick all week and it really sucks because it only adds the constant physical pain I have to live with every second of every day because my step-dad used to like tossing me around.
If you decide to riot/revolt/protest/whatever you want to call it/whatever you do, for your rights as a human being that are being stripped from you...please be careful and stay safe ❤️
Hawaii is my number one bucket list things of all time! I know I’m a disabled veteran with a lot of limitations (due to different chronic illnesses and mental health illnesses I have unfortunately partly due to my injuries in the military), BUT I can still have dreams and aim for them! I still love Hiking, Lighthouses, anything nature (green and blue), history, language (teaching myself Hawaiian), culture, etc etc you name it I love and Hawaii has it. Probably one of the most extraordinary places to visit! And I WILL get there one day!
Oh and for my TBB/SW friends I will DEFINITELY be wearing my TBB and Grogu aka Baby Yoda shirts lol (I have a TON of them but especially for the lateral haha).
Listen all my joints hurt and I’m tired all the time, but yesterday someone I love rested their head on my shoulder while we watched cartoons on our beat up couch, so I’m doing pretty good all things considered.
Apparently doctors are allowed to just
“Hey I’d like to become a patient here”
“Cool we’re excepting new patients gimme your records”
“Okay here”
“Hmmmmmmmmmmmm….. actually we don’t like you go away”
“Wait what? But you said you were accepting new—“
“Mmmmm yeah we’re accepting new patients, just not you :)”
“But you’re covered by my insurance, and you said—“
“Bye bye :) shoo :) no doctor for you :)”
Me: Okay, I have really bad joint pain and fatigue. My Sjögren’s syndrome and my pseudogout must be acting up. Google, how do I deal with Sjögren’s symptoms?
Google: You should stay active and get some exercise.
Me: okay, well that’ll be a little tough with how I’m feeling, but I can manage a walk or something. What should I do for the pseudogout?
Google: Rest. DO NOT exercise.
Me: Okay— okay but— but for my Sjögren’s, aren’t I supposed to—
Google: Yes for the Sjögren’s you should be moving moving moving don’t rest too much or it gets worse
Me: Okay well—
Google: But also remember the pseudogout DONT MOVE, don’t do anything, rest rest rest or your joints will be fucked forever
Me: I—
Google: But also get off the couch RIGHT NOW, your Sjögren’s, you need EXERCISE
Me: ….how am I supposed to—
Google: FUCK you
So I’ve been on Celebrex for like 3 1/2 months now, had to stop taking it recently because it was giving me some GNARLY nausea and oh boy. Oh goodness. I did not realize HOW MUCH Celebrex was helping me until I had to stop taking it entirely.
Like it wasn’t completely curing me or anything, I was still having constant joint pain and fatigue, but it made my symptoms… semi-manageable? Kinda? Like I truly forgot just HOW bad it felt to have my pain go untreated.
Luckily after my last intense flare up I made sure to really build my work schedule around my pain and prepare things to run on their own incase I needed to take it easy for a while but holy shit. I feel Very Bad™️ right now.
Anyway don’t be like me, listen to your body and take breaks when you need to. That goes for stuff other than exercising too, like if you’re doing any type of activity and you feel your brain and body start to be like “heeeeeeeey can we slow down?” That’s a sign that you should take a breather, or dial it back, or whatever. Knowing how and when to listen to your body is your most important tool to manage your symptoms.
It’s also an important tool to help you like. Be a happier, chiller person.
Yet again stuck in the pattern of
Works out to help my fatigue -> experiences joint pain because I was too rough -> takes a day to rest because of my joint pain -> experiences fatigue because I haven’t been working out -> works out to help my fatigue -> becomes the chronically ill equivalent of Sisyphus, trapped in a self inflicted loop of being tired and achey all the time
Yet again stuck in the pattern of
Works out to help my fatigue -> experiences joint pain because I was too rough -> takes a day to rest because of my joint pain -> experiences fatigue because I haven’t been working out -> works out to help my fatigue -> becomes the chronically ill equivalent of Sisyphus, trapped in a self inflicted loop of being tired and achey all the time
It really sucks when my symptoms have been mostly manageable for like 2 weeks straight and then out of nowhere fatigue just hits me like a sack of bricks. Like at least it’s happening on my day off so I don’t have to worry about work but like. Damn dude it was really nice being a functioning person for a while, not enjoying the possibility of another flare up happening rn and wrecking my ass for the next week and a half.
Okay, fellow disabled folks who get hot flashes, does anyone have any ACTUAL advice for dealing with them? Every time I try to look it up Google thinks I’m a 60 year old post menopausal woman and tells me to call my grandkids and use a fucking douche or something
(Tags from @releasedfromhiscage)
THANK YOU THATS WHAT IM SAYING. LIKE. Your life matters because EVERY life matters. Because you are a living thing and your experience and existence has inherent value.
And you GOTTA fucking remember that, okay??? Like I know it’s easy to forget sometimes but I swear, you are not worthless, you will never be worthless, because you are a person and that means something and it always will. Being unable or unwilling to do certain things does not make your life less valuable than anyone else’s. Life is life, mothefucker.
Dude for real though your worth as a human being is not dependent on how productive or “useful” you are. You could do nothing but lay in bed all today and you’d still be worthy of respect and care. Bro you are a living breathing human being and your life has inherent value. Like straight up you don’t have to do something impossible or world changing with your time on earth in order for you to matter. We are all specks of dust in the cosmos and the fact that you exist at all means you are important. Dude you don’t have to earn the right to live bro, like I swear bro, like no cap.
Dude for real though your worth as a human being is not dependent on how productive or “useful” you are. You could do nothing but lay in bed all today and you’d still be worthy of respect and care. Bro you are a living breathing human being and your life has inherent value. Like straight up you don’t have to do something impossible or world changing with your time on earth in order for you to matter. We are all specks of dust in the cosmos and the fact that you exist at all means you are important. Dude you don’t have to earn the right to live bro, like I swear bro, like no cap.
It’s so weird having my physical health tank when my mental health is the best it’s ever been.
Like whenever someone asks me how I am I’m just like “well my bones hurt, and my muscles hurt, and I can work maybe 3 hours a day before I collapse from chronic fatigue. But like the world keeps on turning, so I’m vibing dude B) ”
Also I just googled the couch potato to 5k program I trained with when I was a kid and they don’t recommend the program for kids under 11 because it’s considered “too intense.” And I just found a picture from when I finished my first race in 2012 when I was 9 years old which is…. younger than 11.
So yeah maybe also don’t put your children on adult exercise regimens that are not designed for their tiny bodies lmao what the fuck
So fun fact when I was a kid my mom decided I wasn’t active enough. So she bought me absurdly expensive running shoes I did not ask for, dragged me out in the below freezing east coast weather, and started me on this “couch potato to 5k” challenge.
Every day after school, we ran. First it was 5 minutes a day, then 7, then 10… you get the gist. I think after 2 months we were running about an hour every day. By the time I quit running when I was 10, my mom and I had run 3 5ks together over the span of a little over a year.
A little after stopped running, I noticed some pain in my right knee. It got a little bit worse, and a little bit worse, and a little bit worse… and then five years later, when it had gotten to the point where I couldn’t pay attention in geography class because I was in constant pain from having to sit all day, I finally went to the doctor.
They told me the cartilage under my kneecap was worn down from overuse. It’s called chondromalacia patellae—also known as “runners knee.”
The thing is: When we were in races, and I was overwhelmed, I told my mom I wanted to stop. I told her I was in pain and I needed to slow down. I told her I didn’t like running.
And you know what she said to me?
“Suck it up.”
And I’m not saying “don’t tell your kids to exercise.” Your kids SHOULD exercise—not because of any bullshit weight reason or anything, but because they’re kids, and it’s good for them. Good for their bones, or whatever.
And I’m not saying “don’t exercise WITH your kids” either, because again, they should be exercising a little. And if you being there helps them stay motivated, that’s great.
What I am saying is: Listen to your kids. Trust that they know their own limits better than you do. Even if you think that they’re being over dramatic, or whiny, or whatever—don’t take the chance.
I’m 20 years old now. My knee still hurts. I have a whole suite of other, unrelated chronic conditions that would be improved if I exercised more. And I try to, I really do. But it’s kind of hard to do squats when just one makes your knee feel like it’s on fire for the rest of the week.
Listen. To. Your. Kids.
For the record I do really enjoy yoga, but when my ADHD’s real ramped up the idea of pulling up a yoga video and spending ten minutes stretching and being alone with my thoughts is just not on the table. Like I need something I can do completely independently so I can pop on a really dumb podcast and stop thinking about being in pain for five seconds. And yoga is great but I don’t have the concentration to guide myself through it without instructions.
Really wish all the “low impact” exercise routines I find weren’t hyper focused on like squats and lunges and shit. Like bro, my knees DO NOT WORK. They simply do not function properly. If I do 15 squats today I’m not going to be able to walk properly for literal days.
…….but like I’m so tired and I NEED to work out to help with my fatigue, and I don’t have the attention span for yoga right now. So I do the five bajillion squats anyway.
And I’m stupid so I forget that that’s a bad idea, so when I’m in an incredible amount of pain just walking up and down the stairs for the rest of the week, I’ll be like
