i really cannot understand how people see disabled life as this glamorised lazy life. i genuinely cannot wrap my head around this.
how could ANY of what i go through be seen that way i just dont get it.
anyone else ever think about where they would be if they werent sick?
couldve graduated high school, couldve gone to university, couldve had a job, travelled, practiced my skills regularly, chased my passions..
i desperately wanna live on linphea its stunninggg and please if i could also be the princess of it that would be great tysm
and magic it would be kind of a mix between morphix and illusions? i wanna be the fairy of creativity and have the ability to “paint” and “sculpt” whatever i want and it appears
I have a question for the fans of winxofandom. If you were in the world of winx, what kind of magic would you have, what planet would you like to live on? I'm interested in reading!
I really like Bloom's new looks. The wings might of been a pain to figure out, but damn are they pretty.
While I get why people don't like the reboot take on Magix Winx, (they go so hard in a different direction then the original) I also think the fandom has been unfairly harsh to the new designs.
They're all really fun and bursting with personality, something we haven't really had in Winx fairy forms for like... a decade. While they don't beat the originals, I respect these designs for going for their own thing with inspiration from the og as oppose to trying to replicate them unlike the Trix
I know I'm shouting into the void with this one but like. Genuinely so many low support needs people dont understand what it's like having even medium support needs. Like I am entirely dependent on other people for many of my needs. I can not see a doctor without someone else scheduling the appointment, taking me there and doing a large amount of the communication for me.
If my caretaker had not been accepting of me being trans and invested hundreds of hours into psych appointments and taking me to my endocrinologist and doing all the paperwork involved with my name change and literally taking a week off work to stay with me in the hospital for surgery etc i would have just like. Never transitioned. My ability to transition was entirely dependent on a singular person and that's what a lot of other parts of my life are like as well. and that's fucking terrifying and a great way to be neglected and abused in ways that are horribly hard to get away from.
I dont drive, I dont work, I struggle to leave the house at all, I dont fucking communicate with people majority of the time. The things that are hard for you? I probably can not do them to begin with. No one in my family lives even close to a comparable life to me. None of my irl friends do. I'm incredibly isolated.
And then I go online and see people rant about how easy MSN and HSN people have it because we just get everything we need and how because people can tell we are disabled everything is so easy because none of you even manage to listen to us talk about the neglect and abuse and trauma we face/d. I see people angry at their (more) disabled siblings for getting care they need to survive instead of mad at society for creating a system where its incredibly hard for families to take care of both a higher support needs child and another child.
And I see people who live completely independent lives who work and drive and make their own doctors appointments and grocery shop and travel by themselves call themselves MSN (I could go on a rant about how that's also often the fault of LSN influencers for not leaving a lot of room in their own community for legitimate struggle but that's for another day).
I just want my needs met. I want to be able to decide where I live. I want choice in my care. I want to be able to have community with those like me. I want others to realize I exist and leave the words i have to describe my existence alone. I want others to listen to what I have to say about what my life is like.
this is officially my longest migraine. day 28.
i am beyond sick of this. mentally struggling with how reliant on my carer i have to be during migraines.
i can handle it when its only a few days but this long is a whole other world. i dont experience this level of dependance that often so im not really used to it still.
on day 5 of a migraine get me out of here
kinda proving my own point by posting about consistency and then getting really sick and going to hospital jfhdkd
“consistency is key” doesn’t apply to many disabled people.
going to the doctor and having them tell me that and that i need to stick to a schedule they have deemed appropriate is completely comedic.
what about the fact that my health and ability to do anything is a constant gamble? it can change drastically and almost instantly at any given time.
what about how right now i can stand up and make myself breakfast, but by lunch time? who knows. i may be unable to even sit up.
how do u listen to me explain that i dont have a daily or weekly schedule because of how unpredictable my health is, and reply by giving me a schedule.
do you not think i have tried to stick to a routine and schedule like all the healthy people around me??
all i see is people with consistency. i grew up thinking i was broken because i couldnt. i have pushed myself to breaking points trying to fit your mould of success and health.
im sorry if you experience this too. im going to make another post about what consistency can look like for me and other disabled people. because while we dont fit the classic definition of it, there are ways we can make our own version. i wish doctors would listen to me and would help me find my version instead of insisting on theirs, but they havent, so i wanna try help others find theirs.
being a disabled environmentalist is hard.
i care so much and i wish i could aim for things like zero waste. but i just cant, doing something like that would be ignoring my health needs.
its quite isolating, because i try to find tips and environmental swaps but often they just arent possible for me to use/do and then i feel guilty for that.
even though i know its not my fault and i cant help it, it just triggers my inner ableism and i blame myself for being this way.
incredible 10/10
everyone gets to observe my crutches
intersex person: yeah my parents agreed to put me under surgery as a baby because my doctor thought my genitals made me ugly. they feel numb half the time. sometimes i can’t tell if it’s blood, discharge or piss down there. i feel violated in every sense of the word. i can’t look below the waist without wanting to throw up
person you thought was safe: lmao imagine being so privileged you complain about getting surgery that some would die to have lollll #cis privilege